jcawork Posted September 30, 2005 Share Posted September 30, 2005 I am almost scared to post the most recent info as it could change in 5 minutes. But here goes: Last week had CT scan of chest, abd, pelvis it showed: left lung nodes a bit bigger (New last scan) ovaries the same right lung mess from radiation last year plus small new nodes T-11 Spine met still there shows (but had radiation and that’s ok) New sacral spine met Then I had the PET that was fused w/ the CT: Saw the same on left lung saw nothing on right but radiation damage saw T-11 spine met/radiation area 3 cm liver mass (this comes up on every PET since April 05, never the CT and the MRI we did a few months back said nothing there) New periaortic 2 cm mass (node) Sooooooooo, this is a mess, they don't match and the PET did not give SUV reading for the first time and did not compare to my last PET of 7/05. This was quite unusssual and both my Onco and I felt it was a crappy, incomplete report. But, he decided progression had happened and gave me a script for Glevac (oral chemo) and took me off the Topo. He then calls the PET Doc's boss and asks for a reread from the consultant they use who is considered the master. Get ready: He says on my 7/05 PET my vein was infiltrated and I didn’t get enough juice that’s why they didn't do a comparison on last Pet to this one. He also says everything is better Nothing new at all He also says new periaotic node mass is really my uriter tubes from my kidneys not met. I get a call at 10pm from my Onco telling me this and telling me we stay w/ Topo. WHAT!!!!!!!!!!!!The hell is going on????????? I am scheduled for my Topo all next week I filled the Glevac but didn’t start it I have no idea what to trust here and I am concerned about my tx being decided on wrong info Oh yea, head MRI post WBR: Had 4, but they originally told me I had 3: 2 are gone, 1 is the same and 1 is a tiny bit bigger. I think plan is hold for one month and rescan. Then Gamma if bigger. My bowel problem is at an all time peak. Nothing has helped, doesn’t seem to be cancer related, but I know it is. Full work ups X 2, got scoped. Its out of control and I am housebound it is so bad. Diarrhea is better, but bowel spasms have remained horrid. Its been 5 months of this nightmare. At the end of my rope on it. So, there is my mess. Have no idea how to put it all together. Sorry it took so long to post and update, but I wasn't sure what to post. Sorry post is so long. Thanks for all of the posts. Jen Quote Link to comment Share on other sites More sharing options...
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