Jump to content

More News


KatieB

Recommended Posts

After fighting with oncology nurses and the records department, we finally got the radiology reports on my dad's tests. WHY must they give me such a hard time? I HAVE medical power of attorney, dad PAID for these tests, they are his to do with or give to whomever he pleases!

I have decided that I dislike this oncology tem very much.

Thank goodness dad gets a new Doctor on Monday (Radiation Dr.)

Yes, it is probable that dad has a bone met on his shoulder.

and Yes, the two "tiny" tumors on his liver are no longer tiny. THERE ARE 3 of them now. They are all 2.5- 2.7cm.

It's not good news. But it is DOABLE> I pray the radiation will zap the shoulder met. I pray that the specialist I have found who is an expert in Radio Frequency Ablation will agree to zap those liver mets, and I pray that while all this is happening that the lungs stay clear.

Lots of prayers going on for Dad, and lots of prayers going out to all of YOU too.

Link to comment
Share on other sites

Katie -

Prayers, prayers, prayers - going up for your dad!

It is doable - and you are just the people to do it! I came home from my trip to read about your news - sorry I didn't get to answer before. Sounds like you took the "bull by the horns", though! Hopefully, the new radiation Dr. will be a lot more cooperative! I know what you mean - they are YOUR tests! Why all the fuss???

God bless -

Terrie

Link to comment
Share on other sites

My Dear Katie,

You did the right thing. If that happens again really make a scene. Say "What do you mean the blood was tainted" I bet you will get their attention then. He He I guess I just get EVIL :twisted: when my rights are being denied.

Katie that is something I feel very passionate about..... knowing everything I can so that we can see the full deck. Why should the doctors try and keep anything from us. I have always thought that those who have nothing to hide, hide nothing.

I hope your new doctor that you see on Mon. is wonderful!

Have a GREAT weekend and get all rested. The radiation will help your dad. I will be praying for you and your family.

Hugs, Shelly

Link to comment
Share on other sites

Katie

I am sure Jesse will be able to beat this too! Hes got you on his side, keep at those doctors, they need it! I also just got a new oncologist, love her, but her staff needs pushing at times. We have to keep them in line. Will be praying for Jesse and am very interested in the RFA. Keep us posted

Bess B

Link to comment
Share on other sites

Katie,

It will be interesting to see what they do regarding RFA. Beings buddy had mets elsewhere they wouldn't do RFA. I still don't understand why. I think because it is in the bone....per the dr, if he didn't have mets his tumors being no bigger then 1.7 cm were to small for RFA.

I really don't trust what any of the drs say though and that is terrible of me. that is why i will be interested to see what they say about your dad...keep posting the news for i need to know....God Bless

Link to comment
Share on other sites

I'm sorry that in addition to fighting the cancer you are all having to fight those who are supposed to be helping you with the fight. I've been doing it for the past four years. I'm still doing it.

I'm praying that the radiation treatments are effective, and that your Dad can have the liver RFA treatments, all successful.

Fay A.

Link to comment
Share on other sites

Katie,

I also fired my radiation-onclolgist, and thank goodness!! It was the new one who agreed w/me that I wasn't as bad off as everyone was saying, and encouraged me to fight for surgery. So, I hope your dad's new rad-onc is just as super!!

Here's hoping that good news will be coming your dad's way!

JudyB

Link to comment
Share on other sites

Those of you who know me, know that me & mom started going to church together several months ago. I never went back to church for several years, (whole other story) and going to church was something me and mom did together, "just us". We celebrate God and pray like crazy for Dad and all of us in this situation.

Today, for the first time ever, we are not going to church. Dad is in bad shape. Don't know why. Don't know what caused this. He is too weak to get out of bed. Since his Dx. he has ALWAYS gotten out of bed, even just to lie on the sofa, he ALWAYS gets out of bed. Mom asked him to try..and he said "why?" He can barely walk, is unsteady and is short of breath.

Yesterday I took him to the store and he SANG the entire day. Old songs and told old stories...He'd see a box of Macaroni and tell a funny story about his mother- who couldn't even make Macaroni right. It was funny. But if you know my dad, HE DOES NOT ACT THIS WAY.

I don't know if the Oxycotin is doing this to him. He isn't used to taking meds that strong. I don't know if he is having an allergic reaction to it, or an overdose, OR if something even more serious is going on.

I am scared, guys. really scared. Will try to talk him into going to the hospital today. I know he is scared of the hospital, has said a long time ago, that if he goes in, he is afraid he won't come out. That's the "old school" mentality, but I'm scared too.

What is going ON? He is in better shape now (comparatively in terms of the cancer) than he was when he was first dx.

I'm just so scared.

we are missing church today. those of you who pray, please include my Dad in your prayers.

Link to comment
Share on other sites

Katie,

does the report you got on his liver show which area the tumors are. the liver has three sections., are they limited to one section or are they in all three?

Don't want to scare you, for you are scarred enough. What you are describing to me is what happened to my father who's cancer went to his liver from his lung. I brought him home from the hospital after he was denied his last treatment, (back then chemo was given at the hospitals) told he had two months to live and he walked into the house slowly, to his bed and didn't get out from that point on. He said he couldn't, so I just sat by him. Within 3 days he was with God and my dear mother.....

You are really scaring me regarding your father. It is hard to say whether to take him to the hospital or not. I know where he is coming from. He may feel he is to far along the way now....this is really a hard hard call......Is he getting up to go to the bathroom? My dad couldn't even do that those three days.....

Go by his wishes right now. That is what my heart says I would do....

I am going to church in 30 minutes and I will pray hard for him.....

Link to comment
Share on other sites

Katie, so sorry your dad is having such a hard time. His change of mood could be affected by the morphine, but also realizing his mortality from time to time will have an affect as well. We do strange things sometimes in the face of the reality of our mortality. I have offered prayers for him and you and your mother. Blessings. Don

Link to comment
Share on other sites

Sorry to hear about your dad. It really breaks my heart to see how down you are. I know exactly where you are coming from with your father. I had added a special prayer for you father and hope that things turn around for the better. Please keep me updated on how things are going. Best wishes and added blessings for your wonderful father and your family.

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Restore formatting

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.