Debaroo Posted July 12, 2003 Share Posted July 12, 2003 Today I went with Dad to the oncologist, we saw Dr. G, who has been the dr. that has worked closest with my dad since his Dx in Jan 2002. (Dr. L was the one in the hospital, and the one that told me on the phone that chemo would depend on Dads quality of life, but we'll see, BLAH!!) Anyway, when we got there Dad got weighed in and he is down to 148lbs, NOT GOOD . Dad and I were talking about his not eating while we waited to see Dr. G, and he said that food tasts bad, and he just has no appetite...he can't force himself, etc.. And he also said that it worries him that he is loosing so much weight. So I told him that he really has to try, and made a mental note to ask the Dr. if they'd tried Megace. So Dr. G comes in, listens to dads breathing and comments that he looks good (he does, its really weird), then asks dad how he feels, and Dad says "Doc, I tell ya, I feel pretty good...I mean, I AM weak, but I'm feeling better since I got the lung drained...my breathing is better, but I just can't eat." he's so sweet, really. My dad is so honest and trusting. He just does not complain, he takes all that he is going through and always figures that it could be worse, he's not in any pain (thank God) and is just tired and weak (FOOD WOULD HELP). I asked the Dr. about the megace, and he said that it was the first med they tried to increase his appetite, and it didn't work. So I brought up the point that dad was so sick from the fluid buildup in the lungs, and he was sleeping all the time, and did he think that, maybe, it would be worth it to give the Megace another shot, seeing as how dad is feeling a bit better and breathing and not sleeping soooo much. The dr. said that I brought up a good point and that he agrees, it would be worth it to give it another try, seeing as it has a good success rate. (I love that he listens to you, and talks to you as if you were a peer-he is truly amazing) Anyway, Dr.G says "well, you look really good. We're going to start you on Navabalene, I really think that you tolerate it well. It has a good track record with the type of cancer that Dad has, very few side effects and is done in a 1/2 hour session, one day every week. Then he asks dad, "You're getting stronger, and I really think you will tolerate it well...plus, a half hour session every week is nothing compared to past treatments you've done..." To which Dad replies "a half hour, Doc, I could do that standing on my head...whatever you think is best, doc. Really, I trust you." Dr. G says "how would you like to start now? I'd really like to send you home for the weekend knowing that you've got something in you to fight the cancer." so, in went Dad...he wasn't even SCHEDULED for chemo, but Dr. G put him right in. When dad got into the treatment room, the nurses were both happy and sad to see him...they laughed and joked with Dad, saying that he was jealous that Mom was getting all of their attention, and Dad really got a kick out of the reception they gave him. And he's always so agreeable and pleasant, genuinly glad to see everyone and really likes them. The Doctor was joining in in all of the good natured ribbing, it was such a pleasant environment. The funny thing is, that my Dad changed...I could visibly see a change in my Dad as soon as Dr. G started talking to him...I really think that Dad thought the Dr. would tell him that there was nothing more they could do. But when the Dr. started talking and was so positive and PRO ACTIVE!!!! Dad was the same as he was when this whole thing started last January, and he hasn't been like that in a while. I caught up with the dr. in the hall as dad got treatment and asked him about the liver mets. He said that they could have something to do with his lack of appetite, too. I asked about radiofrequency ablation, and was shocked that I knew about it (thank you LCSFC message board), and asked if it would benefit dad. Dr. g said that it is usually used for colon cancer, but that it is being used in treatment of other cancers and mets to the liver, he continued to say that it was "good research' on my part, and that he would keep it in mind for dad...but for right now, with all that he's been through, they will moniter him closly and in the future, he would send Dad for it if necessary!!! He has sent other patients for it. Imagine that AN OPEN MINDED DR. THAT ACTUALLY INCLUDES YOUR FEELINGS AND IDEAS IN TREATING HIS PATIENTS!!!! Anyway, during treatment dad said that he was hungry, and I wanted to get him something to eat, but he said he'd wait until he was done. Normally this hunger feeling is fleeting, whether or not he even takes a bite of food. But when we were leaving the office he said, "Deb, I tell ya, I feel like having eggs, and bacon and hash browns." and I said, "so when we get home you and mom should go to the diner" and he said "you know what, I think we will" (he has not wanted to go out to eat in MONTHS!!!!) And do you know what??? They DID go, and dad ate THREE EGGS, some BACON, TOAST AND HASBROWNS!!!!!!! I am ssooooooooooo happy!!! Then for lunch he ate lentil soup and noodles, then he had some devil dogs and after dinner he wanted ICECREAM!!! I really believe that this poor mans nerves were doing such a number on him, and HE didn't even realize it. I mean, he has been getting by on a small bowl of cereal and a bite of toast every day for WEEKS AND WEEKS!!! I am so sorry that this post is so long. After the appt. and after I dropped dad at home and they were leaving for the diner, I went to the gym and was literally walking on air!!! My dad never thought he'd eat again. He'd watch the cooking shows and say "will I ever eat normal again?" he didn't think he would. I just want to thank you all for being here. I don't know what will happen, but the fact that the Doctor is taking action and that Dad is up for the fight and EATING has me sooooo elaited!!! OK, OK, I'm done. Just wanted to update you with more detail than you need , because I know you guys have nothing better to do but sit at your computer and read MY post . So sorry this is so long. I'll stop now. Take care, Deb Quote Link to comment Share on other sites More sharing options...
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