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Rob's Coming Home this week after 49 Days!!!!


mscyn4u

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My husband battles after his lobectomy on Jun 26 hopefully are coming to an end. :) It sounds like he will be discharged tomorrow, if the fluid levels in his lungs stay at the current level. He had to have a PIC line put in yesterday (due to the bacterial infection he contracted from having a chest tube soooo long) so he can receive long term antibiotics. They also have to reassess his need for oxygen. The kidney specialist has put him on a restricted fluid regimen, because his body just keep producing or hanging on to fluid, which why I believe he has problems breathing. Then yesterday on of the doctors said he has some emphysema, how does one have some emphysema??? along with lung cancer??

The bacterial infection took him for a loop, I thought he was dying from cancer as he was wasting away. He has lost over 50 pounds, they want him to eat over 2400 calories a day. I am sure his chemo follow-up will be put off for awhile. The home health nurses will be taking care of him at home for awhile. However they infectious disease doctor and the surgeon are stressing if he gets a fever, or more fluid builds up where the bacterial infection is located, he will have to have another surgery to remove the surrounding tissue. Please pray this doesn't happen. Does anyone know of any other lung cancer patient that developed a bacterial infection????

I believe he will heal better being home at least mentally he will get better and I will cook all the fattening things I can to get weight back on him. When you are stronger mentally, you get better physically. This has been a nightmare for the both of us I am sooooo thankful it has ended and we can get on with our war against this awful disease!!!!

Thanks for your prayers, however, don't stop them, we all need them constantly.

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I know - it feels like you've won a major battle just by him getting to come home! :) Let alone think about fighting any others - I know when I got to come home (14 days, not 40 or 50!!) I felt like "let come what may, but let me do it from home, not in a hospital" - the hospital felt like prison to me.

I had a fever for a few days in the midst of my ordeal - they never figured out why but it went away. Makes you wonder about the infection thing. From what I understand, a certain percentage of patients get infection from the hospital/operating room - that is usually staph infection -

Praise the Lord he is coming home - I feel confident the antibiotics will do the job and that he won't have to return for surgery - he survived for so long fighting that infection withOUT antibiotics - now WITH them he will probably do well. I will pray for him on this -

and pray for us all. Time go drain the water off my broccoli sprouts. :)

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Thanks for everyone's support, last night there was a mix-up he had antibiotics to be given at 10 p.m and at 10 there was no nurse and I called her and she stated she was waiting on me to call her. Then I asked if she had the antibiotics and she told me they were delivered to our apartment. NOT!!!

I had my daughter here all afternoon waiting for the deliveries, for the Oxygen equipment and the meds. Well the supervisor for the Home Health company contacted the courier and they told them they left it at my apartment and it was signed by someone that doesn't match a name in my apartment. After late night calls, they contacted the apartment manager via emergency messaging and the courier left it at the office. They did not try to come into the gate to leave it. The manager had to get up out her bed and go open the office and get it here to us around 11:30 pm, well the nurse showed up at 12:00 by the time she finished hanging it it was 12:45 a.m and we (she and I) had to do initial paperwork, until 3:45 a.m, she then went out to her car and slept (I had invited her to the sofa, but she said that was ok) to give him his 6:00 dose at 5 a.m, so I have had about 3 hours sleep today.

He also frightened me a bit as he had a fever of 100.7 and the infectious disease doctor and the surgeon warned us that if he gets another high fever he will have to have surgery to remove the tissue of the infected area. But this morning it was down to 99.7. Please pray the surgery does not have to happen, my husband has lost about 50 lbs and is sooo very fragile :cry: He did eat a good breakfast at home this morning and enjoyed being able to just lay down beside me for a few hours. We are taking things one day at a time and believing he will rebound like Wolverwine (his favorite character in X-Men) :)

Again thanks for your words of encouragement and support, may your battles be fought with God's strength and healing powers also...

((((((((((((((hugs to all)))))))))))

Cynthia

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