Carol Lee S Posted July 21, 2003 Share Posted July 21, 2003 I desperately need your prayers and support. Gene is failing fast. Before the hospital last week we thought things were going along pretty well, however, at this time he is on O2 and last night we started liquid morphine. It got so bad at one point he was on a non rebreather for over 30 minutes. Doc wasn't available yesterday so a covering called back and irderd the morphine. None was available so she told me they would try again on Monday. I called every pharmacy in the county and found some, called her back, had the kids go get it and it gave him some relief. He is on flagyl for the infection he got lastweek and the pill was to big so he would swallow it, and then vomit it back up. Doc said put it in applesauce. He can't even swallow water. I asked for a new script for two 250mg instead of the large 500mg, she said no just cut it in half. The pill isn't scored therefore when you do that the taste lingers and makes you vomit. Finall found a Doc that would change the script. He has tolorated the small pills well. Another hurdle we got over. Now to get him on Iressa, that is my goal today. Not sure how I am going to do that but I am sitting here thinking of ways. He is so weak now he can't even get out of bed. He hasn't eaten in two days and the only fluid that he gets is what we pour down him and we literally do that. Hospice comes in today, not sure if they will allow Iressa, if they don't allow it and I can get it for him, they will have to leave for the time being. Thank you Deb for giving me the strength and conviction to carry on this fight. PS as I am writing theis the Doc called and so no Iressa it would not work and would make matter worse. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted July 21, 2003 Share Posted July 21, 2003 Carol, so sorry things hve gotten so worse. My prayers are with you and Gene. Don Quote Link to comment Share on other sites More sharing options...
Fay A. Posted July 21, 2003 Share Posted July 21, 2003 Carol, And sorry to hear this. You and Gene do have my prayers. Fay A. Quote Link to comment Share on other sites More sharing options...
teetlee Posted July 21, 2003 Share Posted July 21, 2003 Carol, My prayers and thoughts are with you and Gene. Sorry to hear of this downward turn. Teet Quote Link to comment Share on other sites More sharing options...
gail Posted July 21, 2003 Share Posted July 21, 2003 Sending you my prayers. May you find some comfort and strength. gail Quote Link to comment Share on other sites More sharing options...
ginnyd Posted July 21, 2003 Share Posted July 21, 2003 Dear Carol, Please know that I am thinking of you and Gene today. Has the dr. just delayed the Iressa until Gene is stronger? I hope so. Quote Link to comment Share on other sites More sharing options...
LindaMRG Posted July 21, 2003 Share Posted July 21, 2003 Prayers and hugs. Quote Link to comment Share on other sites More sharing options...
Candy Posted July 21, 2003 Share Posted July 21, 2003 Prayers and postive thoughts - hope things are better tomorrow! Quote Link to comment Share on other sites More sharing options...
gail p-m Posted July 21, 2003 Share Posted July 21, 2003 Carol-- You know my prayers and thoughts are with you and Gene. So wish I could do more for the both of you! Gail Quote Link to comment Share on other sites More sharing options...
t_beanes Posted July 21, 2003 Share Posted July 21, 2003 Adding my very best wishes that all turns out well....please Sending you and him strength in my thoughts. Bettina Quote Link to comment Share on other sites More sharing options...
Tiny Posted July 21, 2003 Share Posted July 21, 2003 Praying that God's grace and strength be with you and Gene to lift up your hearts and ease your burdens. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted July 22, 2003 Share Posted July 22, 2003 Sorry to hear about Gene, will be offering up extra prayers for him Bess B Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted July 22, 2003 Share Posted July 22, 2003 Dear Carol, Praying for you and Gene. Joanie Quote Link to comment Share on other sites More sharing options...
norme Posted July 22, 2003 Share Posted July 22, 2003 DEAR CAROL, I SO HOPE THAT THIS TO WILL PASS AND GENE WILL START FEEL BETTER. YOU BOTH WILL BE IN MY PRAYERS TONIGHT. GOD BLESS. Quote Link to comment Share on other sites More sharing options...
Carolsdaughter Posted July 22, 2003 Share Posted July 22, 2003 Carol, I am sorry to hear that Gene's health is failing. I pray that the two of you might find peace as you continue in this journey. The people of hospice are wonderful. Ask any question you need from them and they will teach you. Hugs, Shelly Quote Link to comment Share on other sites More sharing options...
Carol Lee S Posted July 22, 2003 Author Share Posted July 22, 2003 Thank you all for your prayers I know they work. Hospisce will not take Gene as he is on over 5 liters of O2, he must go in the hospital according to there protocol when you get that high and he really doesn't want too. The Doctor refuses Iressa and wants him in Hospice. Catch twenty two I guess. He needs the extra O2 flow for when he has the coughing spasms that last for about 10 minutes then he goes back on the 4 liters again. No good for hospice and so now I found another Doctor to look at him tomorrow (Thank you DEB) if he can start him on Iressa that would be wonderful. We will take care of Gene at home between my daughter (RN) my son in law (paramedic) myself and some friends will donate there time and we will keep him on the O2 and hopefully the Iressa as well. I know I am bucking all odds but you never know until you try. Just need for him to be able to make the 20 mile trip tomorrow he is so weak he hasn't even gotten out of bed for two days, Boost and gatorade have kept him alive. He will be going by ambulance. We are just not ready to give up yet even if the Doc has. The Hospice nurse that came today really encouraged us to give it a try even as weak as he is. Thanks again for your support, and again a request for prayers for a good trip and good results for tomorrow. Hugs, Carol Quote Link to comment Share on other sites More sharing options...
rayroy Posted July 22, 2003 Share Posted July 22, 2003 Never give up I say. Things may look bad but you have to fight on! Things can be turned around. 3 times my dad seems like a goner, but he comes back and gets better if even for a short time. I wish you the best of luck. Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted July 22, 2003 Share Posted July 22, 2003 Praying for the very best for your dear husband. Blessings to you, Peg Quote Link to comment Share on other sites More sharing options...
Karma1976 Posted July 22, 2003 Share Posted July 22, 2003 Add me to the bunch!!!! this is me concentrating REALLY hard on thoughts for you and Gene Quote Link to comment Share on other sites More sharing options...
Debaroo Posted July 22, 2003 Share Posted July 22, 2003 Carol, I've been praying and praying. Good luck with Dr. G today. You and your family are such an inspiration. I keep thinking of that Frank Sinatra song "high hopes", a person can do wonders and make wonderous things happen when they have them. If you don't try, you would never know what could have been...Keep us posted!!! Love, Deb Quote Link to comment Share on other sites More sharing options...
Fresca Posted July 22, 2003 Share Posted July 22, 2003 Praying hard for you right now. Hang in there my friend. Rana Quote Link to comment Share on other sites More sharing options...
sophia88 Posted July 22, 2003 Share Posted July 22, 2003 Praying for you Gene..stay tough..you can handle this. Quote Link to comment Share on other sites More sharing options...
gail p-m Posted July 23, 2003 Share Posted July 23, 2003 Hi Carol Haven't seen a post on the message board for the last couple of days. I realize that you're probably very busy right now but I'm wondering how Gene ---- and you are doing. If you have time, please let me know. In my thoughts and prayers Gail Quote Link to comment Share on other sites More sharing options...
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