MelanieLR Posted February 25, 2005 Share Posted February 25, 2005 Hey everybody, I saw the specialists today. They told me that it was my choice wether to have Gamma Knife or WBR. I am going with the Gamma Knife since I had virtually no bad side effects last time plus you can have it over & over again. Once you have WBR, to my knowledge, that is it (feel free to correct me if I'm wrong here). I know that based on the stage & stats, the cancer is supposed to eventually be my demise but I want to continue to have the choice to keep on blasting the brain tumors. My greatest fear through this is that the tumors will just continue to eat little pieces of my brain - like Pac-Man (I'm showing my age here). Anyway, I'm scheduled for the Gamma Knife on Tues. In the mean time, I found out today that the strange "episodes" that I've been having are seizures so they put me on an anti-seizure medication & back on the ^$%*@ steroids. Oh well, I guess I knew that was too good to last. Hugs & Prayers to you all, Melanie Quote Link to comment Share on other sites More sharing options...
karen335 Posted February 25, 2005 Share Posted February 25, 2005 Malanie, If you don't mind me asking. What were the episodes. I had Stereotactic Radiation in June 2004 fo a removed tumor... Thanks, Prayers and warm hugs, Karen Quote Link to comment Share on other sites More sharing options...
MelanieLR Posted February 25, 2005 Author Share Posted February 25, 2005 Hi Karen, Check your mail box. I PM'd the answer to your question. I wasn't sure if anyone would be interested & since it was so odd, I really didn't want to put it out in front of everyone unless more people were really interested. I think it makes me sound a little loony-tunes. It sure feels a little loony-tunes. Hugs & prayers, Melanie Quote Link to comment Share on other sites More sharing options...
shineladysue Posted February 25, 2005 Share Posted February 25, 2005 Melanie, I'm sorry you are having to go through all of this , but I will keep you in my prayers. Sue Quote Link to comment Share on other sites More sharing options...
Maryanne Posted February 25, 2005 Share Posted February 25, 2005 Hi Melanie, So sorry you are going through such a hard time. I pray all works out for you. Maryanne Quote Link to comment Share on other sites More sharing options...
Don Wood Posted February 25, 2005 Share Posted February 25, 2005 Sounds good, Melanie. Best ot you. Don Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted February 25, 2005 Share Posted February 25, 2005 Hi Melanie. I just read all about gamma knife yesterday. It sounds like it is such a precision surgery with little to no after affects...I hope this will be the best solution for you. I think if it were me, I would have made the same choice. Best to you. Cindi o'h Quote Link to comment Share on other sites More sharing options...
janetg Posted February 25, 2005 Share Posted February 25, 2005 A great big hug and positive thoughts are being sent your way. Your strength is amazing. Janet PS - I remember pac-man, too!! Quote Link to comment Share on other sites More sharing options...
TAnn Posted February 25, 2005 Share Posted February 25, 2005 Melanie, I know exactly how you feel about the "pac-man" syndrome. It's creepy to think that something is in your brain doing whatever it wants. I was told that you could only have wbr once, but you could have wbr followed by Gamma Knife or Stereotactic Radiation if needed in the future. I could not have Stereotactic because my tumors were too small to pinpoint and too numerous. Good luck next Tuesday. Sorry you have to go on those darn steroids again. I just hate them! TAnn Quote Link to comment Share on other sites More sharing options...
pammie Posted February 25, 2005 Share Posted February 25, 2005 We still play pac man in this house Melanie. Fun game. Glad the gamma knife stuff is available to you. praying for great results. pammie Quote Link to comment Share on other sites More sharing options...
karen335 Posted February 25, 2005 Share Posted February 25, 2005 Melanie, I sent you a PM. Yours didn't come through.. Hugs and prayers for you too, Karen Quote Link to comment Share on other sites More sharing options...
lilgna Posted February 28, 2005 Share Posted February 28, 2005 Melanie, Hope ll goes well for you, I will be thinking of you.. Prayers. gina Quote Link to comment Share on other sites More sharing options...
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