DebsSky Posted March 18, 2006 Share Posted March 18, 2006 Hi everyone: Just wanting peoples input and experiences with Gamma Knife or Temodar. Thanks for sharing if you can. Love and prayers, Deb Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted March 18, 2006 Share Posted March 18, 2006 Mom had stereotactic radiosurgery and I am still not sure if it is the exact same thing as gamma knife. If someone can clarify whether it is or not, I am happy to share mom's experience. Let me know.. Quote Link to comment Share on other sites More sharing options...
DebsSky Posted March 18, 2006 Author Share Posted March 18, 2006 Hi Lori: I am not exactly sure what the difference is. Maybe somebody will chime in. Thanks Lori, Deb Quote Link to comment Share on other sites More sharing options...
missyk Posted March 19, 2006 Share Posted March 19, 2006 From what i understand Gamma Knife is a form (Brand?) of stereotactic radiosurgery. Mom had SRS on two lesions in the brain, one 1 inch, one 1 mm...both were taken care of with no side effects. We thought it was pretty cool, actually, the whole process and the technology! Quote Link to comment Share on other sites More sharing options...
DebsSky Posted March 19, 2006 Author Share Posted March 19, 2006 Thanks Missy, appreciate your sharing. Deb Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted March 19, 2006 Share Posted March 19, 2006 Deb, I would first find out if she ill have a frame "attached to her head". Mom's first go around with SRS she had the frame. We went in at 6am and she had to sit with the frame until 4pm when they staretd the radiation. The frame was attached with screws and it was pretty uncomfortable for mom. The second time, she did not have the frame and so it was much better. Her neurosurgeon said it was the exact same treatment, they had just improved the procedure in the 3 month interim. I can't really say there were any side effects from the procedure, other than sensitivity around the sites where the screws were. That went on for a few weeks. Those are the highlights..If you have other questions, please ask. XOXOXOX me Quote Link to comment Share on other sites More sharing options...
Don M Posted March 19, 2006 Share Posted March 19, 2006 Here is a link that gives an overview of stereotactic radiosurgery: http://www.irsa.org/radiosurgery.html I think Lori's mom must have had cyberknife surgery the second time because as far as I know it is the only form of sterotactic radiosurgery that does not require a head mask or frame. Gamma knife requires a frame. I am going to pursue having cyberknife surgery for a lung tumor. http://www.accuray.com/ http://www.cyberknifesupport.org/forum/default.aspx?c=4 Don M Quote Link to comment Share on other sites More sharing options...
missyk Posted March 20, 2006 Share Posted March 20, 2006 Oh, i forgot about that part, Lori! Thanks for reminding me. Mom DIDN'T have a frame, she had this cool mesh stuff that conformed to the shape of her face...she even got to bring it home to show the grandkids who thought it was really neat to see. So, again, maybe it was cyberknife. They just called it stereotactic radiosurgery. Hope all goes well! Quote Link to comment Share on other sites More sharing options...
karen335 Posted March 21, 2006 Share Posted March 21, 2006 Had the same Blue "Freddy Krueger Mask" for SRS.. Quote Link to comment Share on other sites More sharing options...
mayos Posted March 21, 2006 Share Posted March 21, 2006 As for experience with the drug TEMODAR.....I took it during WBR and had to drop it due to low O2 levels. I have a friend who also took it and had no problems at all. Quote Link to comment Share on other sites More sharing options...
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