sharyn Posted August 12, 2005 Share Posted August 12, 2005 Okay Addie so this officially SUCKS... I am so sorry to hear this latest news... but you are such a fighter.... I pray that you keep that spunk!!! Quote Link to comment Share on other sites More sharing options...
Maryanne Posted August 12, 2005 Share Posted August 12, 2005 Hi Addie, Well, sucks big time. So sorry to hear this. Just want you to know that I am sending prayers to you big time. Keeping everything crossed for good results from your other scans. I know you will get through this as you are definetely going to fight this. You have a good man right at your side to keep you going. Wow this month has really turned into such a bummer. I feel so helpless here. Still I love your Additude as it is so uplifting all the time and that is half the battle there. Hang it there, this too shall pass. Maryanne Quote Link to comment Share on other sites More sharing options...
gail p-m Posted August 13, 2005 Share Posted August 13, 2005 Addie-- So sorry to hear your news. You'd think we're do for a "run" of good news but it's not happening. I know you must feel frustrated right now but you're a fighter and you'll do battle. Nothing wrong with a daily bloody Mary and don't know if it has to be a weak one. Sending prayers your way too. gail p-m Quote Link to comment Share on other sites More sharing options...
annjael Posted August 13, 2005 Share Posted August 13, 2005 (((Addie))),,,hearing all news, good, bad or in between is what this family is all about! So much love and caring here. Hugs and prayers going out to you. Peace, Annjael Quote Link to comment Share on other sites More sharing options...
Debi Posted August 13, 2005 Share Posted August 13, 2005 Addie, Yeah, put me down for the "this sucks" column... I think that you'll feel better once you have a plan. Its crap knowing that you have something, but not knowing exactly what or what the plan of action is. Too bad we don't have our doctor's cell phone numbers, huh? I'm keeping everything crossed for you that your other test brings back good results for you. Wishing you some type of inner peace for now (even if it involves massive bloody marys).... Quote Link to comment Share on other sites More sharing options...
Addie Posted August 13, 2005 Author Share Posted August 13, 2005 One light bloody mary, two light transfusions with vanilla vodka. I might not have done my liver much good today...but I managed to get to tonight with a minimum of tears and even a couple of laughs. I have "at least a dozen" brain mets. But the largest is only 1 cm., which is the good news. The MRI machine is only a month old...state of the art...and highly sensitive. It showed up 2 mm. mets. I had a chat with my rad. onc, since my onc is out of town and so is my primary. Rad onc says I can still have some brain radiation...and he will call my onc first thing Monday morning to figure out a game plan. I see the onc Monday afternoon after my chest/ab./pelvic CT. The other option that is most likely is Temodar but I don't know at this point whether I'll also continue on the Topotecan. Temodar comes in pill form. Original developed for brain cancer, I think...but works on mets too. I've sort of got my mental state on hold right now. Leapfrogging again. I'll worry when I have no other options. But I can mentally put off the worst of this till Monday when I find out the game plan. I keep telling myself...I FEEL good. Okay, sure, I had a little headache today...but sheesh, it's probably a pure tension headache, wouldn't you think? Can't drive anymore though. At least my rad onc highly recommends against it in case I seizure. Geez, I drove myself to chemo Monday and Tuesday of this week. I so appreciate all your good thoughts, wishes, prayers and positive thoughts. I'm gonna just keep putting one foot ahead of the other. Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted August 13, 2005 Share Posted August 13, 2005 Addie,put me in the bloody mary club with you and your hubby.Sorry you have yet more to deal with. Hoping ct scans have good news for you and a good but gentle plan is available for the brain mets. Quote Link to comment Share on other sites More sharing options...
ginnyde Posted August 13, 2005 Share Posted August 13, 2005 Addie dear, I saw this earlier and just couldn't respond. I am heartsick. Please know if thoughts, wishes, hopes and prayers can help you, I am thinking, wishing, hoping and praying that the next round of treatments are the kick butt ones. Please keep leapfrogging and imbibing or whatever you need to do to keep that Addietude. Whatever you need my friend. Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted August 13, 2005 Share Posted August 13, 2005 Sorry to hear this Addie, you are in my prayers. Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted August 13, 2005 Share Posted August 13, 2005 Addie, Don't know what to say. This sucks! So much for trying to make August a good month. I will never try to declare another month as a good one...I guarantee you that! Better to stick to one day at a time. PRAYING hard for you girl! Take care. Quote Link to comment Share on other sites More sharing options...
Melinda Posted August 13, 2005 Share Posted August 13, 2005 Addie, I am afriad that I am no expert. However, I do know that while Geoff's mom had brain mets (and the sound of them scarded the stuffing out of us), they were one of the easier parts of her treatment. She did not experience any real symptoms from the brain mets, and the treatment was quick and painless. For her, the only drawback was that she lost her hair from the whole brain radiation (WBR) (which she had managed to miraculouly keep through all the rounds chest radition and chemo). She was a beautiful woman--and that was hard for her. But--all in all--her brain mets did not phase her, much to our collective surprise. She was not a candidate for the Gamma knife--or stereotactic--but there have been a number of people on the board who have had goo to great results with them. I also know someone who developed brain mets from a different cancer, had WBR, and is still merrily rolling along 10+ years later. A big (((HUG))) is coming your way. All the best, Melinda Quote Link to comment Share on other sites More sharing options...
melaniem Posted August 13, 2005 Share Posted August 13, 2005 Addie, I'm sorry about this news. I had a brain tumor which I don't think is the same as a brain met.? I don't know Addie, I just love you and hate this disease. Be encouraged though by all the others here who have had and are living with brain mets. Go find something FUN to do this weekend!!!!!! Love, Melaniem Quote Link to comment Share on other sites More sharing options...
Patkid Posted August 13, 2005 Share Posted August 13, 2005 Addie, Brian asks id that teeney tiny headache could be vodka induced??????????????????? We care so much Brian decides to have an Addietude each and every day. Have a good weekend. We are praying. P Quote Link to comment Share on other sites More sharing options...
elnodel Posted August 13, 2005 Share Posted August 13, 2005 Dam_, Dam_, Dam_, Dam-, Dam_..... Stupid cancer--but you'll outfox it yet! I'm glad the doctors are working on the options for you and I bet they'll come up with something that will knock the stuffings out of each of those little mets and do 'em in for good. We should start a pool on how quickly they can get rid of them! I'll just have to have a bloody mary myself to toast you and your rapid recovery and your addie-tude! Ellen Quote Link to comment Share on other sites More sharing options...
Don M Posted August 13, 2005 Share Posted August 13, 2005 Addie: I am sorry you got the brain met news. I see your starting to sort through you options. Good. You have my prayers. Don M Quote Link to comment Share on other sites More sharing options...
Tiny Posted August 13, 2005 Share Posted August 13, 2005 Addie- The news has floored me! Crap and double crap! Hang in there with that special Addietude for which you are well known. Prayers. Quote Link to comment Share on other sites More sharing options...
Cindy RN Posted August 14, 2005 Share Posted August 14, 2005 Addie-I saw this earlier and did not respond-I had to think it over too. You have had to wait this whole weekend to find out what is next. That is always the hard part for me. I can handle the news and what treatment they want to do but the middle-not sure what is coming next always gets me! You keep doing what you are doing to get thru til Mon-Tues and then start fighting these LITTLE mets. Love Cindy Quote Link to comment Share on other sites More sharing options...
Doughnut Posted August 14, 2005 Share Posted August 14, 2005 Addie, Like some others I did read your post before but didn't know what to say. Several days later I still don't so I just wanted to say that I'm thinking of you. Dee Quote Link to comment Share on other sites More sharing options...
francesbean Posted August 15, 2005 Share Posted August 15, 2005 Hugs to Addie. So sorry to hear about the mets. You will get through this! Quote Link to comment Share on other sites More sharing options...
Leslie221 Posted August 15, 2005 Share Posted August 15, 2005 Addie, I just read your post tonight. What a lousy thing to find out, especially from a doctor you don't really know. I can relate to your comment about comforting HIM - guess you were trained to be a "nice" person, too! Hope you get better news this week. Fingers crossed. Leslie Quote Link to comment Share on other sites More sharing options...
Connie B Posted August 15, 2005 Share Posted August 15, 2005 Addie, I'm with many on this one that this news is, CRAP, SHI%, POOH, SUCKS, DAM_, Son of a GUN, etc. etc. etc. And as for the "GOOD NEWS AUGUST" saying goes, IT TOO SUCKS! I say NIX August and move on to September! OY VEY! Enough Already!!! I just wanted to say that I sure hope you get some solid answers today. A good game plan would be in order here. I'm no Cindi the Bartender/Barowner, but I do make a MEAN BLOODY MARY!! Prayers and more Prayers. Quote Link to comment Share on other sites More sharing options...
lindseysmom Posted August 15, 2005 Share Posted August 15, 2005 Oh Addie, I am so sorry to read this. You never cease to amaze me with the strenght that shines within you. Best Wishes, Dee Quote Link to comment Share on other sites More sharing options...
berisa Posted August 15, 2005 Share Posted August 15, 2005 I hope my dad's story would be a reference for you. my dad wasn't give`n any meds for brain mets. My dad did get a PCI, but PCI doesn't guarantee no mets to brain, i think it only delays it. The neurosurgeon did the brain surgery to my dad. But my dad is a very special nasty case that the cancer just spread / reoccurred in just a blink. Talk to the onco & neurosurgeon, see gamma knife / radiosurgery / radiation would be possible. Keep us posted and I certainly keep you in my prayers. Quote Link to comment Share on other sites More sharing options...
Fay A. Posted August 15, 2005 Share Posted August 15, 2005 Thinking of you, Addie, and hoping that today's scans give you good news. It's rough when we can't get a break. But you and I have been doing this for a while. You hang in there. Quote Link to comment Share on other sites More sharing options...
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