cindi o'h Posted June 28, 2005 Share Posted June 28, 2005 Tina, Hope that you and Charlie are able to find something that will work in his favor. love, Cindi o'h Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted June 28, 2005 Share Posted June 28, 2005 Tina, sorry to hear of the progression.I too hope something can be found that will turn things around for both of you. Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted June 28, 2005 Author Share Posted June 28, 2005 Thanks for all the replies. We are looking for the magic bullet that Jimben found. If he can do it, we can do it! Take care. Praying for all. Quote Link to comment Share on other sites More sharing options...
Elaine Posted June 28, 2005 Share Posted June 28, 2005 Tina I somehow missed this. I am so sorry about the progression. Are you having trouble getting altima (sp)? I hope not, but if you are, pls don't forget that patient advocate site. They have people there everyday and they are very helpful. Call them and they will help you deal with your insurance company. Someone just re-posted a link to it the other day. Her avatar is a white cat, but I can't remember her name right now. love and fortitude elaine Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted June 28, 2005 Author Share Posted June 28, 2005 Elaine, Thanks. Charlie has already tried Alimta. We are now trying to get him Avastin. It has not been approved by the FDA for NSCLC--only for colon cancer. I am amazed that Beth was able to get it. Her doctors must be giving it to her off-label or she is getting it through a clinical trial or something. I have a call into the doctor at Vanderbilt about it. Avastin is his baby. He presented the NSCLC clinical trial results at the oncology meeting a few weeks ago. If anybody can get it, he should be able to. Take care. Thanks again. Praying for all. Quote Link to comment Share on other sites More sharing options...
Andrea Posted June 28, 2005 Share Posted June 28, 2005 Tina--sending lots and lots of love your way. Keep that fighting spirit. Let us know if you get the meds. Quote Link to comment Share on other sites More sharing options...
TAnn Posted June 28, 2005 Share Posted June 28, 2005 Tina, My doctor also mentioned to me about Avastin in combination with something else.? Can't remember what, but I go see him tomorrow and will ask. Stay strong Charlie, I'm praying for you. TAnn Quote Link to comment Share on other sites More sharing options...
Elaine Posted June 29, 2005 Share Posted June 29, 2005 Sorry, I did mean Avastin. Why they mix us all up with these names of drugs. Why can't they call them something normal??? Instead of making up words, lol. I know you won't take "no" for an answer. Thinking of you all. elaine Quote Link to comment Share on other sites More sharing options...
karenl Posted June 29, 2005 Share Posted June 29, 2005 Tina Lots of positive thoughts coming to you and Charlie... Karen Quote Link to comment Share on other sites More sharing options...
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