Andrea Posted December 23, 2004 Share Posted December 23, 2004 Just an update, not much to report, but I always like reading about the treatment others "similar" to my mom are getting.........We saw the onc today and he decided to take her off of Tarceva for maintence. She has only been on 1 week. The reason is that her scans show pretty severe radiation fibrosis and her pulmonary function tests show her lungs at 50% capacity which is lower than they should be at. Tarceva can cause fibrosis in 5% of the people. Given that she already has it, it is likely that she is predisposed to get it, and the double whammy could cause major damage. Since there isn't much data on Tarceva, the onc felt the risks outweighed the benefits. So off of it she is Quote Link to comment Share on other sites More sharing options...
Nushka Posted December 23, 2004 Share Posted December 23, 2004 Andrea, I hope your mom is one of the people that once through treatment they are fine from then on. I also hope I am one of them. Maybe she doesn't need maintenace. Nina Quote Link to comment Share on other sites More sharing options...
Andrea Posted December 23, 2004 Author Share Posted December 23, 2004 Nina, I hope you and my mom are one of those who are fine once treatment is done Katie--no new game plan since she is NED. Just wait and see and watch on the scans. I guess it makes sense that there aren't many (or any) clinical trials to try to keep NED around since it is hard to measure results. Quote Link to comment Share on other sites More sharing options...
stand4hope Posted December 23, 2004 Share Posted December 23, 2004 Andrea, Since your beautiful mom is NED, I'm going to pray that she never needs to take anything again!!!!!!!!!!!!!!! Love, Peggy Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted December 23, 2004 Share Posted December 23, 2004 Andrea,I'm also hoping your mom & many others need no further treatment.I can relate to her having less than 50% lung function.I only have 1 lung left & the radiation & tumor in the airway make it tough to run around the block so to speak. Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted December 23, 2004 Share Posted December 23, 2004 I hear that, Frank. I rated about 45%, and with much attention to exercise and "training" I might get up to 55%.... I am fortunate, in that I can hold a job, and play taxi to my kids on weekends. I know it won't get better, and I hope it won't get worse. Wise move on the oncologist's part, Andrea. Still, it's enough to have a quality of life -- just a little different one is all. Love to you and your family at holiday time!. You too Frank, especially for all those groaner jokes@.!! XOXOXOX Prayers always, MaryAnn Quote Link to comment Share on other sites More sharing options...
Justakid Posted December 23, 2004 Share Posted December 23, 2004 Andrea, sorry the Tarceva is a no go! I wonder if I'll ever get back on it again, my rash still looks real bad! Once my face clears up we are supposed to try 100mg. Hope all works out! Quote Link to comment Share on other sites More sharing options...
BeckyCW Posted December 23, 2004 Share Posted December 23, 2004 Andrea, here's hoping your mom never needs anything to keep NED at her side forever! BeckyCW Quote Link to comment Share on other sites More sharing options...
SJAS Posted December 24, 2004 Share Posted December 24, 2004 Just to have NED around is such a blessing. Here's hoping that the Tarceva was really not needed at all. Quote Link to comment Share on other sites More sharing options...
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