Shar Posted February 20, 2006 Share Posted February 20, 2006 Hi Guys, Just wanted to know if anybody out there has experienced losing their hair taking Tarceva. I have had a mass of sores on my scalp for a few months now, they seem to be healing at the moment but taking my hair with them. As the sores come off the scalp my hair goes with them!! Right now I have two big bald patches and the rest of my hair is thin. My oncologist said the rash on my scalp was severe, but the hair loss was unexpected to me. Just as I think I have all the side effects of this drug worked out something new comes along!!!! The results have been better than I could have ever imagined, but I am curious about this hair thing. Thanks guys, Sharon Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted February 20, 2006 Share Posted February 20, 2006 Hi Sharron, I have been on Tarceva for a year now--get some (more in the beginning/on the mild side) sores now and then on my head. Have not lost any hair, has gotten thinner and grayer. Hope this helps. Rich Quote Link to comment Share on other sites More sharing options...
kamataca Posted February 20, 2006 Share Posted February 20, 2006 It just amazes me how Tarceva affects everyone differently! I believe Mom has been on it for about 10 months now. Her hair loss was attributed to her radiation on her skull, though. Hope you get some relief soon! Kelly Quote Link to comment Share on other sites More sharing options...
Annemarie Rima Posted February 25, 2006 Share Posted February 25, 2006 Hello, Rich and others, Let me introduce myself first. My name is Annemarie, my partner, Jeroen and I, are living together already for more than 30 years (since we were 17 years old, this year we are celebrating both our 50th birthday). We live in The Netherlands, in Maastricht. Last year in April we heard that Jeroen was suffering from NSCLC (ardenocarcinome) with metastases in his bones and brains. Of course our world colapsed. But Jeroen had the standard chemotherapy (4 times 4 weeks) and radiotherapy for his bones and brains and in September things looked a lot better. But after a months it became clear that the long tumor has grown again and he started with Tarceva end of November. In December it became clear that it worked very well!! The tumor was shrunken with 70% and since then the tumor is stabile and Jeroen is feeling great and has lots of energy. He has some acne, but he can cope with that. Tarceva is not yet registered in The Netherlands and the long doctors do not have much experience with it. Jeroen is now using Tarceva for 3 months. I would lie to have contact with someone who is using Tarceva for a long period already. Rich, apparently you are using Tarceva already for a year. How is that, are there any changes in the tumor or in the side-effects. What did the doctors told you, can you keep on using Tarceva for the coming years? I am curious to read about your experiences. And of course, I hope you are well and has the same positive feeling as Jeroen has. Best wishes, Annemarie Quote Link to comment Share on other sites More sharing options...
missyk Posted February 25, 2006 Share Posted February 25, 2006 Sharon... Just wanted to drop in and tell you that, for Mom, it was the Tarceva that FINALLY got her losing enough hair that we shaved it off her. (See avatar) Quote Link to comment Share on other sites More sharing options...
bunny Posted February 25, 2006 Share Posted February 25, 2006 no hair loss for my mom. just a lot of dry skin and a few spots of that rash. good luck with it! xoxo amie Quote Link to comment Share on other sites More sharing options...
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