shineladysue Posted September 19, 2005 Share Posted September 19, 2005 Well,it looks like Mike will have to come off the Tarceva permanently. Ater two attempts to take it, the side effects became worse and worse. He was first on 150mg. for 5 days and developed a severe rash with puss on the tops. The onc took him off for two weeks and then started him on 100mg. After 11 days on that he not only has a much worse rash than before, but lack of appetite and shortness of breath. We saw the doctor today and he says if the shortness of breath isn't better in two days he will need to start on prednisone 40 mg. Omg, it could cause him to have steroid psychosis again, but pneumonitis can only be treated with prednisone. The doctor doesn't think it's pneumonitis at this time and says his breathing sounds good. Only time will tell. We've been through pneumonitis before and we pray it's not the case. He never fully recouperated the first time. He is on oxygen 24/7. He only has the one lung and any breathing difficulty is that much more of a concern. Anyhow, this is not what we had hoped, but we will see the doctor in one week and he will tell us then what new plan he has for us to consider. Mike has been on so many different kinds of chemo that we aren't sure what is left. Guess all we can do is take it one day at a time and pray. We would appreciate all the positive thoughts and prayers you can send our way. Thanks. As always, all our prayers are going out for all of you. Love, Sue Quote Link to comment Share on other sites More sharing options...
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