shadowrose Posted January 29, 2005 Share Posted January 29, 2005 HI I'm pretty new here, but thought I'd open up and introduce myself. I find that this forum in particular is good for me, because my choices aren't the 'norm'. It's been determined that I likely have lung cancer, with node involvement. Now, most people would want to be aggressive and treat it and all. That's not me. That, in part, is why I've chosen not to do anything other than keep myself comfortable. I don't do pain well, lol. They can give me all the pain meds they want. I'm 44, and have smoked for 30 years. Yeah, stupid, I know. But at this point, I don't see any reason to quit. It won't change anything, ya know? For the majority of people, I run around various forums and suggest tests to request, meds to try- things like that. For many reasons, though, I've chosen not to take my own advice. For me, quality of life, the time that I have left, is much more important that quanity. I'd drather 6 good months to 12 or even more bad ones. I want my daughter to remember good times. Not watching me dealing with the horrors of chemo and radiation. I talked my father into both, and to this day, regret it. I won't do the same to my child, and leave her with those memories. If anyone thinks I'm crazy, I probably am I beat cancer once before, and really don't know if this lung stuff is a repeat of that, or something new. I don't want or need to know. Just thought I'd introduce myself and say Hi Quote Link to comment Share on other sites More sharing options...
stand4hope Posted January 29, 2005 Share Posted January 29, 2005 Hi Shadowrose and WELCOME! I've noticed a few of your posts here and there and am glad to see you joined us. You have made a very brave decision, but one which I think most of us respect and understand completely. I wish you all the best and pray that all your days, weeks, months and years will be filled with joy and laughter with your daughter. By the way, very nice picture! Love, Peggy Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted January 29, 2005 Share Posted January 29, 2005 Hi Shadowrose. Welcome to this group. From your history, it looks as if this is not a new thing for you. Please expect all the support that I can give for the path that you have chosen. We all have to make our own decisions. Whatever feels right to each of us. Please jump in whenever you feel the urge for the rest of us too. You are part of this group, shadowrose, a flower among a bunch of thorns! Welcome. Cindi o'h Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted January 29, 2005 Share Posted January 29, 2005 Hi Shadowrose and welcome, Sorry to hear this news.Wishing you as much quality time with your daughter as can possibly be had and then some.There are a lot of caring and knowing folks here for you whenever you need us. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted January 30, 2005 Share Posted January 30, 2005 Welcome, Shadowrose. It will be good to get to know you better. I understand your sentiments. I might make the same decision if it were me. Anyway, welcome, and jump right in, the water's fine. Margaret Quote Link to comment Share on other sites More sharing options...
Justakid Posted January 30, 2005 Share Posted January 30, 2005 Shadowrose Welcome and sorry you have to be here! Everyone makes their own choices about how to handle things. There have been times that I wish I was alone and single, then I wouldn't have to fight cause it would just be me. It's a tough decision make! I admire your strength! Keep in touch! Quote Link to comment Share on other sites More sharing options...
SBeth Posted January 30, 2005 Share Posted January 30, 2005 Dear Shadowrose, Thank you for sharing your story and such deep personal feelings and experiences with us. I hope that your trip on the road less travelled is all that it can be for both you and your daughter. It is, in many ways, a self-less act of love to give your daughter such precious memories instead of the ones that haunt you with the loss of your own parent. God bless you during this travel. Love to you, Quote Link to comment Share on other sites More sharing options...
J.C. Posted January 30, 2005 Share Posted January 30, 2005 Hello Shadowrose, Just want to say welcome and good luck. J.C. Quote Link to comment Share on other sites More sharing options...
Maryanne Posted January 30, 2005 Share Posted January 30, 2005 Hi ShadowRose I just wanted to say thinking about you and hope that your transisition is smooth and as painfree as possible. God bless you, and strength to your daughter. You are a very brave person. Maryanne Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted April 17, 2005 Share Posted April 17, 2005 Hi, Shadowrose, I was thinking of you today and wondered how things are going? Blessings, Margaret Quote Link to comment Share on other sites More sharing options...
palm Posted June 12, 2005 Share Posted June 12, 2005 I must say I admire your decision and your acceptance of your disease. Am saying prayers for you and your daughter. Quote Link to comment Share on other sites More sharing options...
DeanCarl Posted June 13, 2005 Share Posted June 13, 2005 Welcome, Shadowrose, to our little "nook" amongst all the "crannies" on this board (I'M JUST JOKING!!! ) Please feel more than welcome to share your experiences along this path we walk. And know in your heart you never have to walk it alone. Dean Quote Link to comment Share on other sites More sharing options...
J.C. Posted June 13, 2005 Share Posted June 13, 2005 Dean Good to see your post, hope you are still looking at the flowers and the birds and taking care of yourself. Best to you J.C. Quote Link to comment Share on other sites More sharing options...
Larry Posted June 21, 2005 Share Posted June 21, 2005 You know what" i've got that gut feeling after reading your post that you'll beat your cancer. But would hope you'll do the non Chemo way such as diet and lot's of immune system boosters.. So with that being said go and LIVE LIFE that's what were here for...... Quote Link to comment Share on other sites More sharing options...
Leslie221 Posted June 25, 2005 Share Posted June 25, 2005 I've often thought about what I will do if my current, almost side-effect free treatment stops working. Just how much discomfort am I willing to accept? At what point will I say, "Thanks but no thanks" to treatments? I've been very lucky that the new EGFR inhibitors are all I've ever had and they work really well for me. My husband and I have talked about it and I've decided that I'll say "no" to anything that would cause the quality of my life to deteriorate but doesn't do more than just buy me a very little time. Good luck to you! I won't forget your story. I wish you the best. Leslie Quote Link to comment Share on other sites More sharing options...
gerbil runner Posted June 25, 2005 Share Posted June 25, 2005 Shadowrose, only you have the right to say what - if any - treatment you want. May you have many great days ahead and an easy journey. I have seen my own mother suffer greatly during treatment, and she insists she will keep seeking treatment as needed. Not sure that's what I would choose for myself. But each of us deserves that right to choose. There is not right or wrong answer, only YOUR answer. Quote Link to comment Share on other sites More sharing options...
Connie B Posted June 25, 2005 Share Posted June 25, 2005 Dear Members and Shadowrose, I just want to bring to everyone's attention that our Shadowrose posted this message back in January 2005. That I am aware of, she has not been back?! Has anyone heard from her? Shadowrose, are you out there in cyberspace? We would love to hear from you. I am also going to PM her and see if she will reply. Quote Link to comment Share on other sites More sharing options...
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