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I don't know what to think. I spoke to the clinical trial nurse yesterday and she told me that everyone on the drug had mental confusion. Wow! I was so bounced up. Then I got home.

It is unbelievable how fast things are changing. The confusion has gotten intense. He is having difficulty keeping his balance and almost fell a couple of times yesterday, but was able to grab on to something. He even told me this morning he did not think he should drive anymore. I am so glad he realized this himself. The biggest change is his speech. He is speaking in a very low tone and the words are just kind of running together. It just hit me, could he possibly have developed brain mets? The speech just started yesterday, the unsteadiness a few days ago and getting worse.

I don't know what to think. Disease progression, clinical trial drug, brain mets? We will probably get some answers tomorrow. If anyone thinks this sounds familiar please let me know. Thanks.

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When Alan had his brain mets he walked as if he was drunk, he had no balance at all. I do not want to alarm you, but this is something to discuss with the Drs asap and for peace of mind I would insist on a brain MRI. Alan had a solitary mass they were able to make go away with radiation treatments. It was faily big 3.0 x 3.5 cm (only one) and he is doing very well as of now. I will pray you get all your answers tomorrow, if you can I would even call them today and prep the Dr. on this situation.

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Karen -

My mom had some of the same symptoms - we had a brain scan which was clear, but it was caused by a tumor growing on the neck and putting pressure on the spinal cord -- we were able to radiate it the first time and the symptoms went away. Prayers that it is something treatable...and quickly.

Love to you,


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