shineladysue Posted December 5, 2005 Share Posted December 5, 2005 Hi everyone, I'm asking for your positive thoughts and prayers to take us through this next week . Mike's last chemo treatments were with CPT-11 on the 10th and 31st of October. The CPT-11 made him sick from the very first day and he has had a hard time ever since. The problem he is having now is an unstable stomach and a cough that appears only when he eats or sleeps. The doctor started treating him for GERD, but even after two different meds.. Zantac and then Protonix, it didn't totally go away. Tomorrow, Dec. 6th he will get CT scans of chest, abdomen and pelvic. On Thursday he will see the pulmonologist, for the second time this week, in reference to the symptoms of coughing.. we may get his take on the scan results then. The following Monday we are scheduled to meet with the oncologist to discuss the scans and the next plan is to start him on Etopiside pills. There are a lot of if's ands and butts between tomorrow and then, so we will have to see how it all plays out. Please keep us in your prayers , please. I see a lot of people starting off this month and this week in particular getting scans and results. I've got my list of names close by and I want you to know that all of you are in my prayers. Love you all. Thank you for being here for us. Love, Sue Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted December 5, 2005 Share Posted December 5, 2005 Saying prayers for Mike. Quote Link to comment Share on other sites More sharing options...
ginnyde Posted December 5, 2005 Share Posted December 5, 2005 Sending prayers for only good scans for Mike. Quote Link to comment Share on other sites More sharing options...
CharlieD Posted December 5, 2005 Share Posted December 5, 2005 Prayers and good positive thoughts for Mike. God Bless. CharlieD Quote Link to comment Share on other sites More sharing options...
Ann Posted December 5, 2005 Share Posted December 5, 2005 Oh Sue, you can rest assured that I will be saying lots of prayers for great test results. I will also be adding some prayers in for you, asking God to also watch over you! Please let us know as soon as you get these results! Fingers crossed, positive vibes, good thoughts and lots of prayers!!! Quote Link to comment Share on other sites More sharing options...
LynneH Posted December 5, 2005 Share Posted December 5, 2005 Sue, I will be thinking "good scan" thoughts for Mike and some "stress relief" thoughts for you. Quote Link to comment Share on other sites More sharing options...
Ellen B. Posted December 5, 2005 Share Posted December 5, 2005 Praying for good scans, Ellen. Quote Link to comment Share on other sites More sharing options...
Kasey Posted December 5, 2005 Share Posted December 5, 2005 You have remained in our thoughts and prayers all this while, Sue. So we will step everything up a bit more for something good to come of this week. I have been wondering about Mike. Hugs to both of you. Love, Kasey Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted December 5, 2005 Share Posted December 5, 2005 Prayers for the best for the both of you. Quote Link to comment Share on other sites More sharing options...
janetg Posted December 5, 2005 Share Posted December 5, 2005 Prayers for good results are on their way. Janet Quote Link to comment Share on other sites More sharing options...
Fay A. Posted December 5, 2005 Share Posted December 5, 2005 Sue, Did they look for Thrush at the back of the throat? I had it and it made me cough a lot. (the Thrush had made its way to the epiglotis.) Quote Link to comment Share on other sites More sharing options...
palm Posted December 5, 2005 Share Posted December 5, 2005 I will be praying for Mike, as I know that prayers really do make a difference. Quote Link to comment Share on other sites More sharing options...
Patkid Posted December 5, 2005 Share Posted December 5, 2005 Sue, even if our paths were not so parallel we would would be with you................but we feel very close to you and Mike on this journey. Many many prayers and support on their way to you guys. Love Pat and brian Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted December 5, 2005 Share Posted December 5, 2005 prayers for good detective work and a solution to boot! Cindi o'h Quote Link to comment Share on other sites More sharing options...
J.C. Posted December 6, 2005 Share Posted December 6, 2005 Sue, Prayers for MIKE, Fay you took the words out of my mouth. White spots on the palate is an indication for thrush and very often brought on by inhalor like Advair. Will wait for good news. Hugs J.C. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted December 6, 2005 Author Share Posted December 6, 2005 Thank you to everyone for your loving words, prayers and support. They help more than you can imagine. Fay and JC , I will keep the Thrush idea in mind. He never had anything like that before and he doesn't cough except when he is lying down sleeping or when he tries to eat. He has a terrible time with belching when he eats and then it oftentimes results in him not being able to finish eating. This cough is a very high pitched wheeze. He has been listened to by 2 np's , his pulmonologist and his oncologist and they say his lung sounds clear. Hopefully the scans rule out scary stuff.. This disease is so complicated. sue Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted December 6, 2005 Share Posted December 6, 2005 Sue, Praying for an easy fix for Mike. Life can be so difficult. Continuing to keep everyone in my thoughts and prayers. Quote Link to comment Share on other sites More sharing options...
Nushka Posted December 6, 2005 Share Posted December 6, 2005 Prayers are on their way. It sounds like you have a full few days ahead. Best of luck and hope you find the cause so it can be stopped. Nina Quote Link to comment Share on other sites More sharing options...
J.C. Posted December 6, 2005 Share Posted December 6, 2005 Sue, I was just thinking of the position of the body while sleeping, another pillow? a more relax position while eating, not bending down at the waist perhaps?. So many things could bring those spells and the worry even before they start. J.C. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted December 9, 2005 Author Share Posted December 9, 2005 We went to the pulmonologist today, got the scan results and his explanation for the reflux and digestive problems. The scans show no significant change, butttttt..... they mention the "esophagus is encased and compresed by this mass" referring to the chest mass.. the doc says the esophagus is dialted at top an skinny at bottom.. ..I don't understand how if the tumor is unchanged that this new problem developed. The doctor tried to tell me that we are talking about a very compact area and a little change or shift can cause problems. In Mike's case, his lung has moved due to the fact he is missing a lung. I'm not explaining all this very well, but the fact remains it will require fixing. As for the Adrenal mass and lymph nodes , they remain unchanged... Next step is an appointment with a gastroenterologist and the likely procedure will be endoscopy and dialating the esophagus. The appointment is set for Dec. 29th... seems a long way off. In the meantime, we go to the oncologist next Monday, the 12th and we will get his take on it. Don't think Mike wants to start new chemo right now or at least until after Christmas. We will discuss that with him also. I'm not sure how we feel at this point in time. It appears that things remained fairly stable which is good, but the new problems he has developed are just another obstacle. Mike has this wonderful attitude. He was just elated that something can possibly be done to help the problem he is having. He just wishes it could be done yesterday. I will add to this thread or start another when we see the oncologist on Monday. I couldn't reach my edit button to edit this thread so I had to add to it. As always , my prayers to everyone. Love, Sue Quote Link to comment Share on other sites More sharing options...
Fay A. Posted December 9, 2005 Share Posted December 9, 2005 Sue, anytime there is lung surgery there is mediastinal shifting of some sort. This is a congested area, and a lot of us who have thoracic surgery end up with having to have our esophagus stretched or stented. Sometimes we develop hiatal hernias that result from shifting of the diagphram. Here is to hoping Mike gets some help soon, and that he can eat normally and not cough so much. Sleeping elevated helped me with the gastric reflux. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted December 9, 2005 Author Share Posted December 9, 2005 Thank you Fay. You always have a way of making us feel like we aren't alone in our challenges. We so much appreciate you sharing your knowledge and experiences with us. Luv ya, Sue Quote Link to comment Share on other sites More sharing options...
Patkid Posted December 9, 2005 Share Posted December 9, 2005 (((Sue, Mike))), This seems like encouraging news. We are praying that is the case!! No matter what, we are rooting for some symptom relief and continued stable tumors. Lots of love Brat Quote Link to comment Share on other sites More sharing options...
Don M Posted December 9, 2005 Share Posted December 9, 2005 Sue: I hope that Mike gets some relief with his reflux and coughing. It can be very annoying to say the least. I had a problem with that after my pneumoectomy and fortunatlely for me it went away after a few months. I hope Mike's oncologist and you all come up with a plan that will give good results. Enjoy your holidays. Don M Quote Link to comment Share on other sites More sharing options...
melindasue37 Posted December 9, 2005 Share Posted December 9, 2005 Sue, Thinking of you and praying that Monday will bring good news. Warm Hugs, Melinda Quote Link to comment Share on other sites More sharing options...
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