pamlee1 Posted June 28, 2005 Share Posted June 28, 2005 I've posted a few times before and constantly read the many posts looking for encouragement, grieving with the many loses and just wishing I never had to be here and never dreaming I would. My Sister needs your prayers as she's going thru some rough times right now. She's been unable to start chemo again since March because of surgery to leg to insert pin&remove bone met; was in severe pain before but pain in leg reduced with surgery but by then her body was weakened by chemo/radia so rehab has been hard. We had so hoped she would get the surgery out of the way and be able to resume chemo as obviously the cancer was spreading. She had/has a met to spine with a collapsed vertabrae which at this point only has had radiation. About a month ago at my insistence I asked her onc. to order a brain scan because of headaches. Not much of a surprise but she also has a single met to brain. So began another journey with dr's/appts/deciding on WBR in conjunction with CyberKnife or just Cyberknife. Everything takes time and one thing cancer patients don't have is a lot of time. It's so frustrating. About 3 weeks ago she starting with severe SOB, couldn't walk from room to room without breathlessness. It's been hard for her to be up and active getting her lungs moving so I believe a lot of this is because of being in bed a lot and not active. A three day stay in hospital showed nothing with lungs, heart, blood and dr's just said it's her COPD acting up (funny it never acted up before); A week ago today I insisted she go back to hospital, get admitted and get some help for these issues as she was just getting weaker and weaker. The last 2 visits to emerg.room they did Chest CT's so two very recent ones were available. I was speaking to her onc. outside her room and he proceeded to tell me that he had reviewed the 2 CT's and it was showing a small spot on liver. I was so upset for her I asked him not to mention that to her right now because I just didn't think she could "mentally" deal with this on top of what's she's going thru now. He then proceeds to say, oh, by the way, when she had her leg surgery in March, the blood used for transfusion -- he received a notice from the Red Cross that the person giving blood to her had subsequently come down with Maleria. As her primary advocate/sister&caretaker I don't know how much more of this we can deal with. He assured me that shouldn't be a problem because it was sufficiently after the blood was donated. So I have a sister who's whole imune system is compromised and now this. I could have strangeled him but know it wasn't his fault. So, she's still in the hospital and they are treating her for pneumonia they can't see on x-rays and copd for breathing -- 15mg decadron ev 6 hours and so much other meds. She's also undergoing WBR and will get cyberknife upon completion of that. When cancer hits a member of your family your life drastically changes. I ache for her every minute of every day; I see the fear in her eyes as well as the pain and suffering. Initially I was all about trying to get her to a point where the cancer wasn't growing and now all I can think about is quality of life. How much can a person endure on this journey without losing themselves along the way? Sorry for rambling on but I needed to get this off my chest. Not many people would understand. Thanks for listening and prayers to you all. Pam Quote Link to comment Share on other sites More sharing options...
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