TAnn Posted May 19, 2005 Share Posted May 19, 2005 Yesterday's doctor appointment really surprised me. For the past 3 weeks I've been feeling worse by the day and my pain is increasing daily and getting harder to manage. My chest ct shows no change from prior scan 6 weeks ago and my brain MRI actually looked even better than the previous one. When I asked my doc if there seems to be no progression and my pain is increasing, along with my SOB and fatigue, then what is going on? He said that we usually scan every 3 months and this was only 6 weeks. Apparently IF there is progression it is very, very slow and therefore not showing up the ct scan yet. We have another one scheduled for 6 weeks again. He was surprised that I was having the symptoms based on the ct scan. I'm actually taking Lortab for the pain now, I usually just take Advil, don't like the heavy duty stuff. He said if my symptoms get worse before the 6 weeks we will re-scan sooner. So I guess I should be really happy about the results, which I am, however my body doesn't FEEL like the results indicated!!! Staying on Tarceva until there is absolute evidence of progression. Thanks for all your prayers and well wishes..... TAnn Quote Link to comment Share on other sites More sharing options...
chloesmom Posted May 19, 2005 Share Posted May 19, 2005 I'm glad your results were good, but I wish you didn't have that pain. Here's hoping it gets under control soon. Cindy Quote Link to comment Share on other sites More sharing options...
Maryanne Posted May 19, 2005 Share Posted May 19, 2005 Hi Tann, I am so glad the results are good. I pray for for you pain to subside and your next 6 week test will have good results. Please take care, this just might be a fluky things that will pass. So many crazy things come and go with this desease. Things will turn out alright. Maryanne Quote Link to comment Share on other sites More sharing options...
Connie B Posted May 19, 2005 Share Posted May 19, 2005 Dear Tann, hummmmmmmmm to the Pain issue????? BUMMER! Sure hope this pain your dealing with does a turn about and goes away for you. The other news is pretty darn good though!! I know it's hard to be happy when your dealing with SOB and pain!! I also know it's frustrating NOT knowing what is causing this stuff. But, for a day or so, I hope you'll take your good news and enjoy. Maybe happy thoughts will help to kill that pain. Best to you. Quote Link to comment Share on other sites More sharing options...
CharlieD Posted May 19, 2005 Share Posted May 19, 2005 TAnn, That is great news. No progression has got to give you a lift. Pain could be shrinking pains too, looking at the bright side. I'm happy for you. Hang in there. The next scan in 6 weeks will just confirm the best. God Bless and take care. Chin up!! CharlieD Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted May 19, 2005 Share Posted May 19, 2005 TAnn,glad to hear the scans say your doing well.Hoping you get feeling better soon and are able to rid the pain.(pain sucks). As far as the SOB goes there are many,many things that cause that.It's a hard one to figure. Quote Link to comment Share on other sites More sharing options...
Addie Posted May 19, 2005 Share Posted May 19, 2005 TAnn....the residual effects of tx might be accounting for how you feel too! You know that chemo AND radiation both keep working for a while even after tx. I'm glad you and your doc are on top of this...and that he'll scan you earlier IF your symptoms increase....but don't lose hope that this might just be a reaction to the residual (and ongoing, since you're still getting the Tarceva) effects of your tx. It seems like very good news that the scan is not supporting how you are feeling....eh? Lock on that...mentally. This will pass...and you'll be feeling better soon. About the SOB and fatigue...how are your blood counts? Did he check those? Might be the culprit for some of your symptoms, if your counts are low....especially HGB, HCT and platelets! Check that out. And know I'm thinking of you, sending ALL positive thoughts and wishes..... Quote Link to comment Share on other sites More sharing options...
stand4hope Posted May 19, 2005 Share Posted May 19, 2005 Dear TAnn, It's hard to be happy when you feel so crappy (ooh that rhymes - not intended ) Even though the scans seem to be ok, it just doesn't matter when you feel bad, does it? It's almost like it would be better if it did show something because then they would know what to treat. Am I getting close here? Hang in there, hon. I pray for you every day. All my love, Peggy Quote Link to comment Share on other sites More sharing options...
ginnyde Posted May 19, 2005 Share Posted May 19, 2005 Tann, Just keep reading Peggy's "It's hard to be happy when you feel so crappy" song lyrics - this should keep a smile on your face. It must be hard to concentrate on the doctors words based on the scans when your body is trying to tell something different, but keep trying. Quote Link to comment Share on other sites More sharing options...
Patkid Posted May 19, 2005 Share Posted May 19, 2005 TAnn, We are going to revel in the good news and pray that you feel better each day. Lots of love Pat and Brian Quote Link to comment Share on other sites More sharing options...
shineladysue Posted May 19, 2005 Share Posted May 19, 2005 TAnn, I'm so glad to see you have good news. On the other hand, I am so sorry to know that you are feeling bad. Maybe just knowing that things look good will relieve some anxiety and you will feel better too. I hope so. On the other hand, if you have persistent pain, I would push to have it further investigated. You are in my prayers , as always. (((Hugs))), Sue Quote Link to comment Share on other sites More sharing options...
SBeth Posted May 19, 2005 Share Posted May 19, 2005 TAnn, I was glad to read your news of no progression; but sorry also that you are having issues with pain. I hope you are able to celebrate your good news and eventually get some answers about the pain and ultimately...some relief from the pain. My prayers will be with you TAnn. Love, Quote Link to comment Share on other sites More sharing options...
Haylee_38 Posted May 19, 2005 Share Posted May 19, 2005 Happy to read of the no progression. Hope you can get the pain under control. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted May 19, 2005 Share Posted May 19, 2005 Sounds good to me, TAnn. Very good. Don Quote Link to comment Share on other sites More sharing options...
gail p-m Posted May 19, 2005 Share Posted May 19, 2005 Glad for your good scan results but wish you didn't have to deal with the pain. Hopefully, the pain issue will be resolved soon and the scans will stay clean. Gail p-m Quote Link to comment Share on other sites More sharing options...
kickincancer Posted May 19, 2005 Share Posted May 19, 2005 I am glad to see your post I have checked several times each day for an update. I'm glad you got some good news. God Bless and I hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
kickincancer Posted May 19, 2005 Share Posted May 19, 2005 I am glad to see your post I have checked several times each day for an update. I'm glad you got some good news. God Bless and I hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
karenl Posted May 20, 2005 Share Posted May 20, 2005 Happy to hear the good news about the results, but wish that you weren't being bothered by those symptoms...hope you get some answers soon, and that they are all benign!!! Karen Quote Link to comment Share on other sites More sharing options...
J.C. Posted May 22, 2005 Share Posted May 22, 2005 Happy for the good news, but sorry about the pain and SOB, prayers still going your way. I am always wondering if SOB could be more the result of the changes in weather than from the sickness itself. J.C. Quote Link to comment Share on other sites More sharing options...
lindseysmom Posted May 24, 2005 Share Posted May 24, 2005 TAnn, I am late reading this post. Glad to see the scans are doing ok. Sorry that you are not feeling well. I certainly hope that you will feel better soon. Best Wishes, Dee Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted May 24, 2005 Share Posted May 24, 2005 So glad for you for the good news but sorry you are not feeling well. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted May 24, 2005 Share Posted May 24, 2005 boy T, Glad I got to see this post. What a quandry... wish the scan met your symptoms? NO! I like CharlieD's explanation...shrinking pains. Like you, I have been feeling like dog puckie too. And there may be an explanation. And then there might not be. You have had so much going on and so much assault for so long....it may be just that? I am with you T, not a fun trip sometimes. Just wish you weren't in pain and then that the meds were taking care of you. Back to the drawing board on that? Do you have a pulm. to help figure out the SOB? I just qualified for oxygen. I get short of breath sometimes just rolling over in bed!! Good Lord! I am hoping that the oxygen will help me. Always, you are in my prayers T. No advice, just rambling and thinking only good thoughts for you, dear one. love, cindi o'h Quote Link to comment Share on other sites More sharing options...
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