KarHart Posted February 3, 2006 Share Posted February 3, 2006 First, I want to thank everyone for all the wonderful support and prayers. I was really in panic mode the other day and it really helped to read everyone's post. Pat and Peggy, thank you. I so much now understand what you have been through. Your encouragement and understanding really touched me. I am so lucky that Ann lives here in the Melbourne area. She has been wonderful. It is good to be able to talk to someone and her experience has been like a mirror. She has already filled me in on a local hospice. I am trying to get set up with them now, have to get Moffitt to order it. Ken is off the trial drug. The tumors in his liver are progressing at a terrible rate. The index tumor was not measured, the report said it merged with 2 others. There are just so many, it seems mostly in his right lobe, but also many smaller ones in the left lobe of the liver. His BP was very high, 175/105. I am concerned that he may have had a small stroke on Tues. That was the day he was so confused, really out of it, was staggering, and his speech became slurred. However, Weds. morning he was back to "normal". The dr. was not concerned, just said to start taking baby aspirin. I am just worried that he could have a stroke that would destroy what quality of life he has left. Does anyone know of preventive treatment for strokes? Does it seem like he may have had one? Again, the caring that has been shown has been such a help. I really did not even realize how much I needed it. Thank you so much. Karen H Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted February 3, 2006 Share Posted February 3, 2006 Karen, All I can think to say is damn. Quote Link to comment Share on other sites More sharing options...
francesbean Posted February 3, 2006 Share Posted February 3, 2006 Prayers, prayers, prayers. Quote Link to comment Share on other sites More sharing options...
karen335 Posted February 3, 2006 Share Posted February 3, 2006 Hi Karen, I am sorry your news was not better. I was praing Ken could stay in the trial and it was working for him. Have you considered RFA (Radiofrequency Ablation?) It was originially approved by the FDA for tumors in the liver. I don't want to interfere with your decisions, only maybe give you other options to look into...There is a lady there in Florida, Trish. Her husband had the RFA for the liver and is going in next week for the lung. I am glad Ann is there to help you. She is such a wonderful lady and support. I hate this disease. Where is the cure? Sending you and Ken prayers on whatever decision you choose... God Bless, prayers and gentle hugs, Karen Quote Link to comment Share on other sites More sharing options...
KarHart Posted February 3, 2006 Author Share Posted February 3, 2006 Hi Karen, Actually, I asked the dr. yesterday about RFA. He was highly doubtful but said he would talk to the radiologist. Apparently, there are too many. I am pretty sure that he has too many for CK and they are too big. I had looked into that a year ago when there was only one. I told the dr. I knew that it would not cure him, but it seemed that if they did the big ones it could at least buy more time. Sometimes it is just hard to accept that there is nothing left, but I am trying. Karen H Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted February 3, 2006 Share Posted February 3, 2006 God bless your heart. Quote Link to comment Share on other sites More sharing options...
Miami Janet Posted February 3, 2006 Share Posted February 3, 2006 Hi Karen, So sorry things are going poorly for yur husband.This is such a rough disease for patients and families as well. Prayers for peace and strength for you and your husband Janet Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted February 3, 2006 Share Posted February 3, 2006 Karen, This is not the news I wanted to hear. Prayers continue for a miracle and for peace, comfort and strength during the coming weeks and months. Glad that you have support close by. We are here for you to lean on. Take care. Quote Link to comment Share on other sites More sharing options...
Carleen Posted February 3, 2006 Share Posted February 3, 2006 ((((((((KAREN))))))) Boy this news just took the wind right out of my sails. I am so very very sorry Karen. I too looked into RFA for my husband's liver, and was told the same thing about there being too many. I was told they don't do it for livers with more than 12 lesions. I don't have any advice on stroke prevention, but I will keep that in my prayers for you. Karen, you and Ken are in my prayers always, and I pray that hospice is a blessing and a comfort to you both at this time. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted February 3, 2006 Share Posted February 3, 2006 Hi Karen. Sad to hear the latest with Ken. Ask about Plavix. I know it helps to keep the blood from sticking together. I was put on it after a heart attack, but it kind of seems like heart and brains are both affected by plaques that break off. Will HBP meds help? Glad you have Annie Roo close by too. Hang in there, Karen. Cindi o'h Quote Link to comment Share on other sites More sharing options...
Darci Posted February 3, 2006 Share Posted February 3, 2006 Karen, please know that so many people are thinking of you and Ken during this time. Reach out if you need help and support. Quote Link to comment Share on other sites More sharing options...
bunny Posted February 3, 2006 Share Posted February 3, 2006 oh, sweetie. right about now is when I start to feel so useless to say anything that might you!! just know that my heart is with you and Ken. he's in such loving hands (yours and gods!). please let us know how we can support you. xoxo amie Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted February 3, 2006 Share Posted February 3, 2006 You both are in my thoughts and prayers. Quote Link to comment Share on other sites More sharing options...
Treebywater Posted February 3, 2006 Share Posted February 3, 2006 I am just so sad to read this news. Quote Link to comment Share on other sites More sharing options...
stand4hope Posted February 3, 2006 Share Posted February 3, 2006 Karen, I know how much this hurts. I will join Tina in a prayer for a miracle. God bless you, Peggy Quote Link to comment Share on other sites More sharing options...
Don Wood Posted February 3, 2006 Share Posted February 3, 2006 The baby aspirin should help. Also, as mentioned, Plavix is worth checking into. I am on it for heart, but the stroke preventives are the same as for heart preventives. Don Quote Link to comment Share on other sites More sharing options...
ginnyde Posted February 3, 2006 Share Posted February 3, 2006 Oh Karen I am so sorry about this news. Let us know how we can help you. I agree that the baby aspirin should help prevent a stroke. Quote Link to comment Share on other sites More sharing options...
SBeth Posted February 4, 2006 Share Posted February 4, 2006 Dear Karen, I'm so sorry for all you are going thru. I'll be keeping you in my prayers. Love, Quote Link to comment Share on other sites More sharing options...
Don M Posted February 4, 2006 Share Posted February 4, 2006 Karen, you and Ken have my prayers. Don M Quote Link to comment Share on other sites More sharing options...
RandyW Posted February 4, 2006 Share Posted February 4, 2006 Saying Lots Of prayers for you. High Blood Pressure meds Metroprolol or Benicar HRT. Just Thoughts. Many prayers Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted February 4, 2006 Share Posted February 4, 2006 Praying. GOD BLESS!! Jamie Quote Link to comment Share on other sites More sharing options...
Ry Posted February 4, 2006 Share Posted February 4, 2006 I am sorry that it is time for hospice. They should be a big help to you both. Quote Link to comment Share on other sites More sharing options...
jdjenkins Posted February 4, 2006 Share Posted February 4, 2006 Dear Karen, I'm so sorry to hear this news. I hope hospice will be able to bring you both some peace and comfort. God Bless you both. Denise Quote Link to comment Share on other sites More sharing options...
paddy Posted February 4, 2006 Share Posted February 4, 2006 Karen, I am so sorry to hear this news. Paddy Quote Link to comment Share on other sites More sharing options...
Maryanne Posted February 4, 2006 Share Posted February 4, 2006 Karen, so sorry to hear the news about Ken. Pryaing for a miracle... I feel so bad I wish I could do something to help...all I can do from here is to send prayers. Maryanne Quote Link to comment Share on other sites More sharing options...
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