MelanieLR Posted June 28, 2005 Share Posted June 28, 2005 Hi all, I know, I'm so bad for not posting for so long. Quite frankly, I'm rather surprised to still be here. I stopped all treatment & went on hospice some time ago now (when I last posted). I have some good days & some bad. It's really a strange feeling though when you have a new or more intense pain & wonder if this is the one that will do you in. I want you all to know that I still do my daily 5's. Pretty cool that even at this point, I can still find 5 new things every day that I'm thankful for. I wanted you all to know that during my "good" times, I've been rather busy. I'm setting up a foundation to help educate people on the dangers of this sneaky disease. How it hides from the tests & imitates other things (especially for women who may be nearing menopause). The foundation will also ultimately (hopefully) be able to help people in my position. I recently found out that I'm hanging on too long for my own good. On October 6th. I'm going to be fired from my job because the time I've been on disability will be longer than the length of service. At that point, I will lose all of my benefits & most of my income (as well as my life insurance - gee, you think anyone else will insure me now?). I am teaching my husband how to set up fund raisers & benefit events. I did many of these in my healthy days. He is finding it a great comfort knowing that he will carry on the foundation for me when I pass. My sister & several other relatives & friends have already jumped on the bandwagon. The main hurdle at this point is to get the fund raisers rolling & donations rolling in so that the public education can begin. (If anyone out there is looking for a tax write-off, please let me know!) Anyway, I just wanted to let you all know that I'm hanging in there & what I've been up to. I think the strangest part of all of this is that even in death, I am still educating & working my tail off all the while wondering if this is my last day. I want you all to know that you are all in my daily prayers & that I miss you. Hugs & prayers, Melanie The Melanie Russ Lung Cancer Foundation Quote Link to comment Share on other sites More sharing options...
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