RJimenez Posted November 22, 2005 Share Posted November 22, 2005 Hi: My name is Robin. I am a 38 year old female from New Jersey. I was diagnosed with non-small cell, lung cancer, in my left lung, November 2004. Thanks Gail for introducing me to this website. This is an informative website. It only took me a whole year to find support out on the web. Last year this time I was in the hospital unsure what was going on with me. I thought I was being admitted to have some fluid removed from the lungs, only to have the fluid removed from my heart. The fluid in the heart turned out to be cancer free. It was not until multiple test and probing and two weeks later after being released from the hospital; they told me I had lung cancer, stage 4, it had spread to the liver. I was so sure the doctors were wrong, because I thought only smokers could get lung cancer. Boy was I ever wrong. My initial reaction was anger, because I thought I should have smoked along with my friends. The unknown, not knowing what caused this is always in the back of my mind. I had my house tested for radon and all was fine and yet the doctors could not tell me WHY or How I ened up with Lung Cancer, I guess I will never know. Seems to be a trend among young women who never smoked. I pray they find out real soon what's going on..... I had no time to digest the information or do any research, they started me on Taxol and I had a bad reaction. Then in January 2005, I started 9 rounds of Taxatere and Carboplatin. The tumors in my liver were clear as of September 2005 and the tumor in my left lung had gone from 9X5cm to 5X3cm. Then I took 2 months off and the tumor in the lung started to grow again. Now I am on Alimta and 33 round of radiation (IMRT). Ihave two more weeks of radiation. Well, that is my short introduction of my eventful year. I thank God I am still here one year later. Have a Blessed Thanksgiving. Robin Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted November 22, 2005 Share Posted November 22, 2005 Welcome Robin, Glad you found us and that things are going in the right direction for you. Rich Quote Link to comment Share on other sites More sharing options...
midge Posted November 22, 2005 Share Posted November 22, 2005 Robin, Welcome to our board! I just met a stage 4 at the Lance Armstrong site and referred her to our site because there are so many stage 4s that are doing great and she really needs the support. You will find lots of friends here....sorry that you had to find us, but welcome! Quote Link to comment Share on other sites More sharing options...
Ry Posted November 22, 2005 Share Posted November 22, 2005 Welcome Robin. It sounds like you are getting a good response from your treatment. I am glad you found us. Rochelle Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted November 22, 2005 Share Posted November 22, 2005 Robin, Glad you found us. I can easily see how someone newly diagnosed with stage IV can find much hope from your lc story. There are no answers why, sometimes. We can waste so much time and effort asking, yet the answers will not come. I am encouraged that your treatments have beaten back the tumors. Where did you find Gail? Thank you for the holiday greeting. Cindi o'h Quote Link to comment Share on other sites More sharing options...
Don Wood Posted November 22, 2005 Share Posted November 22, 2005 Welcome, Robin, and congratulations on your first year of survivorship. My wife's case is similar to yours -- never smoked and was dx Stage IV non-small cell. She is presently a three-year survivor, so take heart. Her first chemo was also Taxotere/Carboplatin. She is presently taking Gemzar/Navelbine, and it looks successful as well. Best to you, and have a great holiday. Don Quote Link to comment Share on other sites More sharing options...
Patkid Posted November 22, 2005 Share Posted November 22, 2005 Welcome, Robin. Glad you found us, but sorry you had to look. We care. Brian and Pat Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted November 22, 2005 Share Posted November 22, 2005 Robin,welcome to our support family.You will find lots of answers and knowing and caring support here. Quote Link to comment Share on other sites More sharing options...
Don M Posted November 22, 2005 Share Posted November 22, 2005 welcome Robin: I rembember my first reaction at finding out I had lung cancer was skepticism and anger. I am glad I sought treatment though,in spite of my disbelief. I hope your treatment brings you NED. Don M Quote Link to comment Share on other sites More sharing options...
shineladysue Posted November 22, 2005 Share Posted November 22, 2005 Welcome Robin, We are glad you found us. You will find so much help, hope and support here. Everyone is more than glad to help in any way they can. It sounds like you have done very well this year and are still in the middle of a treatment plan. Will be keeping my eye on you praying for great results. Sue Quote Link to comment Share on other sites More sharing options...
dchurchi Posted November 22, 2005 Share Posted November 22, 2005 Welcome Robin, prayers are coming to you from the opposite coast, although I am originally a Jersey girl, born there and most my extended family still lives there. Continued success with your treatments and that the tumors continue to shrink. Debbie Husband Alan dx small cell lung cancer Jan 10th 2005 Quote Link to comment Share on other sites More sharing options...
Connie B Posted November 22, 2005 Share Posted November 22, 2005 Welcome, Welcome, Welcome. As everyone has said, I too am so sorry you had the need to find us, but am very glad you did. As Don said, congrates on being a One Year Survivor! We all know that the first year is a very hard year to go through. We have all learned that everyone seems to go down different paths in this journey, even though the treatments may be the same. But we all know that supporting one another is good for the fighting part of this journey. It's kind of like, you fall down, We help to pick you up! I did a LOT of falling down the first two years of my journey. I was very grateful to have wonderful friends help pick me up during that time, and even today I find these people right here will left me right back up to the NEW NORM as we call it. Hope you'll stay with us. You will find a lot of wonderful folks here. Quote Link to comment Share on other sites More sharing options...
Ellen B. Posted November 22, 2005 Share Posted November 22, 2005 Welcome Robin, glad you found this site. Ellen. Quote Link to comment Share on other sites More sharing options...
ginnyde Posted November 22, 2005 Share Posted November 22, 2005 Welcome Robin, glad to hear that you respond so well to treatments. Quote Link to comment Share on other sites More sharing options...
Maryanne Posted November 22, 2005 Share Posted November 22, 2005 Hi Robin, I am so sorry you had to find us. I could imagine how scared and suprised you were to find out you had this dreaded desease expecially since you don't smoke. There are many people who get this who are non smokers. LC is not a death sentence. There are so many here who are stage IV who have beaten the odds and are doing fine. Just have confidence in your doctors and know they are doing the best for you. If you feel they are not, then you can always go to another for a second or even a third opinion. I imagine you found us through the Lungevity walk at Cooper River. Heather the founder of the walk and visits this site, is also a non smoker around your age. You are definetly not alone. We are always here to help you and give you support. Maryanne Quote Link to comment Share on other sites More sharing options...
Fay A. Posted November 22, 2005 Share Posted November 22, 2005 Welcome, Robin! Wish you didn't have need of this site, but very glad you found us. Quote Link to comment Share on other sites More sharing options...
nancyf267 Posted November 22, 2005 Share Posted November 22, 2005 Welcome Robin! Nancy Quote Link to comment Share on other sites More sharing options...
j ross Posted November 22, 2005 Share Posted November 22, 2005 hello Robin My husband Barry is now 18 months from diagnosis and is leading a normal life, Welcome Jennie Quote Link to comment Share on other sites More sharing options...
Leslie221 Posted November 23, 2005 Share Posted November 23, 2005 Welcome Robin. You may not realise it, but you have given me a boost of confidence by letting us know you have achieved a full years since diagnosis of Stage IV NSCLC! I'll make a year in January! Congratulations! I put up a congratulations announcement for you in the Survivor's forum, where you will get lots of high fives! Way to go! Look forward to getting to know you better in time. We're all in this together! Leslie Quote Link to comment Share on other sites More sharing options...
Donna G Posted November 23, 2005 Share Posted November 23, 2005 Welcome Robin. Glad you found us. Donna G Quote Link to comment Share on other sites More sharing options...
bunny Posted November 23, 2005 Share Posted November 23, 2005 welcome. what a year you've had! it sounds like things are going in the right direction. just keep up the hard work, and we're here in all our many functions - cheerleaders, shoulders to cry on, pray groups, encyclopedias (me, not so much, but the others here). xoxo bunny Quote Link to comment Share on other sites More sharing options...
luvmydog2 Posted November 24, 2005 Share Posted November 24, 2005 Welcome to the site Robin. You will find lots of support here. We will laugh with you or cry with you, whichever you need. We also have good ears just to listen if you need to talk or vent. Let us know how we can help you as you travel this journey. Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted November 30, 2005 Share Posted November 30, 2005 Welcome, Robin! XOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted November 30, 2005 Share Posted November 30, 2005 Hello Robin and Welcome to the site. You will find much comfort, support and knowledge here. GOD BLESS!!!! Jamie Quote Link to comment Share on other sites More sharing options...
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