Connie B Posted January 26, 2005 Share Posted January 26, 2005 Dear MurielK, Hey my friend, how are you? I see you browsing but your not posting, not that you have to. It would be nice to hear from you. How was your move and how are you doing? Hugs, Connie Quote Link to comment Share on other sites More sharing options...
MurielK Posted January 26, 2005 Share Posted January 26, 2005 Connie, Thanks for asking! I did post a little about the move etc. after my computer was set up here. (At least I thought I did) Obviously not enough, since you asked. I'm doing ok. Recovery is a lot slower this time. I'm still short of breathe if I walk very fast (faster than slow) and I'm still very tired. I am strong enough to shop for family room furniture, however. The move was ok. On Dec 16th I took the auto train to Orlando with our oldest son (he didn't think I was ready to travel alone). Another son and friend brought the dogs down a couple weeks before that. And my husband flew to Orlando, arriving hours before the dogs. It all worked out, although my husband was in the hospital for the 3 days before the movers came to pack and load the house in VA. He's fine now. So we arrived here ok, as did our belongings. Had a few minor complications - Sears promised 3 different delivery dates for laundry equipment before getting the stuff here - a long wait. The lights in the house dimmed and then became very bright just before anything drew any power. Power Co. came today and found a damaged something in the neighbors yard (5 - 6 under it). So that's fine now. The Onc is ok. Didn't seem to know what to do about my new primary. Said he'd never seen that before! Took it (the situation) to the tumor board and they didn't have any for sure solutions either. (I posted this in the "Ask the Expert Section - Std. Tx). I'll probably have chemo (gemzar and cisplatin, I think). He wants me to see a pulmonary specialist first (do that on this Thurs). Then I see the Onc again next Wed. My husband thinks I should be stronger before I start chemo again, as it really wiped me out last time. I'm getting the sense that the new Onc doesn't see quite as bright a future as we thought we had before the new tumor. He's not being pessimistic or non-supportive. Just honest - I asked; he answered. He thinks it will probably return again. [Which makes me wonder why he seemed less supportive of chemo at first.] Unless he thinks the outcome will be the same either way. Questions to ask next Wed. Not posting much - altho I do browse a lot - cuz I just haven't got the energy to create a meaningful response or comment. I'm getting better tho. I don't know when I'm going to get to Mpls. My friend in StP is doing pretty good now and I'm in no shape to travel up there. Probably after I finish chemo. Still planning to get together w/ the MN people when I'm there. Muriel K Quote Link to comment Share on other sites More sharing options...
Nushka Posted January 26, 2005 Share Posted January 26, 2005 I was glad to see you post MurielK....been worried about you too. I hope you feel stronger very soon and that they onc figures out a perfect treatment for you that works! I know you are exhausted but let us hear from you ever now and then. Keeping you in my prayers. Nina Quote Link to comment Share on other sites More sharing options...
ginnyde Posted January 26, 2005 Share Posted January 26, 2005 Muriel, Glad the move went as smoothly as long distance moves go. Very glad to hear you are up to shopping, always a good sign. Sorry you are not in love with your onc, it makes such a big difference. Hope you soon feel more comfortable with your med. team. Quote Link to comment Share on other sites More sharing options...
Connie B Posted January 26, 2005 Author Share Posted January 26, 2005 Hi Muriel, So good to see you again. Sorry I missed your other message or messages, as hard as I try, I miss a LOT of them! I'm glad to hear your doing better, and that the move went soooo well?! I know you were dreading that move. (can't say as I blame you) Glad to hear the Hubby is doing better as well. Your plates were WAY TO FULL! Having said all that and reading over your message, how do you like Florida? (answer only if and when you feel up to it)! How are the dog's doing? I hope all goes well with your new treatments. Your in my thoughts and prayers. Enjoy the SHOPPING! YOU GO GIRL! Love & Hugs, Con Quote Link to comment Share on other sites More sharing options...
betplace Posted January 26, 2005 Share Posted January 26, 2005 Just wanted to welcome you to Hurricane Ally Murial! Glad you made the trip safely. Prayers going up that the new Onc will kick cancer butt for you! Blessings Betty Quote Link to comment Share on other sites More sharing options...
Elaine Posted January 26, 2005 Share Posted January 26, 2005 Good to hear from you Muriel. I hope you get to feeling lots better soon. Keep us posted and keep the hope flowing. love and fortiude elaine Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted January 26, 2005 Share Posted January 26, 2005 Muriel, glad your doing ok.That was a lot of activity you did recently and took a lotta guts and determination to hang in there. Quote Link to comment Share on other sites More sharing options...
Ann Posted January 26, 2005 Share Posted January 26, 2005 Hi Muriel. Welcome to the sunny (but cold) Sunshine State. Hope you are getting all settled in. I don't make it to Orlando often but would love to meet you the next time I visit my sons that live there. I'm about an hour and a half east of you. So, what oncologist did you settle on? Are you going to MD Anderson? If so, maybe you could see Dr. Omar Kayaleh. He was Dennis's doctor and in addition to being an excellent doctor he is also an extremely knic and caring man. Everyone at Anderson refers to him as the "Big Teddy Bear." Quote Link to comment Share on other sites More sharing options...
MurielK Posted January 26, 2005 Share Posted January 26, 2005 Ann, I love FL - even without sun today. I'm going to Dr. Zehngebot in Winter Park. The guy you had recommended is the leader of the Gastrointestinal and Genitourinary Cancers Specialty Sections at M. D. Anderson Cancer Center. (According to the website.) Dr. Z is listed in the Orlando Mag.s top 100 or whatever docs and came recommended by someone we know in the DC area. I like him. I 'd love to meet you - for lunch? I'll pm my phone number. Muriel K Quote Link to comment Share on other sites More sharing options...
stand4hope Posted January 26, 2005 Share Posted January 26, 2005 Muriel, We talked a little in chat last night, but I just wanted to pop in here and say hello again, and wish you a speedy recovery back to 100% good health as soon as possible. Love, Peggy Quote Link to comment Share on other sites More sharing options...
Ann Posted January 26, 2005 Share Posted January 26, 2005 Glad you like your doctor. I am wondering if the info about Kayaleh was a misprint. I know he handles a a lot of lung cancer patients. I will try and give you a call tommorrow!!!!! Quote Link to comment Share on other sites More sharing options...
chloesmom Posted January 27, 2005 Share Posted January 27, 2005 Muriel, How great to hear from you.....I know you've got a lot going on right now, no wonder you're tired.... I had cisplatin/gemzar, it wasn't so bad. PM me if you want some details on how it went with me. Keep on going, that's all we can do. How are those pooches? Cindy Quote Link to comment Share on other sites More sharing options...
Justakid Posted January 27, 2005 Share Posted January 27, 2005 Hi Muriel- Glad you got moved to FL ok! Hang in there with treatment! Keep us posted! Quote Link to comment Share on other sites More sharing options...
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