Patkid Posted December 23, 2005 Share Posted December 23, 2005 Hello, all, Firstly, you are all in our thoughts and prayers during this holiday season. I want to try to give you an update.............I won't drag you through the ugly details. Brian will be getting no more tx. Hospice will be contacted next week. He tried so hard and withstood more than any human being should have to. His bone marrow and blood are so depleted that even transfusions offer only very brief relief. He has been w/out a chemo break since Feb. He has been in the hospital and is home now. He has tons of pain meds prescribed and will enjoy the rest of his days tx free. His potassium and magnesium levels reached the critical mark and began to affect his heart. Onc says that further chemo will kill him very quickly. It is hard to let go of the tx routine. It has sustained us for 10 months and has become a lot of who we are. Now we are going to just be us. Brian's concern is telling the kids............we will wait till after Christmas. We have to negotiate w/ hospice because doc insists that Bri will need lab work and transfusions for the next couple weeks at least. But no more scans, chemo or the like. I don't care if hospice ever comes in............at least till I can no longer care for Brian. I am not doing okay Bri is his usual optimistic self. He asked the doctor about how long he may have left. Doc said, Brian you have outlived all expectations......Just keep on doing that. Then they hugged. Brian said he plans to continue to exceed expectations...... Since we are home, tho, he is very quiet and staying off to himself. I am sure he needs some alone time. I hope he doesn't need too long, cuz I need HIM. Anyway............I am just so sad and I feel at 'loose ends'.............. Thanks for listening. Brian and I are counting on Bill to watch over us. He promised and we trust him to keep his promise. More when I can. P Quote Link to comment Share on other sites More sharing options...
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