CharlieD Posted January 7, 2006 Share Posted January 7, 2006 Had no idea this was going to be sooooooo hard. Having a super hard time getting this paracalcitrol and gemcitabine out of my system. Doc put me back on Decadron, only 4-8 Mg per day but can't seem to shake the side effects. Wed Doc advised me to get my whiney butt back to Roswell Park for a quick look/see. She was concerned about pneumonia or some sort of restriction in the esophagus causing severe acid reflux, vomiting and general feeling of extrene fatigue, nausea and just butt whipping sick. Xrays looked good, significant improvement in activity and pleural effusion reduction. She cut the Decadron in half and prescribed a stronger acid reflux medication, nexium. Got back last night and things seem to be a little better today. Lost 21 pounds in two weeks, but appear to be gaining a little back slowly but surely. She mentioned striking a balance in the adrenal gland output of hormones as the biggest challenge. New to me, but not surprising. Guess it's time to get out of the pity mode and get my butt over to the Pub for a libation. Good nights sleep might help a little too. Soooo, onward and upward for this old codger. Hang in there all you guys. We gonna put a whuppin on this bugger yet. Git R Done. God Bless ya , one and all. CharlieD Quote Link to comment Share on other sites More sharing options...
ginnyde Posted January 7, 2006 Share Posted January 7, 2006 Charlie, hope this means you've turned the corner. Quote Link to comment Share on other sites More sharing options...
kimmek Posted January 7, 2006 Share Posted January 7, 2006 Wow Charlie you have been put thru the ringer. Here's to you getting better everyday. Kim Quote Link to comment Share on other sites More sharing options...
Kasey Posted January 7, 2006 Share Posted January 7, 2006 Sorry you have been feeling so crappy, Charlie. Sure hope you get all evened out and soon. That trial was sure something!!! Hard to imagine how anything like that could actually HELP anybody, huh? I've been waiting here in the Pub for ya. I will even spring for something a little better than rotgut. Sounds like your poor tummy couldn't take that right now. Been thinking of ya, Charlie. Love, Kasey Quote Link to comment Share on other sites More sharing options...
nikkala Posted January 7, 2006 Share Posted January 7, 2006 I Love your attitiude. GIT R DONE! Sending prayers things will continue turning for the better. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted January 7, 2006 Share Posted January 7, 2006 As good as it is to hear from you... so sad to hear you have been feeling so cruddy there all by yourself.. have you been curled up in a ball? Dangit man. Can't say I haven't been thinkin' about you though. Plenty! C'mon over to the pub, hun, all of us'll take good care of you. Got a nice light, soft, patchwork quilt to wrap you in. You can hang out on the couch! How 'bout it? love, Cindi o'h Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted January 7, 2006 Share Posted January 7, 2006 Sorry Charlie,that you are having a rough time getting to feel better.I hope the dr.can figure it out and correct it soon for you. Quote Link to comment Share on other sites More sharing options...
Nancy B Posted January 7, 2006 Share Posted January 7, 2006 Charlie, hope you feel better real soon. Hugs, Nancy B Quote Link to comment Share on other sites More sharing options...
Fay A. Posted January 7, 2006 Share Posted January 7, 2006 Hang in there, Charlie. I know those words don't sound like much, but they're all I have to offer right now. Except that when I have severe acid reflux it sometimes helps a little if I sleep sitting upright in a recliner, or propped up with additional pillows. Eating small amounts instead of "filling up" can also help things. Just wishing you didn't have to go through all of this. Quote Link to comment Share on other sites More sharing options...
Ry Posted January 8, 2006 Share Posted January 8, 2006 Glad to see you still have your sense of humor. You head to the pub and we'll all meet you there. Hope the poison clears your system soon. Quote Link to comment Share on other sites More sharing options...
J.C. Posted January 8, 2006 Share Posted January 8, 2006 Charlie, Hard time for you. But you will get back in shape fast and good with all the ministration you will get at the Pub. All soothing drinks reversed for you. xoxo Jackie Quote Link to comment Share on other sites More sharing options...
CharlieD Posted January 8, 2006 Author Share Posted January 8, 2006 DON'T WANT SOOTHING DRINKS, WANT ROTGUT WHISKEY FIREWATER. GIT R DUN!! Quote Link to comment Share on other sites More sharing options...
Ry Posted January 8, 2006 Share Posted January 8, 2006 Geez Charlie...it's not even 9:00 yet. I think Cindi's still sleeping...but good to know you'll be the first customer of the day when the door opens. Does this mean you feel better today??? Quote Link to comment Share on other sites More sharing options...
Kasey Posted January 8, 2006 Share Posted January 8, 2006 Just lovin' ya, Charlie!! ROTGUT it is ! Love, KAsey Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted January 8, 2006 Share Posted January 8, 2006 Go Charlie!!! Jamie Quote Link to comment Share on other sites More sharing options...
CharlieD Posted January 8, 2006 Author Share Posted January 8, 2006 I do feel considerably better today and each day a little better. I think cutting the decadron in half and the new nexium crapola has got me on the right track. Anyway, Git R Done! CharlieD Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted January 8, 2006 Share Posted January 8, 2006 Good deal, Charlie! Then make your presence in the pub known. I'll put away your couch and put up a stool so that you can drink with the rest of us kids... see: General Forum. The Pub is Open! love, Cindi o'h! Quote Link to comment Share on other sites More sharing options...
Donna Posted January 8, 2006 Share Posted January 8, 2006 Charlie..Glad you are feeling better..I will keep the prayers coming.. Donna Quote Link to comment Share on other sites More sharing options...
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