betplace Posted February 27, 2005 Share Posted February 27, 2005 Well several people have PM'd me for an update, so I thought I had better let you all know where I am at in our struggle with the beast. I have finished 3 rounds of the Cisplatin/VP-16. It is a much harder combo than the Carbo was. I gained 50 pounds while on that particular combination. I have lost 25 on this one. There have been several episodes of nausea and the resultant praying to the Porcelain Goddess, plus I have lost my appetite. I really have to work hard to find foods that appeal to me. I have had a lot of pain issues this time, and yesterday the Morphine stopped working. The Dr at the ER didn't know why, it just stopped working and suddenly I couldn't move because I was in so much pain. I ended up in the ER and they put me on Methadone, which helps, but is not as good as the Morphine was for blocking pain. I am supposed to start round 4 this week, we'll see what my Onc decides in view of my trip to ER. Plus I need to see PCP for new Pain mangment. Scans are scheduled for the 10th of March, so pray that this stuff is shrinking, since I am so miserable that it better *&&$%^#$& work! Sitting at the puter is really hard on me and until I resolve that, I won't be on as much. Take care, I love you all and pray for all of us nightly. Blessings Betty Quote Link to comment Share on other sites More sharing options...
Don Wood Posted February 27, 2005 Share Posted February 27, 2005 Prayers comin'. Quote Link to comment Share on other sites More sharing options...
Haylee_38 Posted February 27, 2005 Share Posted February 27, 2005 Betty, Praying the pain gets under control. My thoughts are with you. Hang in there, Haylee Quote Link to comment Share on other sites More sharing options...
Mouse Posted February 27, 2005 Share Posted February 27, 2005 Betty! So sorry you are having a bad time! Will send prayers to make it easier. Thinking of you! Hope you feel better soon! Love, Marge Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted February 27, 2005 Share Posted February 27, 2005 Oh Bett, So sorry to hear of all your problems. You are such a strong, wonderful person. You don't deserve all this. So sad to hear this. I'm sending prayers for you right now. You WILL get through this. Love ya, Kid! Joanie Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted February 27, 2005 Share Posted February 27, 2005 Betty. I am so sorry you have been having a rough time of it. And I want to both thank you and congratulate you for the update. You don't have to be so flippin' strong all the time... !!! I think of your dancin' every time I see you post. Looks like you will be dancing only in your mind for awhile. Crossing my everythings that your pain will be controlled and that the new cocktail will give you some results. Prayers right now for miss Betty. love, Cindi o'h Quote Link to comment Share on other sites More sharing options...
ginnyde Posted February 27, 2005 Share Posted February 27, 2005 Oh Betty, I want to see you happy dancin' for you. I am sorry this darn chemo is so hard on you but hope this is a sign that it is WORKING. Will pray extra hard for good scans. Let us know. Quote Link to comment Share on other sites More sharing options...
Addie Posted February 27, 2005 Share Posted February 27, 2005 From most of what I hear, cisplatin is really tough! I didn't get it the first time, because of a kidney condition...but the kidneys don't seem to be all it impacts. I'm sorry you're having such a rough stretch of it, Betts. You ARE strong though...and you know we all back you up here, plus are vibing and sending all good wishes and thoughts! So far, the Topotecan has been okay. My gut pain sort of went away once I had a couple of days of chemo in me...and boy was I happy about that!? Keep us posted as you can and I am hoping for good results, good shrinkage AND better pain management. Happy dancing feet like yours can't be stilled for long, you know! You'll be back out there winging those feet around in no time! Hang in there, sweetie.... Quote Link to comment Share on other sites More sharing options...
stand4hope Posted February 27, 2005 Share Posted February 27, 2005 Hi Betty, I'm so sorry to hear that you are having such a hard time. It breaks my heart when special people like you have to go through something like this. I, too, have heard that Cisplatin can be a very hard chemo to take. I'll pray that you will feel better soon - real soon! Love, Peggy Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted February 27, 2005 Share Posted February 27, 2005 Betty, I have been concerned about you and pray for you daily. Hope the doctors get your pain under control and that upcoming scans are good. Take care. Quote Link to comment Share on other sites More sharing options...
appleton Posted February 27, 2005 Share Posted February 27, 2005 Betty, Thinking of you and wishing that all gets better, ASAP! Karen Quote Link to comment Share on other sites More sharing options...
gail p-m Posted February 27, 2005 Share Posted February 27, 2005 Prayers your chemo is working and sorry you're havind such a rough go of it. Thinking of you -------- Gail P-M Quote Link to comment Share on other sites More sharing options...
finster Posted February 27, 2005 Share Posted February 27, 2005 Thanks for the update. Sending prayers your way... Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted February 27, 2005 Share Posted February 27, 2005 Sorry you are having a hard time Betty, prayers that things will turn around for the better. Rich Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted February 27, 2005 Share Posted February 27, 2005 Betty, sorry your having a rough go of it.Praying this chemo works for you. Quote Link to comment Share on other sites More sharing options...
Ry Posted February 27, 2005 Share Posted February 27, 2005 I hope you are back to feeling better soon...I miss your happy dances! I say as soon as you get good results from those scans on the 10th we have Cindi open the pub for a big bash! Quote Link to comment Share on other sites More sharing options...
Larry Posted February 27, 2005 Share Posted February 27, 2005 Betty so glad your still with us as i've paid close attention to your situation. My wife went through the cis & vp16 for 6 round's and it sound's like your having the same result's from it with the sickness and weight loss ,but it did work untill last scan so now it's brain radiation and possible spine so keep up the good fight and we will soon hear those happy feet.... Quote Link to comment Share on other sites More sharing options...
Andrea Posted February 27, 2005 Share Posted February 27, 2005 Betty I am so sorry about the pain Hopefully you will get good scans and the pain will be a distant memory Quote Link to comment Share on other sites More sharing options...
schmaydee Posted February 28, 2005 Share Posted February 28, 2005 ...i wish i could do something to make you feel better......youre 1/2 way through it though and it'll get better......hang in there betty..... .....s Quote Link to comment Share on other sites More sharing options...
sharyn Posted February 28, 2005 Share Posted February 28, 2005 Betty, I am so sorry you are feeling so lousy... I am thankful that you posted though, as I do think about you often and wonder how you are doing. Please know prayers are with you always. Love, Sharon Quote Link to comment Share on other sites More sharing options...
Summer Posted February 28, 2005 Share Posted February 28, 2005 Betty, I want to add my prayers to the others. My partner lost lots of weight during his first set of chemo, and the day when things started to get better was so special! So I'm sending a little prayer your way for that day to get there soon. Quote Link to comment Share on other sites More sharing options...
Kel M Posted February 28, 2005 Share Posted February 28, 2005 Thinking of you and offering prayers your way! Hang in there. Kel Quote Link to comment Share on other sites More sharing options...
J.C. Posted February 28, 2005 Share Posted February 28, 2005 Betty, Thank you for the update. Sorry for all the pain and hard time you are having, just praying hard that the treatments work. Hugs J.C. Quote Link to comment Share on other sites More sharing options...
Ann Posted February 28, 2005 Share Posted February 28, 2005 Hey Florida neighbor! So very sorry to hear that you are having such a rough time right now. I'm praying for you, my friend. Quote Link to comment Share on other sites More sharing options...
lindseysmom Posted February 28, 2005 Share Posted February 28, 2005 Betty, Hoping this treatment will work and you will start feeling better really soon. Try to keep eating. Try to stay positive and FIGHT, FIGHT,FIGHT. Best Wishes, Dee Quote Link to comment Share on other sites More sharing options...
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