nancy c Posted April 29, 2005 Share Posted April 29, 2005 can anyone help me? my husband is getting tarceva 150 mg daily and avastin iv every two weeks; now he has extreme swelling in his ankles and feet--to the point they are taunt and shiny--he has much trouble walking now due to the pain in his feet--has anyone ever heard of this with these drugs? or with nsclc? i called the dr and he will see him monday am? who knows what will happen by monday??? thanks,god bless,nancy c Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted April 30, 2005 Share Posted April 30, 2005 Hi Nancy. I am sorry this is happening. I don't have any answers for you, but I will be thinking about your husband and hoping that someone will be along to help you shortly. How scary for you. Cindi o'h Quote Link to comment Share on other sites More sharing options...
nancy c Posted April 30, 2005 Author Share Posted April 30, 2005 thank you cindi-i appreciate it-it is scary seeing him go down hill. these last two weeks he has been very ill. my son(he's a pilot) came home today from alabama for the weekend and said we have to sit and make some different plans. he sees the quality of my husbands life's is very poor right now. he has been in bed most of the week ill. he is on two different chemo drugs and its zapping him-is it really worth it? i am very confused and my husband states there is something going on "in my body"??? i just wish i could take all the pain and disease away from all these people. it is not fair. god bless,nancy c Quote Link to comment Share on other sites More sharing options...
Patkid Posted April 30, 2005 Share Posted April 30, 2005 Nancy, We care.........we are pretty new at this so have not got much to offer in the way of information....only prayers and support. I vote for the ER if you think Monday AM is too long off for your husband's care. Best! Pat and Brian Quote Link to comment Share on other sites More sharing options...
Ry Posted April 30, 2005 Share Posted April 30, 2005 Nancy~ Welcome to the wives club~ I vote for the ER too. The swelling does not sound good. Take him in and get it checked. Is the Avastin a trial? Please keep us posted on how he does. Rochelle Quote Link to comment Share on other sites More sharing options...
paddy Posted April 30, 2005 Share Posted April 30, 2005 I second Pat and Brian's post. I wouldn't wait until Monday. Paddy Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted April 30, 2005 Share Posted April 30, 2005 Ditto everyone else and I hope you get some answers before Monday. Quote Link to comment Share on other sites More sharing options...
TAnn Posted April 30, 2005 Share Posted April 30, 2005 I have to agree w/everyone else. When I go for my dr visits, he always asks me " have you noticed any swelling in your feet or ankles?" I asked him why he asks me that on every visit and he said that swelling can be a sign of blood clots. (Which is very common in lung cancer) I don't want to scare you, but it is something that should be checked. TAnn Quote Link to comment Share on other sites More sharing options...
Snowflake Posted April 30, 2005 Share Posted April 30, 2005 http://my.webmd.com/hw/health_guide_ato ... ar=aa12924 Nancy, See if you can get any answers from the WebMD URL above. Quote Link to comment Share on other sites More sharing options...
nancy c Posted April 30, 2005 Author Share Posted April 30, 2005 thanks to all of you--you are wonderful; i know-i am considering the ER -he is up about every half hour these last few hours; but has trouble walking; i do also know ankle swelling is a sign of heart failure so i am worried. he said tonite"i think the end is near-no one can feel this bad and something not be going on" i just tried to reassure him i thought it was the chemo. but he said"i'm not joking"; he nows i am on the edge with this ankle swelling and believe me it is extreme. he is somewhat uncooperate about going to the ER or calling the dr again. i will see how he is later tonite. he hasn't eaten at all today--just fluids-so i know he is miserable. god bless,thanks,nancy c Quote Link to comment Share on other sites More sharing options...
Don Wood Posted April 30, 2005 Share Posted April 30, 2005 My wife had swelling in the legs and feet during both chemo treatments. It is something the onc always looks for during treatment. She was given Lasix, a diuretic, which helped. I agree -- get this looked at right away. Don Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted April 30, 2005 Share Posted April 30, 2005 Hi Nancy. Sounds like he is the kind of fellow who likes to be in charge. And, really, who can blame him? I like to be in charge of my life also. When he is ready, he will let you know when it is time to go. But, he might need some help in making up his mind. When I have been on the beam many times of should I stay or should I go, there have been so many times that I wish I would have gone sooner rather than later. Something that might be helpful in persuading him would to be to try to help him to realize that he will not get better or feel better right now without some kind of intervention. If it is an emergent situation like a thrombo or heart failure, then he could code on you. That would not be a very good thing. No. I think the advice above sounds reasonable. He needs to let go right now and trust the professionals at the hospital. They can decide whether there is something that can be done or not to make him feel better. He needs to let go and accept some help. Cindi o'h Quote Link to comment Share on other sites More sharing options...
Ry Posted April 30, 2005 Share Posted April 30, 2005 He has to go. You know him better than we do so however you do it get him in the car and go. You're doctor will tell you to take him in if you call. And really..if you're going to hit an emergency room on a weekend you don't want to be there Saturday night so toss his butt in the car. If he won't get in the car call an ambulance. Good luck! Quote Link to comment Share on other sites More sharing options...
Patkid Posted April 30, 2005 Share Posted April 30, 2005 Just posting to say we hope he is being treated at this moment and things are on their way back to the normal fight. Lots of support. Pat and Brian Quote Link to comment Share on other sites More sharing options...
nancy c Posted April 30, 2005 Author Share Posted April 30, 2005 his ankles are less swollen today--and no he would not go to the ER--i told him if not improvement by tomorrow--i'm taking over. he has been sleeping for over 24 hours now--up and down a few times; ate alittle soup late last nite-but back to bed; he begged me to let him stay in bed and not call the dr. i'll see what today brings. thanks to all of you,nancy c Quote Link to comment Share on other sites More sharing options...
Don M Posted May 1, 2005 Share Posted May 1, 2005 Hi Nancy: I would just like to say I hope your husband is feeling better. Hopefully he will acquiesce and go the the ER if the swelling is not down. I think I know how he feels though. Going to the ER is sort of like letting the disease make another claim on you. Don M Quote Link to comment Share on other sites More sharing options...
nancy c Posted May 1, 2005 Author Share Posted May 1, 2005 Don,thanks for your reply; i am going to the dr tomorrow with him; he is up and about more today although still sore and tired. his feet are still swollen and puffy-hopefully they will go down some. i told him to stay off them as much as possible. he is not as nearly sick as he was these last few days. i hope he is making a turn around. god bless,nancy Quote Link to comment Share on other sites More sharing options...
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