melaniem Posted July 27, 2005 Share Posted July 27, 2005 Hey everyone, I'm sorry my posts have been so erratic the past few months. One lung surgery, chemo, 2 brain surgeries and 20 whole brain radiation tx's in 10 months keep a girl busy. ha. My euphoria after the first brain surgery I understand may have been steroid induced, although my spirits are still good. I am still on steroids and they are awful. I now have Cushing's Disease which is making me lose muscle and bone. Will hopefully start some physical therapy this week, the oncologist says the muscles must be used or I could lose them. Right now it takes both hands to lift off of chairs, toilets, etc. I tripped this weekend in a convenience store and could not get up. My sister and kids had to all help pull me up. I am 37 years old. And this is all from steroids. I will be on them for about another month. Because of the brain swelling we have to wean off this gradually. I'm down now to only 8mg day. I will have another brain MRI in about a month, that makes 9 so far, to make sure the swelling is still going down. I look like a punching bag too. Another lovely side effect is bruising. I've gained 20 pounds, it's all these fat pockets that accumulate on your belly, neck, face.I really try not to complain too much but it's starting to get really old. Everyone on these boards can vouch you just have those days when you aare so sick of being sick. BUT....then I realize I am the lucky one, I am ALIVE!!! And I WILL be OK, this isn't forever. My family and friends hosted a benefit for me this past weekend and it was very successful. The work that went into it was un-believable. There were about 500 people who came and went and donated very generously. I am truly blessed. Our God is so good. I LOVE the new string that started on the boards by debi!!! Even though I have not posted I check in regularly and everyone of you are so genuine in your words and encouraging. There are times I am in awe of some of you!!! So this is my add-on to that post and it's to everyone of you....... words are powerful, they can absolutely destroy a person or they can save lives, build someone up, or completely change someones day. Each of you have at some point used your words in a way that has been powerful and encouraging to one of us here and that is a gift. Thank you to everyone who has lifted me up!!! OK, enough already. I'm going to New Student Orientation w/my freshman college girl today, pray that I can get around Ok, w/my 2 half-blind eyes and hips that aren't working so good anymore. Cancer sucks, but the Lord is good. Melaniem Quote Link to comment Share on other sites More sharing options...
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