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suki & bunny update


bunny

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suki first. we saw the onc. yesterday, and she's starting back on Tarceva today (50mg., going up to 100mg. over the next 4 weeks). they'll monitor her by phone unless she starts having more complications that she did before, and she'll see her surgeon and have a CT scan in March.

no more blood thinners, period. she's now had serious, life-threatening complications on both coumadin and low molecular weight heparin, so it's just not a match. rather than live with the very real risk of another bleed, both suki and her doctor would rather live with the somewhat lesser risk of a blood clot. she has the IVC filter, which should catch the more likely clots coming up from her legs. if, god forbid, she gets some kind of clot in the future, they will revisit but for now, no blood thinners. my mom is happy with this - it feels safest to her.

as for her vision, there is no guarantee it will come back, but every reason to believe it will. (I love it when docs talk like that :roll: ) she can't drive or read, which are huge limitations for her. I know I inadvertantly snuck up on her a couple times this weekend ( :evil: ), so it looks like her right side peripheral vision is still pretty shot. she'll have an MRI on Fri. to see how the stroke is healing. her spirits have been low since the bleed happened, but she's sounding a little better now that there's been a decision re: the next steps for her. she had a great Christmas, and is looking forward to going out with friends for new year's eve.

as for me, I apologize for not being as much of a presence here as I have been. I am truly with all of you in my heart and prayers all the time. I really don't want to whine, because I know there are so many people here in more dire straits than I am, but I am feeling a little beat up and completely drained. this year was horrific. as if mom's struggle with LC wasn't enough, I lost a couple really good friends and had my share of family drama (as we all do, I know). my job also seemed more stressful than it used to, but I guess that's to be expected.

I thought I was pretty resiliant but it seems to have taken its toll. I have no energy and am tired all the time. I'm sad alot of the time. turns out I am B12 deficient (who knew?) so I am hoping once that gets resolved I'll feel better. on the upside, my relationship with my partner, Dave, is stronger than ever and I may actually wrangle a couple of kids out of him sooner rather than later. :wink: trust me, you'll be, if not the first to know, among the first several to know. :lol:

you are all my rock, I would truly be lost without my family here. you've helped me get through this year and, I believe, helped my mother be the survivor that she is, too.

xoxo

bunny

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Bunny,

I am glad to hear that things are improving for your mom. Not being able to read has to be really hard (coming from an avid reader). I think it has been a really hard year for a lot of people and it does just get you down. It's hard enough to just have to deal with someone you love being sick, it's not like every other problem is considerate enough to just go away. It's good you found out about the B-12. I've been deficient since the birth of my son. Ken gives me monthly shots. I can really tell when I am getting low, so make sure you stay on top of it, cause you need all the energy you can get. Good luck.

Karen H

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Aime,

Glad things are going in the right direction with you mom. She is a trooper. Hope she gets her version problem corrected soon, must be very hard on her. You need to takes care of yourself also. We all know how hard it is on caregivers as well. Just take it one step and one day at a time. Hope your mom and you have a safe and Happy New Year with renewed spirits. Prayers for the best.

Rich

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Sounds like encouraging news for your mom. Glad she had a good holiday and I am praying that she continue to improve- and quickly!

As for you, my dear- drop me an e-mail or better yet give me a call. I've been there- done most of it- am going thru it now- or went thru it once before....and I'm a real good listener too. :wink:

(((Hugs)))

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Bunny,

you know Alan and I love you. Many hugs your way

I know what caring for a loved one with this dreaded

disease can do to you mentally. I have had many

sleepless nights. (still do)

Stay strong my friend, your LCSC family is here

for you as you have been for many of us.

lots of love

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Thanks for updating us on you and your mom. Is your mom seeing a specialist regarding her vision? If not, she should. I had a client that was blinded by a stroke during childbirth. She did gradually recover some of her vision but it took over a year. So tell Suki to be patient, it may not happen quickly but hopefully it will happen.

As you have probably guessed, we love kids. Maybe we can throw you a virtual baby shower. :lol: Try to put the sad times behind you and have a wonderful New Year.

Rochelle

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Hi there Bunny,

I was just thinking that it was about time for an update on Suki. Both of you have had a long hard year. It's not any surprise that you are worn out. Hope you know that prayers are coming your way. Praying for Suki to do well with her new plan and that her eyesight will improve. As for you, I hope you can find some quality time for Bunny and if a baby or two is in your dreams, I will be praying for those dreams to come true. And , Bunny, thank you for all that you do . You've been a wonderful , strong, loving presence here. Take care and keep us updated.

Love,

Sue

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Hello Bunny,

Thank you on the update on your Mom, glad that the

Christmas season was good for her and that she feels

up to the new treatment, her vision should come back

but it will take a while before clearing.

For you, take care after the year you just had, no

wonder you are tired and stressed out.

Get in shape fast that is what being young is all

about.

Best wishes for a Happy and Merry Year.

xoxo

Jackie.

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:P:P Did I hear Bunny and BABIES!!!!!!!!!!!!

WOOOOOOHOOOOO!!!!!!!

Thanks for the Suki update. I am hopeful that vision will continue to improve. It is a bummer to not be able to drive or read.

Your weekend sounds like a winner to me. I can't get the vision of Bunny Babies outta my mind :lol: !

Love to you and Suki!

Kasey

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Hi Bunny,

I am happy they have a plan for your mom. She really needs some encouagement that things will look up. I pray her eye site returns.

As for you, did I hear the patter of baby bunnies??

Hmmmmm I hope so.

Please take care of yourself and I hope the B12 helps and your energy returns.

Looks like you need some Amie time again. Take care of yourself, and know how much you are loved here.

Maryanne :wink:

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Bunny,

All sorts of emotions in that post! Kind of like the whole year for you, huh? BTW, did you have to hoof it during the strike? I thought about you every time I'd watch the news updates.

Suki's vision problem is such a bummer. I know that I'd go up a wall if I couldn't read or see the way I wanted to. It's those frustrating effects I think that are so hard to deal with day in and day out. Hopefully, she'll turn to books on tape, kick up her heels on the couch and listen away.

Sounds like medical plans are better for her now, too. Hoping this year ends on a calmer note and that both of you start getting strength and confidence back.

Bunny babies! My new mantra! :D

Leslie

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Man, your mom is one tough cookie, that is fer shure! That not being able to read thing would drive me batty as well! Could she sit through books on tape? Maybe that could keep her mind occupied.

It seems like you've been beaten up pretty soundly as well lately. Glad you've got a good man and a great mama to take care of you. Remember the first part of the caregivers oath: "I will take care of myself, or I'm no good to anyone else..." Wait, we do have an oath don't we? Maybe we should establish a secret handshake, too, just for fun.

Seriouly, glad to see your update. You've been a source of strength for me many times over this past almost year. Love to you and Suki!

:) Kelly

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Amie: I hope your mom gets her eyesight back. It must be really frustrating for her and would make it hard for her to resume her business. I guess I would lean to taking the tarceva rather than blood thinners too, if I were in her position. I would have to stop eating garlic thouhg and that I would not like at all. Babies on the horizon, eh? I am sure you will make a great mother.

I hope next year is a better year for you all.

Don M

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I'm not at all surprised that you are

completely wiped out. You and your

mother have been through so much.

Hopefully once your mother eye sight

gets better you and Dave can take a

little vacation and get rejuvenated

Lets hope next year is a better

year for you both

Kathy

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you guys are just the best. there is a physical lifting, on the inside, that I experience when I read your posts and PMs. I think I may have to print them out and carry them around with me.

as for the babies, they're in god's hands...but I am more than happy to help him out that one :lol:

xoxo

bunny

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