deruo Posted February 16, 2005 Share Posted February 16, 2005 Doc says CT shows 1 - 1 cm "mass" in mediastinum and lower right lobe. Much smaller than what they were when this journey started. She said that progress has been wonderful, and that some if not all of what they are seeing is scar tissue so now we wait and do follow ups every 3 months. (Can't tell if theres some cancer cells hiding in there either) I asked for a copy of the report and I noticed it also said "no evidence of metastatic disease". Anyone know if this the same as "NED"? Quote Link to comment Share on other sites More sharing options...
lilgna Posted February 16, 2005 Share Posted February 16, 2005 So glad you got great reports, NED is NO EVIDENCE OF DISEASE. Metastic disease, is when cancer cells are found in other organs or tissues, like the liver, spleen, adrenal gland, etc.. Still shrinkage of the tumor is outstanding news...... Quote Link to comment Share on other sites More sharing options...
kimmek Posted February 16, 2005 Share Posted February 16, 2005 That is exactly what that means..Congratualtions!!! Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted February 16, 2005 Share Posted February 16, 2005 That sounds like very favorable news to me.Congratulations. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted February 16, 2005 Share Posted February 16, 2005 Great news! Celebrate! Quote Link to comment Share on other sites More sharing options...
shineladysue Posted February 16, 2005 Share Posted February 16, 2005 That's wonderful news!!! I'm so happy for you. Sue Quote Link to comment Share on other sites More sharing options...
Andrea Posted February 16, 2005 Share Posted February 16, 2005 Great report. Congrats! Keep up the good work Quote Link to comment Share on other sites More sharing options...
Calintay Posted February 17, 2005 Share Posted February 17, 2005 CONGRATS! You must be ecstatic over the wonderful report. Quote Link to comment Share on other sites More sharing options...
Nushka Posted February 17, 2005 Share Posted February 17, 2005 Yes, you are NED. Congratulations. I hope you continue to get great scans. Nina Quote Link to comment Share on other sites More sharing options...
Don M Posted February 18, 2005 Share Posted February 18, 2005 Congratualtions Quote Link to comment Share on other sites More sharing options...
Jana_W Posted February 18, 2005 Share Posted February 18, 2005 Hi Great to read that the tumours have shrunk and may only be scar tissue now, and there is no evidence of metastatic disease. However, I don't agree with this being the same as NED (which is No Evidence of Disease). If there are still possible tumours on the scans, that is not NED (or certainly not what I understood NED to mean). Any others have a thought on this?? But, having said that, it still sounds like a mighty fine report with reason to celebrate, and hopefully NED is just around the corner. Jana xxx Quote Link to comment Share on other sites More sharing options...
karenl Posted February 18, 2005 Share Posted February 18, 2005 I have to agree with my sister, Jana W, on this one (of course ). NED would be the term used if the mass in the lung was also not detected. As lilgna explained in her post, no evidence of metastatic disease suggests that there were no signs of cancer anywhere else in the body. Which is great!! Hopefully, the small remaining mass in the lung is just scar tissue. I guess further scans down the track will tell, and at that point, you may well be able to celebrate with NED!!! Congratulations on a very encouraging report! Karen Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted February 18, 2005 Share Posted February 18, 2005 repeat over and over because they are beautiful words... NO EVIDENCE OF METASTATIC DISEASE.. NO EVIDENCE OF METASTATIC DISEASE... NO EVIDENCE OF METASTATIC DISEASE.. this IS great news. This is what we all want to hear! Sometimes it takes longer for the good news to sink in than the bad news! (for me anyway). congratulations are in order. let's celebrate! you know where to find me! love, Cindi o'h Quote Link to comment Share on other sites More sharing options...
Tiny Posted February 19, 2005 Share Posted February 19, 2005 It was a pleasure to read your favorable report. Hoping for more in the future. Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted February 19, 2005 Share Posted February 19, 2005 Congrats! Quote Link to comment Share on other sites More sharing options...
Maryanne Posted February 20, 2005 Share Posted February 20, 2005 Thats great news!!!! You are diseased free........... YES!!!!!!!!!! CONGRATS..... time for a round of drinks at Cindi's bar... your buying. Maryanne Quote Link to comment Share on other sites More sharing options...
gail p-m Posted February 20, 2005 Share Posted February 20, 2005 Sounds like you're going in the right direction; I hope the good news keeps coming. Gail p-m Quote Link to comment Share on other sites More sharing options...
sharyn Posted February 20, 2005 Share Posted February 20, 2005 Just wonderful news... so very happy for you!!! Quote Link to comment Share on other sites More sharing options...
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