adela Posted February 23, 2006 Share Posted February 23, 2006 Ed is on a clinical trial Velcade and Alimta. CT Scan on 2/21.Oncologist stated that one tumor has reduced and others are stable, HOWEVER the CEA is up like 250. Doc said he is not going to pay attention to the CEA he will pay attention to the scan. Doc scheduled 2 more cycles. Ed is not eating or drinking liquids. This last week Ed keeps talking about going home we are in LA and his birthplace is Seattle. He told me 2 nights ago we had a home in Pacific County the home his father built. Today Ed woke up from a nap called me and told me I had to get him and take him home. He also called his son and told him the same thing. Ed started a downhill spiral when he lost his voice and could not swallow. He lost 12 lbs in 6 weeks. I am begining to feel perhaps Ed should not have anymore chemo.Ed would like to take a break and then take more chemo. Or have the chemo in Seattle. I doubt if that is possible. I don't think a cancer center in Seattle would be cooperating with one in LA to administer the chemo. He so wants to go home. I want to take him home. If he takes the chemo we won't be able to go until April 7. I don't know if he has that time and he is feeling he doesn't. For about 4 weeks I have felt Ed is depressed. Ed finally asked the doc for a antidepressent. Last night he took one and had a good night. Sorry for the rambling. I am concerned about doing the right thing for my husband. Quote Link to comment Share on other sites More sharing options...
ginnyde Posted February 23, 2006 Share Posted February 23, 2006 Adela, so many tough decisions. How about letting the antidepressants work for awhile and see if Ed wants to stay and finish the chemo. If not, I guess you really have to let Ed make the decision. Quote Link to comment Share on other sites More sharing options...
RandyW Posted February 23, 2006 Share Posted February 23, 2006 http://www.seattlecancerwellness.com/ad ... organ.html This is a link to a cancer center in seattle Established patients and providers, please call 800-321-9272 I do not know if this is possible but a phone call can not hurt. If you don't ask you will never know. Good luck and many prayers for you and your family Quote Link to comment Share on other sites More sharing options...
RandyW Posted February 23, 2006 Share Posted February 23, 2006 http://www.uwmedicine.org/PatientCare/I ... rvices.htm This is University Of Washington Links? Contact UW Medicine Harborview Medical Center UW Medical Center UW Physicians UW School of Medicine UW Medicine Web Site UW Directory Assistance -------------------------------------------------------------------------------- Harborview Medical Center Harborview Medical Center Operator Tel: 206-731-3000 TTY: 206-731-2800 Clinic Information 206-731-3754 Community Relations 206-731-3041 Health Coverage Services 206-731-3084 Human Resources 206-731-3233 Parking Information 206-731-3254 Patient Information 206-731-3300 Patient Relations 206-731-5000 Release of Information 206-521-1573 More Phone Numbers... -------------------------------------------------------------------------------- UW Medical Center UW Medical Center Operator Tel: 206-598-3300 TTY: 206-598-4002 versity Of Washington Link Quote Link to comment Share on other sites More sharing options...
MilliBr1 Posted February 23, 2006 Share Posted February 23, 2006 You both are in my prayers. Quote Link to comment Share on other sites More sharing options...
adela Posted February 23, 2006 Author Share Posted February 23, 2006 Thank you all for the support. Yes they are tough decisions. I lost sleep last night over this. Ed was in slumberland and got rest. Quote Link to comment Share on other sites More sharing options...
kamataca Posted February 23, 2006 Share Posted February 23, 2006 I'm glad Ed got some sleep. You need to be sure and take care fo yourself, as well. I know it seems ridiculous, but you really can't help him if you wear yourself out completely. I'm truly sorry that things are so tough right now. You are both in my prayers. Kelly Quote Link to comment Share on other sites More sharing options...
trishnmiller Posted February 23, 2006 Share Posted February 23, 2006 I distinctly feel what you are going through. You must take care of yourself..please! Trish Quote Link to comment Share on other sites More sharing options...
adela Posted February 24, 2006 Author Share Posted February 24, 2006 Ed is leaning towards no more chemo. He is still confused.He can hardly walk, he is still not eating enough. When he is sitting on the bed he falls backs and to the right.He losing coordination of his right arm and hand. The radiation oncologist states everything stable and we may have to wait for while before we see change. He wants to ask the oncologist what harm would it do not to have chemo for 6 weeks so we can go to Seattle. Last night a social worker came and spoke with us, I asked about Hospice. Ed feels calling in Hospice is a death sentence. The social worker explained that hospice can be pallitive(sp) care. That kind of satisfied Ed. So Ed still wants to talk to the doctor, he is 80% certain he does not want chemo. I am trying hard to stay calm and take care of myself. Another sleepless night. Does anyone have magic dust for this? I am so glad I stopped lurking and joined this great group. Quote Link to comment Share on other sites More sharing options...
Dazy Posted February 24, 2006 Share Posted February 24, 2006 I am so sorry for what you are going thru...Ed is truly blessed to have such a caring, devoted partner looking out for him. I pray you will find the answers you need, and that Ed may go home. As for magic dust...I use an occasional Xanax. Seems to put the mind beasties to rest for a time, so I can do the same. ~ Stacey Quote Link to comment Share on other sites More sharing options...
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