Don Wood Posted September 11, 2005 Share Posted September 11, 2005 Lucie had the first part of her second chemo cycle this week -- Navelbine and Gemzar. She has since developed soreness in her throat and mouth. She did not have this when she took Navelbine alone, so it may be the Gemzar. If anyone has info on either Gemzar or Navelbine as far as mouth and throat soreness, would appreciate the info, especially specific treatments to ease. Right now, I'm giving her the old-fashioned salt water gargle and, of course, the great stand-by, ice cream! Thanks. Don Quote Link to comment Share on other sites More sharing options...
ginnyde Posted September 11, 2005 Share Posted September 11, 2005 Don, I think there is something called Mycolex that may help. It looks like a tum and you suck it. May need an RX for it, I don't remember. Quote Link to comment Share on other sites More sharing options...
Patkid Posted September 12, 2005 Share Posted September 12, 2005 I mix Mylanta and liquid benedryl and have Brian gargle with it. It helps him alot. P Quote Link to comment Share on other sites More sharing options...
TAnn Posted September 12, 2005 Share Posted September 12, 2005 When I was in the hospital for fever from pneumonia, they gave me a mixture of salt water and baking soda to prevent infection and heal the sores. TAnn Quote Link to comment Share on other sites More sharing options...
MurielK Posted September 12, 2005 Share Posted September 12, 2005 I had some mouth sores from Carbo and Taxol and can sympathize with Lucie. I had cisplatin and Gemzar the second time I had chemo (2/05 - 6/05)and didn't have any mouth sores. The cisplatin made me really sick, but my reaction to the Gemzar (every other time I received only Gemzar)was very mild. By the way, fudge sauce on the ice cream might be good for Lucie, too. How many more treatments? Muriel K Quote Link to comment Share on other sites More sharing options...
Andrea Posted September 12, 2005 Share Posted September 12, 2005 My mom was given something to rinse her mouth with all the time when she was on chemo to help prevent sores and infections. I just called and thtey don't remember the name, but someone else might. Quote Link to comment Share on other sites More sharing options...
pammie Posted September 12, 2005 Share Posted September 12, 2005 Bought some anbasol canker sore stuff that was very helpful. Sure praying Lucie will find some kind of rinse for her whole mouth and throat. Bless her. praying for you both. pammie Quote Link to comment Share on other sites More sharing options...
LindaMRG Posted September 12, 2005 Share Posted September 12, 2005 Hi Don and Lucie, Call onc and see if he can prescribe something. I remember my father taking these certain lozenges when he had stem cell that were good. There are several options your onc can tell you about. Im always thinking of Lucie. Quote Link to comment Share on other sites More sharing options...
Nushka Posted September 12, 2005 Share Posted September 12, 2005 I think Katie B said it all. I used a mouthwash prescribed by my oncologist...called Magic Mouthwash. It comes with and without the antifugal drug. Tell Lucie I am sorry for her discomfort and praying that it gets well soon. Nina Quote Link to comment Share on other sites More sharing options...
janetg Posted September 12, 2005 Share Posted September 12, 2005 Hi Don, My mother developed mouth sores when taking Gemzar. She was prescribed magic mouthwash and nystatin. Hope Lucie's feeling better soon. Janet Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted September 12, 2005 Share Posted September 12, 2005 Don,I had sore mouth and throat pretty bad the last time I did carbo and taxol.The onc gave me a mouthwash / gargle called swizzle.It was a combination of things and works pretty good. Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted September 12, 2005 Share Posted September 12, 2005 My oncologist prescribed this for me when I had difficulty eating post chemo and radiation: The pharmacist made it up for me. Directions: swish and spit about 1 spoonful (fifteen mls) every 30 minutes as needed, esp before eating. (You can swallow a teeny bit) Mouth rinse: 25 cc of liquid Benadryl, 25 mg/cc stock solution 25 cc of Maalox 25 cc of lidocaine, viscous, 2% solution 25 cc of nystatin liquid. ----------------------------------------- There is also a premix similar to the above available in the Wash DC area by prescription called Gel-claire, but the nurse had no firsthand knowledge of it. Hope this helps! XOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
jang Posted September 13, 2005 Share Posted September 13, 2005 I heard that popsicles really make it feel better. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted September 13, 2005 Author Share Posted September 13, 2005 Thabnks, all, for the input. We went with the Maalox/Benadryl combo today, and then got a prescription tonight fron the onc -- a cocktail of three ingredients. I think we are doing a little better. Don Quote Link to comment Share on other sites More sharing options...
Patkid Posted September 13, 2005 Share Posted September 13, 2005 I think that calls for ice cream. So glad for things looking up! Hugs, Lucie, Pat and Brian Quote Link to comment Share on other sites More sharing options...
endangered but surviving Posted September 13, 2005 Share Posted September 13, 2005 Dear Don, I found my mouth sores are better when I drink tons and I mean tons of water, more than 8 glasses a day. I just keep filling up the water glass. best wishes love joyce Quote Link to comment Share on other sites More sharing options...
Ann Posted September 13, 2005 Share Posted September 13, 2005 Don, glad to hear that Lucie is feeling better. I am assuming the prescription you got may have been for the "Magic Mouthwash" that others have mentioned. Our oncologist prescribed this for Dennis and I can tell you that I know why they call this stuff magic. It really worked like a charm for him. Quote Link to comment Share on other sites More sharing options...
adee Posted September 13, 2005 Share Posted September 13, 2005 I used the standard remedy of baking soda and salt mixed with water after every meal or snack (and in between) Also the onc nurse gave me some samples of UlcerEase mouth rinse that worked very well. I'm not sure if this is an RX or OTC though. Even Cepacol Throat Lozenges worked fairly well. I couldn't stand using the "Magic Mouthwash". It made my mouth and throat so numb I felt like I was choking to death and I would get panicky! Sometimes I'm such a wimp. And as others have mentioned, popsicles, ice cream and jello feel really good. Quote Link to comment Share on other sites More sharing options...
Darci Posted September 13, 2005 Share Posted September 13, 2005 Don, I am sorry to hear that Lucie is having problems with soreness from her meds. You give your sweetie all the ice cream she needs!! I hope that others have good advice for you. Quote Link to comment Share on other sites More sharing options...
DianeFox Posted September 13, 2005 Share Posted September 13, 2005 Don....I was just organizing some of Bob's paperwork and stopped and reread notes from the mutritionist. She says vitamin E helps mouth sores. The only ones that Bob had were from acid reflux during radiation and his dentist gave him a perscription...Hope Lucy has found some relief. Diane Quote Link to comment Share on other sites More sharing options...
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