cindi o'h Posted April 28, 2005 Share Posted April 28, 2005 Yes.. I had that while driving.. it came on suddenly as if my eyes became severely crossed and I could not uncross them. It was like the worst drunk of my twenties only worse..cuz I couldn't recover. Fortunately I was near an off ramp and was able to pull over. It lasted about 5-10 minutes. 'Course right away I started to think brain mets and got really really scared. Then, I thought about my cool and calm grandmother. And what can I do about it now?? Nothing. So. I waited and it passed. I will call the doctor and ask him what is the scoop with this. I just had a clean brain scan in Feb. I don't know what is going on. Anybody have any ideas? Cindi o'h Quote Link to comment Share on other sites More sharing options...
Rachel Posted April 28, 2005 Share Posted April 28, 2005 Cindy, That is to weird. This afternoon the same thing happened to me. Playing fetch with Ole & it felt like my eyes were just rolling around in their sockets.Mine only lasted less than a second (I think) I am also releived that I wasn't driving. I would have been in the ocean! Let me know what you find out. I'll look for web sites. Rachel Quote Link to comment Share on other sites More sharing options...
melaniem Posted April 28, 2005 Share Posted April 28, 2005 Cindi, Mine ya know did turn out to be brain mets but it wasn't particulartly 'double', just kind-of blurry and jumpy. Also, it was only my periphereal which now makes sense according to here it was located. It did come on pretty quick though, almost over-night but it didn't get better in a few minutes like you described. Horrible we have to live with these fears constantly. I'm sure you're fine but call the doc anyway.XOXOX Quote Link to comment Share on other sites More sharing options...
J.C. Posted April 28, 2005 Share Posted April 28, 2005 Cindi, Could be a lot of things, but also too much driving lately, let's hope that is the reason. Keeping my fingers crossed for you. Love J.C. Quote Link to comment Share on other sites More sharing options...
SDianneB Posted April 28, 2005 Share Posted April 28, 2005 Yanno, my vision sucks overall. I'm 52 -- need new glasses! That was on the table when all this cancer stuff started, and the radiation oncologist said I should wait a few months after the PCI to get an eye exam, and now it's time - for sure! After all the crapola I've gone through with the oncologist, I'm not even mentioning this. I'm just going to make an appointment and if the eye doc sees anything wrong, he can tell her. If I tell the oncologist first, she'll want to run me through a gazillion scans and tests before even addressing the initial problem. This is an oncologist who apparently doesn't think a cancer patient can have any other medical problem besides cancer. Nine hours to get a Rx for a bladder infection, a month to get my stopped up bile duct treated. But, I digress. Ha! By all means find out what this is, but try not to talk yourself into the worst case scenario, ok? Leave that to the gloom and doom docs! Di Quote Link to comment Share on other sites More sharing options...
karenl Posted April 28, 2005 Share Posted April 28, 2005 Hi Cindi Scary...always a good idea to get these things checked out. And take heart from the fact that my Mum was found to have several brain mets, and double-vision was NOT one of her symptoms. I bet you have nothing to worry about....but will of course be sending lots of positive energy your way!! Love Karen Quote Link to comment Share on other sites More sharing options...
berisa Posted April 28, 2005 Share Posted April 28, 2005 should consult doctor about this, as you know it would be very dangerous while you're driving. Don't worry and get this check first. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted April 28, 2005 Share Posted April 28, 2005 Becky had this, too. Off and on, and she never had brain mets. For her it was caused by the steroid she was on, prednisone I think. And so they were constantly mucking with the dosage of that, trying to keep it as low as possible while keeping her breathing strong. Good luck. Curtis Quote Link to comment Share on other sites More sharing options...
Fay A. Posted April 28, 2005 Share Posted April 28, 2005 People who have had chemo are susceptible to developing detached retina. Have your eyes checked. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted April 28, 2005 Share Posted April 28, 2005 Cindi, I don't know what it is, but I would most definitely have it checked out. Sounds scary for sure. Sue Quote Link to comment Share on other sites More sharing options...
Patkid Posted April 28, 2005 Share Posted April 28, 2005 Gosh, Cindi, Please check it out. Be careful! We love you. Brat Quote Link to comment Share on other sites More sharing options...
Remembering Dave Posted April 28, 2005 Share Posted April 28, 2005 get your eyes checked, girlfriend! alot of good suggestions above that could be causing it, but whatever it is, gotta deal with it! Karen Quote Link to comment Share on other sites More sharing options...
TAnn Posted April 28, 2005 Share Posted April 28, 2005 Cindi, Since we haven't heard back from you today, I hope you are getting your eyes checked! We all know this isn't "normal", but it could be from any meds you are on. Stay positive! TAnn Quote Link to comment Share on other sites More sharing options...
Addie Posted April 28, 2005 Share Posted April 28, 2005 Another thought: by any chance did you get a headache later that day??? Could it have been an optical migraine? I get those from time to time...not always with a real noticeable headache...but with an aura and visual issues. Can't focus. Not truly double vision...I don't think...but wanted to mention this. Do hope you had an eye doc check you out. I feel like I need new glasses myself....but don't want to invest while still on chemo...as who knows how much THAT affects my vision too?? Report back to us, Cin...when you can. I hear chocolate is good for your eyes. Better than carrots. Quote Link to comment Share on other sites More sharing options...
Debi Posted April 28, 2005 Share Posted April 28, 2005 Cindi, Just another post urging you to get it looked at, but don't panic Batman, it could be something simple! I get the optical migraines like Addie, and every time I get one, it freaks me totally out. They are always different, the latest batch created a sort of double vision, and I could read like every other letter on a billboard for instance. I don't get the headache at all, just the eye stuff, and then dizziness because I'm having a damn anxiety attack by the time my eyesight returns to normal! The optical migraines are caused by stress I am told >! Anyway, good luck, hang in there, and let us know when you get your answer... Quote Link to comment Share on other sites More sharing options...
Don M Posted April 28, 2005 Share Posted April 28, 2005 Cindi: I hope you get some answers soon. Don M Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted April 29, 2005 Share Posted April 29, 2005 Hope they get to the bottom of it quickly Cindi. Rich Quote Link to comment Share on other sites More sharing options...
MelanieLR Posted April 29, 2005 Share Posted April 29, 2005 Dear Cindi, Hi sweetie. You could be a victim of plain old stress. With the sale of the house & all that is connected to that, heaven knows you have plenty of stress on your plate. Years ago I had a strange double vision episode that lasted several days - they admitted me into the hospital, ran every test known to man & sent me home with valium and & dx of stress. Please do have it checked but in the mean time try not to worry. That could make the situation worse. Hugs & prayers, Melanie Quote Link to comment Share on other sites More sharing options...
Justakid Posted April 29, 2005 Share Posted April 29, 2005 Cindi- Changed meds lately or increase/decrease meds lately? That's what caused my double vision! Quote Link to comment Share on other sites More sharing options...
Maryanne Posted April 29, 2005 Share Posted April 29, 2005 Yo Cind, Wow that must have been scary. Thank G-d you were able to pull over. So many different senarios here, You know what you have to do. Before you start driving all over the state to find a place to live, have it checked out. I have a feeling you will not heed this because it is imperative for you to find a place to live. And I know that last thing you want at this time is more tests. If you are thinking you rather wait till you are settled (which I hope you don't) then be extremely careful driving. Is there anybody who can do the driving for you right now? Keep us posted and keep us posted of where you are going since you probably have to be out of your house by today.(I think that is what you said) As you said the end of the month. Keep us posted and be VERY CAREFUL out there. Maryanne Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted April 29, 2005 Author Share Posted April 29, 2005 Thanks for all your help and support. Means alot to know that when I need help, I have a crew behind me. I, too, have occular or visual migraines.. if I were to ever have dropped LSD, I am thinking that those are just like it. Only with the migraines, I don't see dead presidents on the wall like an acqaintance did in the 70's! My steroid dose has changed and I had skipped a couple of days of all meds because I forgot them at home. That could be it. Couldn't be stress.... I am as calm as a cucumber! (HA!) Called the triage nurse and she talked to the doc (never get to really talk to the doc) and the doc told her to tell me to wait and see since we just had a clean MRI in Feb. He wasn't shook up, so I will just wait and see. Should get the eyes checked though. I think that I am due anyway. Thank you all again. Cindi o'h Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted April 29, 2005 Share Posted April 29, 2005 Cindi, I think youy should have them checked. MMMMMM. 2 bud lites. 2 chocolate donuts. not a bad view tho. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted April 29, 2005 Author Share Posted April 29, 2005 two margaritas and two baskets of chips and fresh salsa...MMMMMM>>> I am with ya on this one, Frank.. Let the good times roll. Quote Link to comment Share on other sites More sharing options...
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