KarHart Posted February 1, 2006 Share Posted February 1, 2006 I don't know what to think. I spoke to the clinical trial nurse yesterday and she told me that everyone on the drug had mental confusion. Wow! I was so bounced up. Then I got home. It is unbelievable how fast things are changing. The confusion has gotten intense. He is having difficulty keeping his balance and almost fell a couple of times yesterday, but was able to grab on to something. He even told me this morning he did not think he should drive anymore. I am so glad he realized this himself. The biggest change is his speech. He is speaking in a very low tone and the words are just kind of running together. It just hit me, could he possibly have developed brain mets? The speech just started yesterday, the unsteadiness a few days ago and getting worse. I don't know what to think. Disease progression, clinical trial drug, brain mets? We will probably get some answers tomorrow. If anyone thinks this sounds familiar please let me know. Thanks. Quote Link to comment Share on other sites More sharing options...
Miami Janet Posted February 1, 2006 Share Posted February 1, 2006 You didnt mention what the name of the drug was??Have they done a brain scan to see if anything is in the brain. Hope you get some answers soon. Janet Quote Link to comment Share on other sites More sharing options...
dchurchi Posted February 1, 2006 Share Posted February 1, 2006 Karen, When Alan had his brain mets he walked as if he was drunk, he had no balance at all. I do not want to alarm you, but this is something to discuss with the Drs asap and for peace of mind I would insist on a brain MRI. Alan had a solitary mass they were able to make go away with radiation treatments. It was faily big 3.0 x 3.5 cm (only one) and he is doing very well as of now. I will pray you get all your answers tomorrow, if you can I would even call them today and prep the Dr. on this situation. Quote Link to comment Share on other sites More sharing options...
Patkid Posted February 1, 2006 Share Posted February 1, 2006 (((Karen)))) Brian had similar symptomology as his liver progression worsened. There were toxins not being filtered out that were running around his system. I am praying that Ken's symptoms are from a drug that can be stopped. Love and Prayers, P Quote Link to comment Share on other sites More sharing options...
hollyanne Posted February 1, 2006 Share Posted February 1, 2006 Karen - My mom had some of the same symptoms - we had a brain scan which was clear, but it was caused by a tumor growing on the neck and putting pressure on the spinal cord -- we were able to radiate it the first time and the symptoms went away. Prayers that it is something treatable...and quickly. Love to you, Holly Quote Link to comment Share on other sites More sharing options...
Suzie Q Posted February 1, 2006 Share Posted February 1, 2006 Call the doctor NOW! He needs to be evaluated. This could also be a stroke. Quote Link to comment Share on other sites More sharing options...
trishnmiller Posted February 1, 2006 Share Posted February 1, 2006 Sounds like brain mets..specifically the gait and speech so he needs an MRI ASAP..Blessings and prayers. Trish Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.