lukiss Posted January 29, 2005 Share Posted January 29, 2005 Hello and thank you to all that responded to my other post and I know alot of you had asked what happened. I have been too drained to write, getting up everyday from a not real and short nights sleep to dealing with all with dad and then my 2 1/2 year old son got asthma and had to have breathing treatments etc. Lukes doing much better.. my dad, well last i wrote it was 6 am and i went over there and he had fallen again in the middle of the night, bumping his head again. I came home and got my son and went back over. I bathed him for the first time, shaved him for the first time and I had to dress him. its funny because i always dreaded that day and thought i would freak out, but instead i was peaceful and looked at it as a blessing and honor. while i shaved him, i just stared at him in the mirror, really looking at him and how beautiful he still is, and looking at the resemblences and it was nice. dont get me wrong it was difficult at the same time. he was getting in a lot of pain by now because of the fall. it took 2 hours to do this whole process. bless his heart, when we got to the hospital he actually asked for a wheel chair, that has never happened, but it showed me how bad he was feeling. to make a long story short, they got him in the er hours later and said his blood pressure was frightening low, and he had almost no sodium or protein. his body was actually beginning to eat his muscle. they said his chest xray showed that his whole left lung was now totally full of tumors. it was a heavy and hard night. we said alot of things to eachother that were brilliant. god why does so much love come out in such a short time, and for monthes there has been none.. i am grateful. he was admitted, and he still isnt able to eat, but this morning when i called he said he was terrible. the superior vena cava syndrome is back, now for the 3rd time, so he isnt able to get it radiated on again, so i dont know what is going to happen. he was very scared and crying so i went there and just got home stayed til they kicked me out. it really relaxed him though. so there is the update, dont know what to expect. just am grateful that i am priveledged to be a part of this process with him, instead of him being alone. one day at a time that is for sure.. thanks for all the support, it REALLY helped. lukiss Quote Link to comment Share on other sites More sharing options...
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