shineladysue Posted February 5, 2006 Share Posted February 5, 2006 It's Sunday, Feb. 5th and Mike came home yesterday. I am very beside myself this am. He is coughing as bad as ever. I'm not happy with the term the "new normal"... what does that mean and why. Okay, I'm venting.. We will be back to see the doc tomorrow if not sooner. Waaaaaaaaa........ We won't switch doctors. He has had this one for 5 years and he has given us 5 years to gain confidence in him, but this time he needs to do better or if he can't do better , he needs to explain better. Thank you guys. I'm really venting this morning , but as I write this the tears are falling and I feel like I'm going to burst wide open with frustration. Love you all. Keep the prayers coming that we can fix this.. Love, Sue Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted February 5, 2006 Share Posted February 5, 2006 Sue, I am so sorry to hear that he still isn't improving. Here is the list of what Charlie was given for his cough: Tessalon Pearles Cough medicine Prednisone Allegra Pain medicine (hydrocodone) Antibiotics An inhaler--can't remember the name of it right now. He went for a couple of weeks without improving and then started slowly improving. Don't know if this helps you at all. I wish I could do something to help. I understand what you are feeling. Quote Link to comment Share on other sites More sharing options...
Patkid Posted February 5, 2006 Share Posted February 5, 2006 (((((((((((Sue)))))))) ((((Mike)))) I wish I could offer some words of wisdom ~ I can only offer my prayerful, faithful support. Love Pat Quote Link to comment Share on other sites More sharing options...
shineladysue Posted February 5, 2006 Author Share Posted February 5, 2006 Tina, Mike is on Prednisone, Tessalon Pearles, Tussinex Suspension, Zithromycin, Flovent inhaler, and Nebulizes with Xopenex+ mucomyst . In the hospital they put him on two different antibiotics.. codeine plus all the rest. His cough is non productive , but it sounds like stuff is down there. His case is a bit different in that he has a stent down in his trachea that may be blocking phlegm from coming up.. don't know.. hope that's not the case. Anyhow, thanks for taking the time to share what Charlie is on and I'm so glad he is improved. sue Quote Link to comment Share on other sites More sharing options...
hopeandstrength Posted February 5, 2006 Share Posted February 5, 2006 Oh Sue, I'm late with this, but sending prayers. I hope things improve soon. Cathy Quote Link to comment Share on other sites More sharing options...
Don Wood Posted February 5, 2006 Share Posted February 5, 2006 Prayers continue. Don Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted February 5, 2006 Share Posted February 5, 2006 Sue, Continuing to pray for you both. Quote Link to comment Share on other sites More sharing options...
Calintay Posted February 6, 2006 Share Posted February 6, 2006 SENDING PRAYERS FOR THE BOTH OF YOU! Quote Link to comment Share on other sites More sharing options...
J.C. Posted February 6, 2006 Share Posted February 6, 2006 Prayers still going for Mike and for you. Hugs Jackie Quote Link to comment Share on other sites More sharing options...
Fall54 Posted February 6, 2006 Share Posted February 6, 2006 Dear Sue, You are an amazing woman. Dealing with what has been going on with Mike and also being here for everyone else! You bet you and Mike have my prayers. Please let us know what happens at the Dr's. God Bless you both, Jane Quote Link to comment Share on other sites More sharing options...
stand4hope Posted February 6, 2006 Share Posted February 6, 2006 Sue, Like I said in my PM, I'm stilling hugging and won't let go. Love, Peggy Quote Link to comment Share on other sites More sharing options...
Patkid Posted February 6, 2006 Share Posted February 6, 2006 Sue, I am right there with you. Hugging and supporting and praying. Love P Quote Link to comment Share on other sites More sharing options...
joanie55 Posted February 6, 2006 Share Posted February 6, 2006 Would like to add my best wishes and prayers. Joan Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted February 6, 2006 Share Posted February 6, 2006 Sue, Isn't it great that we have somewhere like LCSC to vent and not feel ashamed or just plum crazy? Vent on sista... I pray that Mike's coughing eases up!!! Quote Link to comment Share on other sites More sharing options...
Maryanne Posted February 6, 2006 Share Posted February 6, 2006 Thinking of you both and sending prayers to heal Mike's coughing. Maryanne Quote Link to comment Share on other sites More sharing options...
Ann Posted February 6, 2006 Share Posted February 6, 2006 Sue, you know that you and Mike always are in my prayers. I pray that the doctor can find something that will help Mike. Please take care of yourself during all of this. Quote Link to comment Share on other sites More sharing options...
KarHart Posted February 6, 2006 Share Posted February 6, 2006 Sue, how terribly frustating. I hope Mike's doctor can give you some helpful info today. Prayers continuing. Karen H Quote Link to comment Share on other sites More sharing options...
Treebywater Posted February 6, 2006 Share Posted February 6, 2006 (((((((((Sue))))))))) I can hear your panic... let us stand in it with you, ok? We're here. Quote Link to comment Share on other sites More sharing options...
karen335 Posted February 6, 2006 Share Posted February 6, 2006 Sue, Sending lot's of prayers along with everyone else... Have you tried or maybe ask the doctor about Muselex. It breaks down the decongestion in the chest, Maybe he would be able to cough up what is there. Just a suggestion, ask the doctor first though... Hugs, Karen Quote Link to comment Share on other sites More sharing options...
shineladysue Posted February 6, 2006 Author Share Posted February 6, 2006 It's Monday, Feb 6th... Took Mike back to the doctor.. to make a long story short... The doctor says that the cough, the slight fever and the sob are all consistent with disease progression. He says they will remain with him. There is also an ongoing infection that he is trying to treat. Currently he has him on Levaquin and Zithromycin.. He increased the dosages of some of his meds, added the xtra antibiotic and sent us over to get another chest xray. The only chance of doing chemo is if the infection clears and he gains strength. He's not a candidate for chemo now. The news doesn't sound very comforting does it? I'm trying to accept this and deal with it. I know I will , as many of you that have gone before us have done. Right now I don't feel like I can put one foot in front of the other. Please know that all of your prayers, well wishes, pms, email etc. have helped very much. I know that whatever we are going through , you all understand. Thank you. Love you. Love, Sue Quote Link to comment Share on other sites More sharing options...
KarHart Posted February 6, 2006 Share Posted February 6, 2006 Sue, I know that was hard to hear. Hopefully, they can get the infection under control and Mike can continue treatment. Sending more prayers. Karen H Quote Link to comment Share on other sites More sharing options...
Carleen Posted February 6, 2006 Share Posted February 6, 2006 ((((((SUE)))) I continue in my prayers for you and Mike. I pray that his infection clears and chemo can be resumed. Prayers for healing and for that cough to lessen. I know how hard it is to watch the person you love hurting, and you just want to do something to take it away. Vent all that frustration and bad feelings out with us anytime. We care and we love you. I wish I could put my arms around you and make your pain go away too. Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted February 6, 2006 Share Posted February 6, 2006 oh Sue, So sad to hear that Mike is struggling so. Will continue the prayers for him and you. Cindi o'h Quote Link to comment Share on other sites More sharing options...
tess Posted February 6, 2006 Share Posted February 6, 2006 Dear Sue, Yes, we know what you are going through and we know how hard it is. I'm still praying for you both too! Praying that Mike can get comfort and stop all that coughing! Quote Link to comment Share on other sites More sharing options...
Patkid Posted February 6, 2006 Share Posted February 6, 2006 I hate that you are living this. I am praying my butt off. Love and hugs Pat Quote Link to comment Share on other sites More sharing options...
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