mama4zach Posted February 20, 2006 Share Posted February 20, 2006 Hi to everyone, I go back to my sclc onc tomo to discuss my bone mets and what can be done. I have one at the base of skull in neck, one in shoulder, one in pelvis, one in hip, one on tail bone, one in the upper thigh and one on my butt. When I first spoke with her she made me feel like not much could be done. She said i had 2 options, nothing at all or chemo with will consist on irinotecan and carboplatin. It will be given once a week. She also mentioned a trial. I really don't know much about mets to bones except it hurts bad. But I thought they could be treated. I was dx with sclc limited in January of 2005. I received cisplatin and etoposide and radiation until the end of April. I also had PCI treatments. I go to Johns Hopkins and would think they would know what could or could not be done. I understood her to say even with chemo I only had about a year. I know no one knows how long anyone has to live except our Lord up above, but it is really scarey when you have a 3 year old to think about. If anyone has had this treatment would you please let me know how it did both with the cancer and physically. But like I said before I was in shock when I talked to her and maybe I misunderstood. Please help me if you can. Thanks, Nancy Quote Link to comment Share on other sites More sharing options...
Patkid Posted February 20, 2006 Share Posted February 20, 2006 nancy, I don't know any answers. I only know I am praying for you and for Zach. I wish I could run over and help out. Love P Quote Link to comment Share on other sites More sharing options...
finster Posted February 20, 2006 Share Posted February 20, 2006 Nancy, My mom had bone mets in several different places. When her cancer returned after the first round of chemo, she also did irinotecan and cisplatin. As far as the bone mets go, they did radiation for the ones that caused her pain. Sorry I don't have more information, but I am wishing you the best. Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted February 20, 2006 Share Posted February 20, 2006 Sorry no answers but you are in my prayers. Quote Link to comment Share on other sites More sharing options...
Don Wood Posted February 20, 2006 Share Posted February 20, 2006 Lucie has had bone mets all through her bouts with lc. If you are having sharp, constant pain, radiation could be used to ease that. Also, if the mets threaten bone integrity (like a fracture), radiation can be used. Lucie also takes Zometa once a month to help strengthen the bones against mets. Don Quote Link to comment Share on other sites More sharing options...
J.C. Posted February 20, 2006 Share Posted February 20, 2006 Don just took the words out of my mouth, for some mets it would take only a few treatments on each spot. Prayers on the way. Hugs Jackie Quote Link to comment Share on other sites More sharing options...
mama4zach Posted February 20, 2006 Author Share Posted February 20, 2006 thanks for info thus far but my dr has told me no radiation on mets. I had 30 treatments of radiation with my lc and 15 pci treatments so i don't know why no radiation. They say bone mets are so painful. Lord help me. God Bless Nancy Quote Link to comment Share on other sites More sharing options...
Trish Posted February 21, 2006 Share Posted February 21, 2006 Nancy, Are you experiencing pain from your bone mets right now? My mom is currently having radiation to her bone mets on her shoulder, both hips, L4 & L5 vertebrae and tailbone. She takes oxycodone for breakthrough pain and has a fentyl(sp?) patch for steady pain meds. She has NSCLC and didn't have pain from the mets for quite awhile. I'm hoping your doctor gives you some more choices. Trish Quote Link to comment Share on other sites More sharing options...
Sheri Posted February 21, 2006 Share Posted February 21, 2006 Nancy, I'm so sorry your in this pain. If the bone mets have not been radiated previously, they should be able to radiate to alleviate the pain. Also ask about Zometa, it's used for Non small cell bone mets and has kept a couple of members here maintained for some time. I don't know if it will work with small cell, but it can't hurt to ask. I know it's so hard to keep your chin up, I pray you're able to get some answers and comfort from your next onc appt. Quote Link to comment Share on other sites More sharing options...
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