Guest Posted October 17, 2004 Share Posted October 17, 2004 When I was first diagnosed with stage IV adenocarcinoma the oncologist said palliative treatment was all I could expect. Like most of you, the diagnosis was very unexpected because I felt pretty good. I asked if there were any clinical trials that might be worthwhile and ended up in a clinical trial of six 21 day cycles of gemcitabine, carboplatin and velcade at U.C. Davis in California. I handled the treatment well and at the conclusion the tumors had shrunk significantly. Shortly after the trail, I found a new oncologist who thought radiation therapy might finish killing the tumors. He said he would give me close to the maximum rads and cook it – this sounded good to me! About 5 weeks after 40 radiation treatments to the lung and 35 treatments to the tumor on my adrenal gland, a PET scan shows a mean (average) SUV (Standard Update Value) of 3.5 in the lung area and a mean SUV of 5.8 to the adrenal tumor. As John pointed out in his post of Sept. 24, 2004, 2.5 is the cutoff when something is considered malignant. This radiation oncologist also thought my CEA was a pretty good marker at 62.2 when we started radiation. After radiation it is 46.0 – I think I read that anything over 5 indicates cancer. So, the battle continues. I’ve recently had a CT, PET and MRI scan. The oncologist feels that a bone scan is unnecessary because if I had mets to the bone, indications would have shown up on the recent blood test. I consider myself lucky that I don’t have any other mets to be worried about at this time – just two tumors that are still fighting to overtake me. Sorry for the long story, but the oncologist is now recommending 4 more cycles of chemotherapy. He is referring me to another oncologist. I’m trying to gather information (before seeing the new oncologist) on what chemotherapy drugs might work best at this point of my treatment? Does anyone have any ideas, experience with a second round of chemotherapy, or other treatment thoughts? I don’t care about side affects, I just want drugs that might work well against the cancer. Thank you, Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.