Inkerdoodler Posted March 7, 2006 Share Posted March 7, 2006 My heart is breaking. Yesterday they told us that his scan last week showed that the cancer continues to progress and that the Navelbine is not working. The think that totally has us in shock and disbelief is that they told us there are "no other options" left for him... there might be one but it is "highly toxic" (can't remember the name; I think it started with an "I") and are leaving it up to him to decide if he wants to go through it. They are talking about referring him to hospice, and to us that is for people unable to take care of themselves. We feel like they are closing the door on us. Jim is unbelievably down, and his response to most questions is "it doesn't matter" -- totally unlike him. We feel like they've taken away his hope. I want to pursue other opinions based on what I've read on this board, when I see folks who have been through many more kinds of treatments than he has. He's supposedly being treated at one of the best places in the country. Out of state is probably not an option as our insurance probalby will only cover a portion, and Massachusetts doesn't allow providers to "bill back" the difference to the patient... we have NO money to pay the difference which is sometimes thousands of dollars. Any advice would be welcome! Sandy Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted March 7, 2006 Share Posted March 7, 2006 Sandy, Since his pain is now under control, if he is willing to fight, then I say by all means get another opinion. I will pray for your strength while you are searching. If I can help, please let me know. XOXOXO Quote Link to comment Share on other sites More sharing options...
dchurchi Posted March 7, 2006 Share Posted March 7, 2006 I am sorry about this news , I would get another opinion for sure. Many prayers for your family. Quote Link to comment Share on other sites More sharing options...
trish2418 Posted March 7, 2006 Share Posted March 7, 2006 Definitely go for the 2nd opinion. In the meantime, you've got my prayers and support. Trish Quote Link to comment Share on other sites More sharing options...
michelepal Posted March 7, 2006 Share Posted March 7, 2006 Sandy, I will keep your family in my prayers. Michele Quote Link to comment Share on other sites More sharing options...
Ry Posted March 7, 2006 Share Posted March 7, 2006 What about trying Tarceva? Ask about it. Quote Link to comment Share on other sites More sharing options...
kamataca Posted March 7, 2006 Share Posted March 7, 2006 Sandy, I just feel for you. This has to be like getting socked in the gut. I pray he can rebound with some hope soon. It is so hard when the Drs aren't offering any, but you guys have been fighting this for so long! I don't know much, but I can sure pray! You will be in my prayers. Please keep us posted. Kelly Quote Link to comment Share on other sites More sharing options...
Jodi Posted March 7, 2006 Share Posted March 7, 2006 The power of prayer really seems to help....here's sending many positive thoughts and prayers, your way! Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted March 7, 2006 Share Posted March 7, 2006 Sandy, very sorry to hear this--did you ask about clinical trials? Rich Quote Link to comment Share on other sites More sharing options...
Don Wood Posted March 7, 2006 Share Posted March 7, 2006 I agree with the others. Get a second opinion. There are Tarceva, Gemzar, Atavin, more things to try. Don Quote Link to comment Share on other sites More sharing options...
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