CharlieD Posted December 28, 2005 Share Posted December 28, 2005 Had a horrible week last week after second cycle of Paricalcitol and Gemcitabine. Called Clinical Trial Administrator and ONDOC Thursday for help in managing side effects. Doc put me back on Decadron and Zorfam that got me through Christmas, but wasn't doing the job. Acid reflux and nausea bad Mon and Today. Doc called today and pulled the plug on the Clinical Trail. She thought we were losing ground faster than gaining, Scheduled a CT Scan in three weeks to see where we are. She wants to look again after this poison gets out of the system. Hope it clears out soon so we can get back to the fight. I really had some weird side effects that I hadn't heard of or experienced before. Had terrible night mares almost to the point of being delirious. Woke up twice sleepwalking, once outside. Didn't take long to wake me up from that one at 10 degrees and me in Jammies. Funny now but not at the time. Feeling pretty good now. Can't keep much down but the Ensure and Ice Cream is keeping me going. Hope all is well with all of you. Been keeping up as much as possible. Praying for Brian, Mike and Addie and all the rest. Keep you advised. God Bless. ChrarlieD Quote Link to comment Share on other sites More sharing options...
Nancy B Posted December 28, 2005 Share Posted December 28, 2005 CharlieD, glad you are feeling better. Just keep taking care of yourself. I am praying for you. Hugs, Nancy B Quote Link to comment Share on other sites More sharing options...
Maryanne Posted December 28, 2005 Share Posted December 28, 2005 Oh Charlie that really sounds like a nighmare (no pun intended) I am so glad you are off that stuff. I hope you feel like yourself soon. Thinking of you and sending prayers for good results. Maryanne Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted December 28, 2005 Share Posted December 28, 2005 darnit, Charlie.. now we see what else comes down the pike? love, Cindi rest up and put this all behind you. Get strong. Quote Link to comment Share on other sites More sharing options...
Snowflake Posted December 28, 2005 Share Posted December 28, 2005 Didn't take long to wake me up from that one at 10 degrees and me in Jammies. (Bet the neighbors are glad you sleep in jammies and not nekid!) Guess it truly was a "trial" for you, sorry to hear of the ill effects. Nightmares are horrible side effects! Good luck in future endeavors! Becky Quote Link to comment Share on other sites More sharing options...
ginnyde Posted December 28, 2005 Share Posted December 28, 2005 Oh Charlie, I am so sorry this one caused all those 'weird' side effects. But, it may have done the trick. Hope that bad stuff gets out of your system pronto and you get your strength back before the dr. starts his next plan. Quote Link to comment Share on other sites More sharing options...
Leslie221 Posted December 28, 2005 Share Posted December 28, 2005 PHOOEY!!! Hopefully, now that you're out of it, the side effects will start to go away fast and you'll at least feel much better. Thank you for all you endured to be part of that trial, Charlie. Something important was learned for somebody somewhere thanks to you. Who knows? Maybe somewhere down the line you WILL benefit from this research. I sure hope so. Sending caring thoughts and strength, Leslie Quote Link to comment Share on other sites More sharing options...
Kasey Posted December 28, 2005 Share Posted December 28, 2005 Oh Charlie, I am so sorry this didn't work out the way you and all of us had hoped. Sounds like the onc will come up with something in the next few weeks. The CT results will be interesting to see, huh? Can't wait for that. Soon you should be back to eating and feeling even better. In the meantime, I will be thinking of you and praying for that magic bullet. Love, Kasey Quote Link to comment Share on other sites More sharing options...
Ry Posted December 28, 2005 Share Posted December 28, 2005 Well hell Charlie-- sorry you are back at the drawing board and wondering where to go from here. Clear your system and try to enjoy the short break. Quote Link to comment Share on other sites More sharing options...
bunny Posted December 28, 2005 Share Posted December 28, 2005 ugh, charlie. what a nightmare (er, no pun intended). I hope you keep feeling better and better. sorry it didn't do for you what we ALL hoped it would. hang in there, we're praying and pulling for you! xoxo amie Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted December 28, 2005 Share Posted December 28, 2005 Charlie,sorry this trial was tough on you.Hoping you get feeling better soon. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted December 29, 2005 Share Posted December 29, 2005 Ohhh, Charlie, I'm so sorry to hear that the trial was so rough on you. It sounds like Mike's experience with his last chemo. Sure hope you will soon be feeling better and can get back to treatment soon. Hope you know that Mike and I keep you in our prayers. Love, Sue Quote Link to comment Share on other sites More sharing options...
Kaffie Posted December 29, 2005 Share Posted December 29, 2005 Charlie, I'm so sorry you didn't get the results you were hoping for. Hope you get back on your feet soon. Bless your heart for thinking of others while you are so ill, what an unselfish, kind man you are. Kathy Quote Link to comment Share on other sites More sharing options...
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