MichelleZP Posted July 15, 2003 Share Posted July 15, 2003 Hi all, I was just reading through the posts and they sure comfort me. I love the positive attitudes here. Way to go!! My husband was released today. He is now resting comfortably. His oncologist is on vacation this week so another onc. from the cancer center saw my husband. The social worker called to tell me the doctor asked her to accompany him in to see my husband to discuss hospice. Well, my husband was in SHOCK I was told. The social worker called me back and told me my husband just will not accept the doctor's prognosis. (good for my husband for continuing to FIGHT for his life!!!!). So, the social worker said instead of hospice, there is a program called Bridge - it is just like hospice, but not hospice. Has anyone here ever heard of this program? I guess I will have an RN come daily to check on my husband and social workers/counselors are available for my husband and all of us. When the time for hospice comes, the transition is made w/the same people. It is confusing... Well, my husband grabbed me and said he needed to talk to me. He said the oncologist was VERY MEAN to him. He said the onc. said, "Bob, there is nothing more we can do for you. You have to accept this. Why do you keep coming back to the hospital? You need to be in the care of hospice." WHY ON EARTH is that DOCTOR so COLD? I am calling tomorrow and reporting him!!!!!! We will tell his onc. when we see him on Monday what happened as Dr. W would NEVER be that COLD. Oh I am mad!! Now, my husband told me he asked for clinical trials and the doctor said he is too weak and the cancer is too advanced? Is this true? I thought people who were advanced went to clinical trials when chemo stopped working? Am I wrong? The Iressa did not work, but my husband is still on it. I don't know why, but perhaps it will extend his life. My husband's CAT scan showed a spread to the right side. We had a hunch it would. He never did have pneumonia. The MRI showed the brain to be clear! The sunken eye, they concluded, is from radiation therapy damage. My husband lost his voice from radiation therapy, he is on a feeding tube from radiation damage, and now his poor eyeball is sunken in. I was so upset today I could not even drive! My in-laws picked my husband up and brought him home for me. None of us are on the same page. My MIL thinks Bob will beat this and be cured, my FIL is not sure, my SIL sides w/her parents yet pretends to understand. I try to share what the doctor/nurses tell me and I think they think I am lying!! I don't know why they feel as such as I am no liar - never have been, never would be. The social worker wants US ALL to be at the Monday appointment w/my husband's onc. so his parents and his sister can be told straight up what is going on as they don't believe me. I wish this weren't so, but it is. I am praying for time for my husband and for a good quality of life - no suffering. Please keep us all in your prayers - we sure need it! How do I get my husband to accept all of this? He too is on the mindset that he will be cured...and the doctor said there is nothing more they can do and the social worker said he is dying. The social worker said it would benefit my husband to accept this vs. fighting this so he can let go, when the time comes, peacefully. Take care, Quote Link to comment Share on other sites More sharing options...
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