shineladysue Posted October 11, 2005 Share Posted October 11, 2005 Hi there, Whew!!! Yesterday was a long day at the oncologists. Mike had labs, doctor visit and started chemo again. These last scans had good and not so good news. Tumors in the chest.. bronchial stump and lymph node are stable and have been quite a while, but the adrenal is still showing an increase plus possible progression to the lymph nodes behind it..At present it is described as "mild" progression, but it mentions multiple nodes. In a year and ten months this is the first time for any progression from the original tumors. It most likely has to do with the long period of time he was off of chemo due to pneumonitis and then steroid psychosis... On top of that we had two runs with Tarceva that failed.. sooo here we are. The chosen weapon... is Camptosar (formerly known as CPT_11) It was given yesterday (1 hr 90min. infusion +30 minutes for two premeds for nausea and diarrhea) and will given every 3 weeks. We had discussed adding Avastin, but decided against it. There is increasing evidence that Avastin caused people to cough up blood due to bleeding in the lungs. It is also coming to light that the more people on it , the more reports are coming out of this happening , along with more fatalities due to this . Anyone considering Avastin, might want to make sure they do all their research before trying it. Mike is feeling a bit queasy today. We are back to small meals again. He was eating like a horse before and feeling good. Can't live with the chemo and can't live without it. We are praying this one works... He's running out of options, I believe. Where's that silver bullet??? Let us know when you find it... That's what we are all working toward. This is long enough. Good thing I don't post often, I'm too long winded. I'm a little behind in reading and posting . Just know that my prayers go out to all of you and I don't know what I would do without you. Thank you for always being here for us. Love you guys.. Love, Sue Quote Link to comment Share on other sites More sharing options...
Don Wood Posted October 11, 2005 Share Posted October 11, 2005 Thanks for the update on Mike, Sue. Praying that Camptosar will be effective for him. Don Quote Link to comment Share on other sites More sharing options...
SDianneB Posted October 11, 2005 Share Posted October 11, 2005 Sue, my best to the two of you as you continue this fight. The magic bullet is the two of you and your strength to continue this battle. "Maybe one day ..." and all that, but right now you have your hands full, huh. Hope you find what works and that it works well. Di Quote Link to comment Share on other sites More sharing options...
Patkid Posted October 11, 2005 Share Posted October 11, 2005 Okay, Sue. Mike and Brian are on the same chemo right now. The diarrhea gets Brian pretty badly, but finally have learned that Lomodil helps: NOT immodium. We are rooting for you guys. He gets CPT-11 weekly for 2 weeks then 1 week off. We are off schedule now for the wedding. he was 'on' for 3 weeks now 'off' for 2. Just labs till we get back from FL. He was on this with carboplatin, but his nueropathy progression put a stop to any further platen drug usage. Surely hope it is an effective treatment. Brian failed badly on Tarceva as well and doc said absolutely NO to Avistin with very little explanation. so.............onward. Love Pat and Brian Quote Link to comment Share on other sites More sharing options...
CharlieD Posted October 11, 2005 Share Posted October 11, 2005 Sue and Mike, Been anxiously awaiting your post. Sounds somewhat encouraging. Sure hope this Chemo works for Mike. Glad to hear that he is feeling well. Hang tough Mike. Take care and God Bless. CharlieD Quote Link to comment Share on other sites More sharing options...
Kasey Posted October 11, 2005 Share Posted October 11, 2005 Dear Sue, I have been waiting (trying to be patient) to see what your next line of defense was going to be. I don't know about the chemo, but hoping you can attain stability so you can THEN work toward regression!!!! I do so hope this will be the turn in the road toward good things for you and Mike. I hope you know that you remain in our fervent prayers daily. There is hope. There are miracles. There are drugs that can make a difference. I am wishing all of those for you. Please don't stay away so long. We are here for good and not so good news. Please let us walk this walk with you. Love, Kasey Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted October 11, 2005 Share Posted October 11, 2005 Sue,I'm hoping this chemo will turn things around for you and Mike.You are both very deserving some good results from txs for a change. Quote Link to comment Share on other sites More sharing options...
ginnyde Posted October 11, 2005 Share Posted October 11, 2005 Sue, You just never know which tx is going to be the magic bullet. Didn't we all think that all cancers were the same before we became part of this family. So maybe, Mike's is the one that will respond to this new chemo, all things crossed for good news. Quote Link to comment Share on other sites More sharing options...
bunny Posted October 11, 2005 Share Posted October 11, 2005 Sue, I always look for your posts, you're not long-winded t all. I hope this new plan "does it". you're both in my thoughts and prayers. xoxo amie Quote Link to comment Share on other sites More sharing options...
Ry Posted October 11, 2005 Share Posted October 11, 2005 Wishing you both good luck with the new chemo. Quote Link to comment Share on other sites More sharing options...
tess Posted October 11, 2005 Share Posted October 11, 2005 Hi Sue, My prayers are with you both! Hope and pray this works! Quote Link to comment Share on other sites More sharing options...
Shar Posted October 12, 2005 Share Posted October 12, 2005 Sue, Just wanted to wish you guys luck with this latest treatment. I'll be hoping and praying for great results. Hang in there, I know it's tough!!!!! Sharon Quote Link to comment Share on other sites More sharing options...
jang Posted October 12, 2005 Share Posted October 12, 2005 Sue, You are both in my prayers. I hope this works for him! Quote Link to comment Share on other sites More sharing options...
jorja Posted October 12, 2005 Share Posted October 12, 2005 You are both in my prayers!!! love, jorja Quote Link to comment Share on other sites More sharing options...
Tiny Posted October 12, 2005 Share Posted October 12, 2005 Sue- Praying that something clicks for Mike. Hang in there and never give up hope. Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted October 12, 2005 Share Posted October 12, 2005 Sue, Praying for this to be Mike's magic bullet. New drugs and options are coming down the road everyday. Praying for new options for us all. Take care. Very much understand what you are going through. If I can help you in any way, please contact me. Quote Link to comment Share on other sites More sharing options...
Nushka Posted October 12, 2005 Share Posted October 12, 2005 Sue, You can add my name to the long list of those praying for you and Mike. I really hope that Camptosar is the one and that the side effects are tolerable. Keep in touch. You are not long winded and we want to hear all the news. Nina Quote Link to comment Share on other sites More sharing options...
Fay A. Posted October 12, 2005 Share Posted October 12, 2005 Fingers and toes crossed and prayers forth coming that Camptosar works on everything. Quote Link to comment Share on other sites More sharing options...
KarHart Posted October 12, 2005 Share Posted October 12, 2005 Sue, I join everyone hoping this will be the treatment that works. I am probably going to talk to Ken's dr. about taking it since he has tried everything else too. Maybe this will be the one to help Mike, Brian and Ken. Hoping and praying for us all. Karen H Quote Link to comment Share on other sites More sharing options...
Maryanne Posted October 13, 2005 Share Posted October 13, 2005 Hi Sue, Sorry, don't know how I missed this post. I along with everyone else is sending prayers for Mike for that this is the treatment that will work. Hang in there, I know things will get better for you both. Maryanne Quote Link to comment Share on other sites More sharing options...
shineladysue Posted October 14, 2005 Author Share Posted October 14, 2005 I just want to thank all of you for your well wishes and prayers. We appreciate them all. Mike is 3 days out from chemo and it's really kicking his butt. He is very fatigued and feels nauseated. He was feeling soo good and was enjoying everything. Now he just wants to rest all day and eat very little. I'm just praying it's making the cancer feel just as ill and kicking some cancer butt. Will update you again soon. Take care. Love, Sue Quote Link to comment Share on other sites More sharing options...
Addie Posted October 15, 2005 Share Posted October 15, 2005 Hoping this new chemo is just the ticket for Mike~!! Hang in there, keep us posted and I hope his side effects are few and mild. Sounds like his doc is staying right on top of things...which is great. Maybe the Camptosar will do the trick...eh? Here's hopin'...... Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted October 15, 2005 Share Posted October 15, 2005 Sue, Got everything and then some crossed that the Camtosar is going to be doing a whole lot of good for Mike. And when this is all through, you both will have amnesia regarding how badly Mike feels. It is now one minute, one hour, one day at a time. Hang in there. Praying for only the best of results! love Cindi Quote Link to comment Share on other sites More sharing options...
carolhg Posted October 15, 2005 Share Posted October 15, 2005 Sue my prayers are with you and Mike and I certainly hope that this chemo is the one that works for you. Carol Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted October 15, 2005 Share Posted October 15, 2005 Sue, prayers for the best for a turn around. Rich Quote Link to comment Share on other sites More sharing options...
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