barbara w Posted December 2, 2004 Share Posted December 2, 2004 Hi everyone - I haven't posted or been online in so long, but it already feels comforting to be in the company of people who know what I'm going through. I've updated my profile so you can see how crazy the past few months have been for my dad and us. My sister also got married in October - thankfully my dad was with us to enjoy the day and dance away - which just added to the frenzy. Anyhow, my dad has had a rough road. It seens that after his trial of Velcade each successive chemo was never completed, thereby failing. Since his WBR is finished, I assumed the onc would suggest another chemo or possibly tarceva - but she's not. She mentioned hospice which sort of surprised me since I thought ' why did we put him through brain surgery and WBR for this?' His recent brain MRI has revealed a small lesion at the site of the resected brain tumor. His liver function is fine, pain level is managable, and he wants to continue treatment. His mental status is definately altered since the surgery, and moreso since the radiation. He's not as active as he once was - who would be? - but he is still getting up, appetite is improving, cares for his appearance, etc? He's just getting over a tough reaction to the compazine he was taking - it was making his super anxious. While his onc thinks it might be time for hospice to make it easier on us, his palliative care dr. doesn't think it is time - nor do we. I guess my question is ' what do you think? when do you know you've done enough? Or does anyone have any suggestions of where to go from here. Is there any hope in trying a new treatment - his onc doesn't feel so, but I think we just haven't hit it right yet - each treatment after the carbo/gemzar and then the trial was interrupted. Help! Thnaks in advance. Barbara Quote Link to comment Share on other sites More sharing options...
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