Patkid Posted March 24, 2005 Share Posted March 24, 2005 Well......... It is day 2 of round 2. We leave at 10. Brian had a rough night even with all the meds he has for nausea, heartburn and so on............. Last round he started to perk on the Saturday after the 3 infusions.......about 4 PM. We are hanging on till then. While we were at the Cancer Center yesterday for his 8 hour infusion, I asked for and received copies of his medical record as it pertains to this LC diagnosis. I am not sure that was a good idea, but I feel fully informed. Brian has no desire to analyze things..........he is just committed to doing all he can to help the medicines work to shrink the turmors. I am glad. He just says he trusts his doctors and God. He is just awesome. I have read and read and read till my eyes are falling out. Then, since there was not much sleeping going on last night anyway, I did a lot of research on the internet armed w/ my new vocabulary. I am convinced Bri is getting top notch care. He had the latest fusion type CT/PET Scan, the very last minute types of staining for his biopsy in addition to the microscope work..................................... Oncology and PCP notes repeat over and over that Brian's clinical presentation DOES NOT MATCH HIS DIAGNOSIS. In fact his oncologist states that Brian simply is not sick enough to have this extensive disease. He does have extensive disease. The diagnosis is : Non Small Cell Lung Cancer with nueroendocrine features (that means it is agressive, like small cell lung cancer), adenopathy, (it is in his lymphatic system), and mets to liver. His lung tumor is 5X7 CM and his liver tumor is 5X6 cm. He is not a candidate for surgery or for radiation, due to the metasteses and location of tumors The lung tumor is in his left lung and has grown around a main artery and bronchii...........I don't have the papers here so I am sure I am making a few mistakes in spelling and vocabulary----------------------plus I am brain dead from no sleep. I understand that it is rare that Brian does not have mets to his brain or his bones............ I am grateful, tho, for any and all breaks that he an catch. His next scan is on April 5. We see the oncologist the week after. They will ascertain if we are getting good shrinkage (not in the Seinfeld way) and if so he will continue with the chemo he gets now. If, not they will adjust the poison. Yucky. I do feel that it is appropriate that this is Holy Week. Good Friday is a good day to feel like we do. Brian is awesome. I love him so much and we are getting used to the whole idea. One of our wonderful grandchildren, Gabby, was here last Sunday with her family and she snuggled up to me and said, "I love you and grandpa so much!, I like that you are his nurse." It melted me into my shoes. She is pretty awestruck by Brian's bald look. His hair was so pretty and silvery..............what a shame. A friend said he found a "chemo cap" for Brian - something knitty I guess, I hope Brian will like/try it, cuz I am pretty tired of the ball cap look. He is so funny. He turns it around backward and states: "I AM NOW IN RALLY MODE". .Isn't it odd that we took a perfectly happy, healthy man and turned him into a sickly bald guy just over an x-ray? You guys, we were at the cancer center all day yesterday, headed back there today and then I was up and down with Bri all night. I have not had time to catch up on all the posts...................Please know we are thinking of you and we love you and we need you. Quote Link to comment Share on other sites More sharing options...
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