Frank Lamb Posted April 26, 2005 Share Posted April 26, 2005 Thanks again to all of you for your support(it is very much appreciated). As you all know I have been getting beat up pretty good this time around with the chemo & radiation.They have stopped the chemo treatments this time as I have so many problems with so many different unhappy body parts (bowels,bladder,bag,blood,on an on.) They are giving me 3 more radiation treatments and then stopping that as it has destroyed much of the tumor around the windpipe but has not made a dent on the tumor itself (inside). The VA has spent the most of its arsenal.They are sending me to a UPMC Shadyside Hospital near by that has a couple options available that they are not able to perform. One is a cyberknife on the tumor itself but my surgeon doesn't like idea cause he says when they do that on the brain its very sucessful but the head is motionless during treatment,part of the tumor is in airway in remaining lung and it would be moving with breathing. The other is a seed implant directly into tumor using a bronscopopy type procedure.I'm going Thursday after radiation to this hospital for a consultation & all my records & scans to find out if I am even a candidate for this.One procedure costs 40,000 $s.If I am a candidate they will pay the fee. Bottom line I was told they are about out of options although he has a couple last ditch ways to go.I'll let you all know what happens as soon as I find out. Quote Link to comment Share on other sites More sharing options...
Patkid Posted April 26, 2005 Share Posted April 26, 2005 Frank and Connie, Blessings. We care and are praying and sending support and good vibes. Please, Lord, some good news from the new docs. Love, Bri and Pat Quote Link to comment Share on other sites More sharing options...
gail p-m Posted April 26, 2005 Share Posted April 26, 2005 Prayers that one of those options is the one for you. Keep us posted. Gail P-M Quote Link to comment Share on other sites More sharing options...
Maryanne Posted April 26, 2005 Share Posted April 26, 2005 Hi Frank, I love your optimism... actually that is one of the things that radiates from you. That movitational force you have within you. Keep it up!! Thinking about you and praying you get the right treatment that will work for you. Prayers to you as always. Sorry you are going through such a hard time right now. Maryanne Quote Link to comment Share on other sites More sharing options...
shineladysue Posted April 26, 2005 Share Posted April 26, 2005 Frank & Connie, Please know that our prayers are with you. Love, Sue and Mike Quote Link to comment Share on other sites More sharing options...
cathy Posted April 26, 2005 Share Posted April 26, 2005 Frank I have heard of the seed procedure, it sounds promising..I will keep my fingers crossed that you are a candidate for it, and that it gets rid of the tumor for good.. Quote Link to comment Share on other sites More sharing options...
Fay A. Posted April 26, 2005 Share Posted April 26, 2005 Frank, I'm keeping my fingers crossed that the brachytherapy (seeding of tumor with radioactive pellets) is as effective for you as it has been for a friend of mine in my local community. She was in truly terrible shape last summer when I was having radiation treatments. You should see her now! She looks wonderful, and she is out and about and enjoying herself. Hang in there, my friend. Quote Link to comment Share on other sites More sharing options...
Ry Posted April 26, 2005 Share Posted April 26, 2005 I am hoping your doctor has another rabbit up his sleeve. Not sure you were here when Ada was a member but she also had the brachytherapy. I hope all goes well whatever you pick. Thinking of you and wishing you well. Rochelle Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted April 26, 2005 Share Posted April 26, 2005 I hope all the best for you. prayers, too. Joanie Quote Link to comment Share on other sites More sharing options...
Don Wood Posted April 27, 2005 Share Posted April 27, 2005 Hang in there, Frank. Praying for options. Don Quote Link to comment Share on other sites More sharing options...
Lisa O Posted April 27, 2005 Share Posted April 27, 2005 I am saying lots of prayers for you Frank. It sounds like you have some options -- Thanks for keeping us posted. Quote Link to comment Share on other sites More sharing options...
ginnyde Posted April 27, 2005 Share Posted April 27, 2005 Frank, Options, a good word. Don't know anything about what thay are talking about but am sending many prayers and heaps of good wishes for success. Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted April 27, 2005 Share Posted April 27, 2005 Frank, I'm continuing to pray for you and Connie. Sounds like the doctors are trying everything possible. That's encouraging! I will continue to pray for a miracle in the form of a seed or a cyberknife. Take care. Thanks for keeping us posted. Quote Link to comment Share on other sites More sharing options...
Addie Posted April 27, 2005 Share Posted April 27, 2005 Oh, I like what Fay said about her friend...so I'm just gonna hope that if you go with that option, you'll have EQUALLY wonderful results!! Thanks for checking in Frank...and PLEASE feel better soon. It ain't easy keeping all this beer cold! Hugs to you and Connie. Quote Link to comment Share on other sites More sharing options...
elnodel Posted April 27, 2005 Share Posted April 27, 2005 So glad they've got various options for you -- sounds like you're in good hands. Let us know what you (or they) decide! Thinking of you, Ellen Quote Link to comment Share on other sites More sharing options...
Amy P Posted April 27, 2005 Share Posted April 27, 2005 (((((Frank & Connie)))))) I continue to keep you in my prayers and hope that one of these options is the magic bullet! There are still ALOT of Bud Lites and chocolate donuts to be had . Much Love, Amy Quote Link to comment Share on other sites More sharing options...
Haylee_38 Posted April 27, 2005 Share Posted April 27, 2005 Frank, My thoughts and prayers are with you and Connie. Haylee Quote Link to comment Share on other sites More sharing options...
Don M Posted April 27, 2005 Share Posted April 27, 2005 Frank: I am praying for you. I hope you get to try the seed method and unravel that turky form your windpipe. Don M Quote Link to comment Share on other sites More sharing options...
annjael Posted April 27, 2005 Share Posted April 27, 2005 Frank,,,prayers and good thoughts going out to you that you find some answers and feel better. Peace, Annjael Quote Link to comment Share on other sites More sharing options...
Nushka Posted April 27, 2005 Share Posted April 27, 2005 Frank, There is one good thing in your post. They DO want to send you somewhere that has many more options than you have where you are. I pray this will be the fix. Seeds sound good to me and I sure hope that you are a candidate for whichever option you decide upon. There are too many jokes to be told and too much beer at Cindi's bar waiting on you for you to get too far down right now. Thinking of you and wishing you good stuff soon. Nina Quote Link to comment Share on other sites More sharing options...
Connie B Posted April 27, 2005 Share Posted April 27, 2005 Dear Frank, Just wanted to share with you that one of my Support Group members here did that seeding of the tumor as well, and she too is doing well. She had it done about 7 or 9 months ago. But, all is going good for her. Best wishes to you. You and Connie are in my prayers. Hugs, ConnieB Quote Link to comment Share on other sites More sharing options...
Debi Posted April 27, 2005 Share Posted April 27, 2005 Frank, You know how I feel and how I am wishing the best for you and Connie on Thursday.... Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted April 27, 2005 Share Posted April 27, 2005 40,000 dollars for a million dollar guy! Good luck with what you decide, Frank. Cindi o'h Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted April 27, 2005 Share Posted April 27, 2005 Hang in there Frank, prayers for the best. Rich Quote Link to comment Share on other sites More sharing options...
MelanieLR Posted April 27, 2005 Share Posted April 27, 2005 Dear Frank, I'm so sorry to hear you are feeling so poorly. I can understand how the doctors may be concerned about the Cyberknife. Especially since you've already got radiation damage to the previously healthy tissue surrounding the tumor. When they did the Gamma Knife on my brain tumors, I was bolted down like an amusement park ride to make sure that I didn't move. May God guide your doctors in their decision. My prayers are with you & Connie, Melanie Quote Link to comment Share on other sites More sharing options...
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