jcawork Posted May 24, 2005 Posted May 24, 2005 Please let me know your experience w/ Topotecan including pre-meds, allergic issues, side effects and results. Thanks, Jen Quote
Addie Posted May 24, 2005 Posted May 24, 2005 Jen....to borrow Don Woods' wisdom.....DON'T BORROW TROUBLE!! Quit looking for things to worry about, honey! You know my experience with Topo has been good. It works and it has caused me only a bit of fatigue and dropping bloodcounts, which need monitoring. Otherwise...even some of the hair on my head is hanging on...altho my wee tufts of eyebrows have just about fallen out totally. Believe the Topo will work for you....as it's worked for me. It IS an effective drug....and believing in its effectiveness (even before you take it) can't hurt and MIGHT help! Bottom line? You have recurrent cancer and are taking steps to deal with it. You should feel better once you have some Topo in your system...so please, honey....don't go looking for more things to worry about. Take a deep breath, relax a little and as you put it...try to live inside MY head for awhile...ok? Love you...... Quote
jcawork Posted May 24, 2005 Author Posted May 24, 2005 Hey Addie, Not looking for trouble. You are my only Topo info. Looking to see who else took it and how it was for them. Jen Quote
Addie Posted May 24, 2005 Posted May 24, 2005 Okay, sweetie....I just don't want you dreaming up any more stuff to worry about. I want you SMILING with positive conviction that tx is gonna work and make you feel better! I know David C was on Topo...and his experience wasn't as positive as mine. But for David too, much of his reaction was probably due to the steroids, which he's never tolerated very well. I think he and Karen are sort of on a hall pass right now, with their plates full (trying to move, Karen's mother's health, etc.) I wonder if you did a search for Topo here...what you might find. But I believe what my onc told me...."TOPOTECAN WORKS!!" So far....it has. Three cycles and I was about 50% reduced in the amount of cancer visible. Believe in it, Jen! It's gonna work for you too. Quote
Patkid Posted May 24, 2005 Posted May 24, 2005 Adding our trust to yours in your docs and in the drug and in your strong will. Blessings and love, Jen Brat Quote
daggiesmom Posted May 24, 2005 Posted May 24, 2005 Glad to see you posting. I wish you happiness today, Jen. Do something you like to do to lift your spirits. I have read that Topoptecan is a very promising drug. It's gonna work for you, kiddo. ((())) Joanie Quote
daggiesmom Posted May 24, 2005 Posted May 24, 2005 Jen, you might want to use the Ask the Experts forum for you Topotecan (there, I spelled it right this time!) question. Joanie Quote
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