stand4hope Posted June 21, 2005 Share Posted June 21, 2005 Well, it looks like more SRS (stereotactic radiosurgery). It's one of those damned if you do and damned if you don't. The onc said since they will be treating the same 4 mets that have already been treated with WBR and SRS, that his chances of necrosis to good tissue goes up 20%. That's comforting, huh? He also has to have a stereotactic MRI (thinner slices) and told him more mets may show up. On the other side, he said if he doesn't have the SRS, the tumors will just continue to grow and damage tissue anyway. Don said "Burn'em". It's temporarily scheduled for July 11, and he gets to take wonderful Decadron in the meantime so he can stay awake all night. Sorry for the sarcasm. I guess I would have been just as upset if they had said "no treatment possible." Go figure. I guess I'm just one of those flakey girls, huh? And, no, I'm not a blonde. Love to all, Peggy Quote Link to comment Share on other sites More sharing options...
karen335 Posted June 21, 2005 Share Posted June 21, 2005 Hi Peggy, At least you have doctors that give you a lot of information. Do you ask the questions or do they share info automatically. Seems I don't get much info out of my docs., only what I learn here. You are a wealth of information. Please keep sharing. It is very helpful and appreciated by all of us. Don and all of you are always in my prayers. Please keep us posted... Thanks, God Bless and gentle hugs, Karen Quote Link to comment Share on other sites More sharing options...
stand4hope Posted June 21, 2005 Author Share Posted June 21, 2005 Karen, We have to pry information out of his primary onc (I think the official term is the "medical onc" - he gives the chemo and oversees everything). Not only that, he mumbles, so 80% of the time Don has to ask me later what he said. LOL! He's a very qualified physican, though, just closed mouthed. Not with me - I make him tell me whatever I want to know, and I get copies of all the reports. The radiation onc and Novalis (SRS) onc are wonderful to voluntarily give lots of information and answer every question. Thank you so much for the prayers. Love, Peggy Quote Link to comment Share on other sites More sharing options...
karenl Posted June 21, 2005 Share Posted June 21, 2005 Peggy Thanks for answering my post in the NSCLC section....just something Mum is considering. I am glad to hear that Don is feeling up to more treatment - I hope it yields wonderful results, and buys you a whole bunch more quality time together. Love Karen Quote Link to comment Share on other sites More sharing options...
Jana_W Posted June 21, 2005 Share Posted June 21, 2005 Hi Peggy I think it is good that the doctors feel Don is up for more treatment. Although I do realise it is one of those situations where either option doesn't seem particularly appealing. I'll be keeping all my fingers and toes crossed for successful, fabulous treatment and burning of those pesky stupid cancer cells. Jana xx Quote Link to comment Share on other sites More sharing options...
gail p-m Posted June 21, 2005 Share Posted June 21, 2005 I'm also glad that the doctors want Don to have more treatment. That's a good sign in itself. However, I can certainly understand your lack of enthusiasm for it. I believe you said it before, "Damned if you do, damned if you don't" I will continue to have Don in my daily prayers. gail p-m Quote Link to comment Share on other sites More sharing options...
Patkid Posted June 21, 2005 Share Posted June 21, 2005 Peggy, Glad to read of a plan in place. That is reassuring, in and of itself. We are right with you and pray w/ you daily. Love Pat and Brian Quote Link to comment Share on other sites More sharing options...
Addie Posted June 21, 2005 Share Posted June 21, 2005 Pegala... Hoping this works and works well for Don. And like others have said, thanks for sharing so much info about procedures, etc. It's really helpful to so many, I think. Tell your brave hubby that I smiled thinking of him saying, "Burn 'em". Sounds like a line out of Hawaii Five-O....."Burn 'em, Danno!" (Oh lordy...please tell me his rad onc's name isn't Dan! ) All good thoughts coming your way....... Quote Link to comment Share on other sites More sharing options...
Ry Posted June 21, 2005 Share Posted June 21, 2005 I am glad the SRS is a go. Hang in there. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted June 21, 2005 Share Posted June 21, 2005 Peggy, Know that when Don goes in for treatment there are lots of prayers going with him. Love and Prayers, Sue Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted June 21, 2005 Share Posted June 21, 2005 Peggy, Praying for you guys! Burn 'em!!! Take care. Quote Link to comment Share on other sites More sharing options...
Treebywater Posted June 21, 2005 Share Posted June 21, 2005 (((((Many, many hugs))))) Quote Link to comment Share on other sites More sharing options...
Nushka Posted June 21, 2005 Share Posted June 21, 2005 Peggy, Lots of prayers coming your way from this household as well. At least Don made up his mind about all of this in a hurry. If he says "burn them" then I am all for it. Hoping it helps and doesn't hurt. That's about all we can ask of a treatment. Nina Quote Link to comment Share on other sites More sharing options...
Maryanne Posted June 21, 2005 Share Posted June 21, 2005 Hi Peggy, Praying for a breakthrough for your Don!!! Maryanne Quote Link to comment Share on other sites More sharing options...
Fall54 Posted June 21, 2005 Share Posted June 21, 2005 Dear Peggy, I am also glad there is a plan in place and that Don wants to go the course. I think it is when you give up all treatment you have surrended as my Brother did in the end. Dont get me wrong either as I think there would come a time when I had just plain had enough... Glad Don isent there. You know you and you're dear family are on top of the list of prayers said. God Bless you all and keep you in his care, Jane Quote Link to comment Share on other sites More sharing options...
missyk Posted June 21, 2005 Share Posted June 21, 2005 Peggy... Gotta just love the decadron...not only the up all night, but the pink cheeks mom gets are just so darn cute!!! LOL I completely understand the scarcasm...sometimes it's the only way we can deal with all this! Mom and i scare the staff at the hospitals and clinics we go to, laughing all the time. Oh, and btw, we "nuke'um" or "zap'um"...will have to tell Mom about "burn'um"! I liked that! Prayers for a great outcome on another round of zapping...i'll keep an eye out for "the green glow"! Quote Link to comment Share on other sites More sharing options...
Kel M Posted June 21, 2005 Share Posted June 21, 2005 Hi Peggy, Glad to hear that treatment is possible. I'm also hoping for more limited side effects from the decadron. Sending good wishes your way. Kel Quote Link to comment Share on other sites More sharing options...
KarHart Posted June 21, 2005 Share Posted June 21, 2005 Peggy I am really glad Don is still able to fight. Hoping all the prayers and good thoughts will boost the "burning" and get rid of them completely! Will be praying. July 11, my husband is going for a follow up with the onc. so that is an important date for both of us. Karen H Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted June 21, 2005 Share Posted June 21, 2005 Peggy,I know it's hard to be facing more treatments. I hope they help buy you and Don much,much more quality time. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted June 21, 2005 Share Posted June 21, 2005 Peggy, Glad that Don is up for treatment. He has been a tower of strength this whole time; he may just have the constitution of coming out of this as the Incredible Hulk. Bigger and better...just not as pretty. love, Cindi o'h Quote Link to comment Share on other sites More sharing options...
TAnn Posted June 21, 2005 Share Posted June 21, 2005 Peggy, I'm glad the doctors have agreed to try the Novalis treatment again. This has been such a hard road and you and your husband are so strong. I hope that this will not be too hard and it brings some improvement. TAnn Quote Link to comment Share on other sites More sharing options...
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