Shar Posted July 7, 2005 Posted July 7, 2005 Well what a wonderful site this is. I was diagnosed with nsclc in august of 2004. Being only 39 yrs old i never thought it was going to happen, but now i have to fight with all that i have. I wasnt able to have any surgery or radiotherapy and instead had a round of chemo which kept it stable. 3 months later things had progressed so i started taking Tarceva in April of this year. It really has made a significant improvement and i find i am breathing better and feeling a lot better. The rash can be slightly annoying, but that's it. I have had a few stares from strangers while i am out, but i just look the other way. I live in Australia and i have found there is not a lot of support for me here. I have been told that because of my age and condition there arent any support groups i can attend unless i want to join a breast cancer group!! So this site is just what i've been looking for. I would be interested to hear from people who are on Tarceva and how it has worked for them. Thanks for listening Quote
Don Wood Posted July 7, 2005 Posted July 7, 2005 Welcome, Shar! My wife and I visited Australia in 1989 --Sydney area, Outback and Cairns area. Beautiful place. Glad Tarceva is working for you. Sorry you can't find a support group. Hope there are other leads to one. Looks like you are doing okay so far. I hope for that to continue. Don Quote
MilliBr1 Posted July 7, 2005 Posted July 7, 2005 Welcome to the board Shar! You've come to a wonderful place for help and support. Quote
Don M Posted July 7, 2005 Posted July 7, 2005 Welcome Shar; I am glad to hear that the Tarceva seems to be working for you. Don M Quote
cindi o'h Posted July 7, 2005 Posted July 7, 2005 Hi Shar. Our own Karenl and Jana are also from Australia. If you do a search on them, (in the u/r area of this page) you will find posts from two of the lovliest sisters you would ever want to meet! Welcome to our site. I am glad that you found us! Cindi o'h Quote
Donna G Posted July 7, 2005 Posted July 7, 2005 I can't help with the tarceva, but I do want to welcome you to our group. You know you soon have a one year survival party coming up! Keep us posted. Donna G Quote
Patkid Posted July 7, 2005 Posted July 7, 2005 Hi, Shar!, welcome. Brian just started on Tarceva on 6/24. (His rash is a bit unnerving .........rather pronounced and sore looking.) We are pleased to hear of your good response to the med. We are praying for the same. This is a great place for support and encouragement. We look forward to getting to know you better. Pat and Bri Quote
Maryanne Posted July 7, 2005 Posted July 7, 2005 Hi Shar, I want to welcome you to the board. You will find great support here and very knowledgable people who can answer your questions. I cannot help you with your question, but there are many here who can. good luck and keep us posted. Maryanne Quote
Frank Lamb Posted July 7, 2005 Posted July 7, 2005 Welcome Shar,you will find lots of support here from a lot of survivors. There are quite a few people here using tarceva and having good results with it. Quote
dadstimeon Posted July 7, 2005 Posted July 7, 2005 Welcome Shar, Glad Tarceva is doing it's thing for you. Stay with us the best place with the best people. Rich Quote
Fay A. Posted July 7, 2005 Posted July 7, 2005 Welcome, Shar. Are you taking Tarceva as part of a clinical trial in Australia? Quote
kreed70 Posted July 7, 2005 Posted July 7, 2005 Welcome! The people here are awsome!! GLad Tarceva is working for you! I hope it works for my mom too. Quote
lilgna Posted July 7, 2005 Posted July 7, 2005 Welcome. to a place we all can feel good about... This is a great source of saupport, resource, and caring. So glad you found us... gina Quote
shineladysue Posted July 7, 2005 Posted July 7, 2005 Hi Shar, Sorry, we don't have any experience with Tarceva. Just want to welcome you to the group. You will find that there is plenty of support, knowledge and prayers here to be shared. God Bless, Sue Quote
Wendy Posted July 7, 2005 Posted July 7, 2005 Welcome Shar! It is too bad that you are unable to locate a local support group, but you found us here which is the next best thing!! Good to hear that you are having success with the Tarceva. I was taking Iressa for a while which produced a similar Tarceva rash. There is a prescription acne medication called clindamyacin that can help keep the rash under control. Good luck in your continued treatment, Wendy Quote
Snowflake Posted July 8, 2005 Posted July 8, 2005 Welcome to the neighborhood, Shar. This site is the closest thing I have besides breast or prostate groups, as well. Keep on keepin' on! Becky Quote
Shar Posted July 8, 2005 Author Posted July 8, 2005 just wanted to say thanks so much for all of your kind words and its so nice to have all of this support. so glad i found this site. Quote
melindasue37 Posted July 8, 2005 Posted July 8, 2005 Welcome Shar!!!! I am a newcomer as well...and wanted to welcome you and say hello. I wish I could give you lots of information about Tarceva, but I don't know much yet. My Mom just started taking it June 22. She will be going to the doctor on Wednesday, July 13th for her first scan since starting taking it so I'm sure we'll know much more then. I'm so happy to hear that the Tarceva has been helping you. Glad you found this site....keep us updated Melinda Quote
pammie Posted July 9, 2005 Posted July 9, 2005 Hello Shar. Glad you found this website. Will be praying for you. pammie Quote
J.C. Posted July 9, 2005 Posted July 9, 2005 Welcome, Shar, So glad the Tarceva is working for you. J.C. Quote
Hebbie Posted July 11, 2005 Posted July 11, 2005 Welcome Shar, glad you found us (but sorry you need to be here) You will find a wealth of knowledge and support here, I look forward to getting to know you! Heather Quote
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