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Please read new breakthrough- good news


Maryanne

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Guest Mrsmanny

Reading that was like reading something "too good to be true"

Why hasn't this been all over the news?

I don't understand. Considering LC's current stats, you'd think news like this would beat out anythig else currently in the news.

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I have spent the better part of 2 hours researching RFA on the internet.........I can't find a reason to not be optimistic.............

Why was this info in my newpaper before our onc. mentioned it?

What is the downside? Is there one????

Someone know something???????

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I have had RFA twice, first time over 4 yrs ago. ( I was stage iv when diagnosed) It is a wonderful procedure & you come home with a 1" x 3" band-aid. I would be happy to answer any questions about the procedure.

I have found that most Dr.'s are not happy to discuss it, some for lack of knowledge about it & others for whatever reason.

I think it is a shame that people have to find out on the internet, or be lucky enough to find a newspaper article about RFA.

I have only great things to say about RFA & I know that the tumor "cooked" over 4 yrs ago is still dead & has never grown back.

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I heard about RFA from the internet and then later from my doctor. In our experience, RFA wasn't mentioned because it wasn't a common practice for lung tumors and was just starting to be used on liver tumors at the time of my dad's dx.

Our onc. was more than willing to refer us to an expert in the field for more information if it was something my dad was a candidate for.

Unfortunately, I don't think he would have mentioned it then if I had not brought it up- just because he didn't know alot about it and it was so new then.

I've heard much about RFA since then. (2 1/2 yrs.) And it's a good idea, if this is something you're interested in, to get with an expert in that procedure who can personally review your case and let you know if you'd be a good candidate.

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  • 1 month later...

I don't want to put a damper on this, BUT ...

It states it kills the tumor in 93% of cases it does not say anything about long term survival. I think the main thing to get out of this is that it may be just as good as a lobectomy

It is just like surgery, only Stage I-II would be candidates for RFA.

In some cases with an isolated brain met and no

lymph node involvement, surgery can be done.

Probably the biggest problem with RFA is to insure there is a negative margin.

I have read of a few cases of removing lung tumors when the stage is IV and it may help for a while but the general thought is that once the cancer becomes

systemic (spread around the body), a local procedure such as surgery or RFA can not remove all the cancer.

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Thanks, John. You're probably right about the value of this procedure for people like me with mets to bone. I guess I figured if it wasn't an invasive procedure like surgery, you could have it done again and again. Just a time buying measure, I guess.

Thanks for helping me keep it in perspective. Not a damper just a nudge to look at all sides of an issue.

Leslie

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I think it is important to know all sides. My dad's onc. looked at it your way too Leslie.

My dad was org. dx. with sclc with mets to the liver. The option, after I brought it up, was to go forward with RFA if the mets in the liver grew.

They never did, in fact chemo shrank them. It would have been a "buying time" measure as well, but with the new treatments that will become available- I think buying time is a good thing until you receive a remission or a new treatment that works well.

take care.

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I would agree Katie. There was one article I read in a newspaper where a stage IV kept on having surgery and lived much longer than average.

The main thing is that people should not think the 93% means 93% cured. Unfortunately.

I would think RFA would be really useful for people who do not have the lung function to withstand a lobe being removed or even a wedge resection,

but could handle a small piece of lung being "Zapped".

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