Angie Daughter of Bill Posted March 5, 2005 Share Posted March 5, 2005 We saw Dad's oncologist today. The news is NOT good. The oncologist is about 90% sure that the numbness in Dad's mouth area is due to cancer in the spinal fluid. It is putting pressure on a nerve in the area of the brain stem. Good Lord............I didn't even know that this was possible. Have any of you had experience or heard of cancer in the spinal fluid?? I know that the prognosis for that just can't be good. They did a lumbar puncture today to test the spinal fluid. Of course it's the weekend and we won't know for sure until Tuesday which is when Dad sees the doctor again. We might possibly know Monday afternoon. After the lumbar puncture, Dad got a dose of chemo directly in his spinal fluid. ( I believe it was Depocyte) Also, the scratchy voice is coming from the primary tumor pressing on a nerve and causing vocal cord paralysis. Yet another challenge. Dad's doctor pulled me aside and said that if the spinal fluid was positive for cancer cells it's game over. No more treatment. Given the general shape that Dad is in, he might not get any more treatments even if the fluid is negative. Dad took a fall at our barn yesterday. I couldn't get him up. He couldn't help me. He was like dead weight. I had to run to our neighbor's house, who lucky for us was home, and get him to help me with Dad. Poor Dad, he had to lay on the soggy ground while I ran to the neighbor's house. I have known and seen first hand how quickly it seems my Dad is going downhill, but I'm just not ready to give him up. Not yet. There is so much more that I want us to do. I want him to see my kids graduate from school, graduate from college, see my kids raise a family of their own.............I want so desperately for him to be there to share all of these things with me. I'm sooooooo sorry that every time I on here lately that it seems as if I am having a pity party. That's one reason I'm not here much right now. I just hate to be the "whiner". Plus, if I type out everything that is going on...........well, it seems much more real. I want to just hide out in my shell for a bit longer. I want to deny that this is all happening, but I can't. (Especially when I come here.) I think of you all often. Love to all!! In my thoughts and prayers~~~ Angie P.S. If anyone knows of anything to be done for cancer in the spinal fluid or has any kind of experience with it, please e-mail me at email@example.com I would really appreciate it. I am heading to "Ask the Experts" Quote Link to comment Share on other sites More sharing options...
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