melaniem Posted April 18, 2005 Posted April 18, 2005 My cancer has come back. I was having vision problems and turns out I have a 3 1/2 cm.brain met. If not removed ASAP neurosurgeon says I will die within 2 weeks. It is dangerously close to my brain stem. He couldn't believe I was functioning, let alone cutting people's hair. I have permanent loss of my left field of vision because the tumor is on the occipital nerve. I am 37 years old. Today is my daughter's18th birthday. I am so scared. I requested a chest/abdomen CT Friday so I should know the results today. The surgery is scheduled tomorrow, Tuesday. They re-scheduled 12 people and bumped 2 other surgeries because this thing is so aggressive. I had a PET in August and it showed only the 2 original tumors (removed surgically) but I guess their 'state of the art' scans aren't as foolproof as they tout. I am in a fog. My family is a wreck. I'm afraid this is the beginning of the end. Thanks to all who read and post. Melanie Quote
shineladysue Posted April 18, 2005 Posted April 18, 2005 Melanie, This is an area that I have no experience with , but I want you to know that you are in my prayers . God Bless you, Sue Quote
ginnyde Posted April 18, 2005 Posted April 18, 2005 Melanie, I am sure you are petrified but as Becky says, breath, breath, breath. Many here, including my husband, have had successful brain surgery. You many want to PM Karen335 who had very successful surgery and, if I remember correctly, her tumor was also close to her brain stem. I will say a prayer for a successful operation and good results. Quote
karenl Posted April 18, 2005 Posted April 18, 2005 Hi Melanie I am so sorry to hear this news. Brain mets are scary - Mum was diagnosed with several in January. She did not have surgery, so I can't help you with personal experience, but as Ginny said, there are several members who have had their tumours surgically excised. I will be praying for you. Karen Quote
sharyn Posted April 18, 2005 Posted April 18, 2005 I can offer you all of my prayers, and I do.... May your surgery be a success and may God watch over you. Love, Sharon Quote
Ry Posted April 18, 2005 Posted April 18, 2005 Maybe it is the beginning of something other than the end...maybe the reason it was caught was to save your life and give you lots of years with your kids. I know you're scared, I would be petrified, but try to think of it as someone watching out for you... Please have someone post on how you do. Rochelle Quote
stand4hope Posted April 18, 2005 Posted April 18, 2005 Melanie, I ditto Ry's post. Hopefully, this will be the beginning of the beginning. My husband has had a lot of brain mets, but no surgery, so I can't offer any experiences. What I can offer is encouragement, love and prayers. Hang in there, girl. They do WONDERFUL things these days with surgery and treatments. Does the calling circle have your telephone number? If not, send a PM to Ry above and give it to her so she can call and see how you're doing. Ry is head of the calling circle. She can then let us know. OK? Love, Peggy Quote
SBeth Posted April 18, 2005 Posted April 18, 2005 Okay Melanie, maybe for ONCE lately I can be of some help and hope to someone. Bill's (my husband) brain surgery was performed on Memorial Day last year as an emergency surgery due to the location and seriousness of the tumor and the fear that it could have caused a seizure and/or death immediately. He went into surgery for the removal of that tumor before we even knew what his primary was. He was in surgery for 7 hours...the longest 7 hours of my life. Literally...within an hour post-surgery, he was sitting up in his bed (really pissed off about the catheter) and hungry. His recovery was amazing, to us anyway, but the hospital staff seemed to take it in stride. They said he was doing well, but that most people do recover well from this surgery. He was out of ICU and home on Day 5 and has never had any issues with the headaches, vision or balance since the surgery. I hope and pray that you breeze through this surgery as easily and get the great results that we did. I hope this gives you some comfort and hope that it is just one more hurdle to overcome so that you can have a belated birthday celebration for your daughter! Love, Quote
terriep Posted April 18, 2005 Posted April 18, 2005 I agree with everyone - maybe this is a BEGINNING. My husband said those words to me just this weekend about another subject, but I think it's so true. I will add my prayers for your surgery and recovery -God performs miracles every day. I know. Quote
Maryanne Posted April 18, 2005 Posted April 18, 2005 Hi Melanie, I have a strong feeling this is all going to work out to your benefit. Have faith, Sending prayers, Maryanne Quote
berisa Posted April 18, 2005 Posted April 18, 2005 My prayers are with you for the day of surgery, i hope you are all fine and no side effect followed. It must be very hard as my dad had 3 times brain surgery. Keep us posted. Quote
MelanieLR Posted April 18, 2005 Posted April 18, 2005 Dear Melanie (nice name), My prayers are with you. While I have not had brain surgery, I have had Gamma Knife Radiosurgery on 4 brain mets. One of them was encroaching on the brainstem & causing seisures. They told me that without treatment I would have 2 weeks. That was in the beginning of June of 04. I truly believe God has special plans for you. Hugs & prayers, Melanie Quote
Fay A. Posted April 18, 2005 Posted April 18, 2005 Melanie, Just want you to know that I'm thinking of you. I have to believe that you will be okay. I can only imagine how you feel facing this on the day after your daughter's birthday. We just have to have faith that that the surgery will be successful and you will recover well. You have a huge "cheering squad" behind you, Melanie. Quote
Patkid Posted April 18, 2005 Posted April 18, 2005 Prayers being offered. We care and are sending support. Love Pat and Brian Quote
Dazy Posted April 18, 2005 Posted April 18, 2005 Just wanted to send my warmest thoughts, and prayers your way. May God give you, and your family strength, peace, and most importantly...HOPE!!! Hang in there Quote
annjael Posted April 18, 2005 Posted April 18, 2005 ((((Melanie)))) Prayers going out to you. Peace Annjael Quote
cindi o'h Posted April 18, 2005 Posted April 18, 2005 Melaniem. Dear girl. If it were me, I would be as scared as you.. no kidding. I have taken hope from the messages from the above posts. The kind of surgery that you will have is nothing that I know about. But, Think also about this. The surgeon does think that you will be helped WITH the surgery! That in itself is encouraging, don't you think? I will be praying for complete healing for you and for you to be home and well with your family in no time. love and good wishes. Cindi o'h Quote
Justakid Posted April 18, 2005 Posted April 18, 2005 Melanie- I am speechless again! You hang in there, you can do this! We will all be praying and thinging of you! By Wednesday you'll be trying to figure out what to do with your remianing hair! Quote
ellakc2 Posted April 18, 2005 Posted April 18, 2005 Melanie, All the prayers and good wishes and luck to you. Will pray for you and your family. Come back to us and let us know how you are as soon as you are able. Take care! Mare Quote
gail p-m Posted April 18, 2005 Posted April 18, 2005 Melanie-- Anyone in their right mind would be petrified but you have many, many people sending prayers for a successful surgery and speedy recovery. You can do it and I bet you'll have a wonderful team of docs watching over you tomorrow too. I will be thinking of you and looking for an update on your surgery when a family member has time to post. In the meantime, I'm sending all the prayers that can be mustered in your direction. Gail p-m Quote
Wendy Posted April 19, 2005 Posted April 19, 2005 I wish I could wave my magic wand and make everything better. Thank goodness they found it and your surgeon is acting quickly. I have faith that you will pull through this and see your daughter's 48th birthday. Wendy Quote
kimblanchard Posted April 19, 2005 Posted April 19, 2005 Melanie, Know that we are sending thoughts and prayers your way. Good thoughts for a successful surgery! Tammy Quote
Frank Lamb Posted April 19, 2005 Posted April 19, 2005 Melanie, I too am hoping and praying that this surgery will be very sucessful and you will have many,many more good years. Quote
paddy Posted April 19, 2005 Posted April 19, 2005 Hang in there Melanie. I send my love and prayers too. Paddy Quote
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