cindi o'h Posted March 20, 2006 Share Posted March 20, 2006 Ok, I was all riled up and in my mind feathers were going to fly. Somewhere something came flying into my head that I don't have to "do this" all by myself anymore. I turned to my young and competent, Dr. Cash, my PCP. I told him all that has been going on with me since Feb. 1. The pet/ct scan. Having to wait 3 weeks for the results. The ambiguous report. The perceived apathy from the onc. Changing oncs. The cyberknife boards' recommendation to get a CT asap. Finding a new onc. Another higher resolution CT with contrast. And this silly nurse that called me wanting to tell me about my boob. She "read" the CT report over the phone to me. Dr. Cash pulled up the report and printed it off to me. It was nothing like she read to me. She had picked and chosen 1/10th of what the report actually said. She said that there was no mention of the lymph node. Well there was. It said that it appeared unchanged in size since the last CT in Nov. Also, there is a new finding. My left lung now has it's first effusion. Cindi o'h is not too happy about this finding. I will have to think about this some more. I had an effusion that gave me plenty trouble on the Right side... I told Dr. Cash that what had happened had left me feeling helpless and powerless and that is not how a lung cancer patient cares to feel. I was crying with the pouring out of emtions attached to my frustrating experiences. He was leaning in, good eye contact and empathy. He went to get the reports, he offered an outside read. He said he would help in any way that he could. He assured me that I was not alone and that anytime he is available to help. May I clone him and offer him as Christmas gifts to all of you? Took an ativan this weekend or two and calming down and forgetting about that crazy nurse. Thanks for all your care and support. Cindi o'h Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted March 20, 2006 Share Posted March 20, 2006 Cindi--My thoughts and prayers are with you as always for nothing but the best. Rich Quote Link to comment Share on other sites More sharing options...
J.C. Posted March 20, 2006 Share Posted March 20, 2006 Way to go Cindi. Best for you Jackie Quote Link to comment Share on other sites More sharing options...
gail Posted March 20, 2006 Share Posted March 20, 2006 I like that doc. I also commend you for reaching out. That is so hard for us sometimes isn't it? May your first day of spring be happy. Quote Link to comment Share on other sites More sharing options...
mamasbabygirl Posted March 20, 2006 Share Posted March 20, 2006 I absolutely care and will be awaiting more info, as are you I'm sure. Are you still feeling so great? XOXOXO me Quote Link to comment Share on other sites More sharing options...
Frank Lamb Posted March 20, 2006 Share Posted March 20, 2006 Cindi,hang in there friend.Mabe round up the dr. you like plus a few of us from the pub.We could arm our selves with lite whippy action fisin poles and go put a whoopin on that nurse and learn her some manners. Then we could go fishin and relax . Quote Link to comment Share on other sites More sharing options...
kimmek Posted March 20, 2006 Share Posted March 20, 2006 I have been away for a bit, just busy really, but not enough time to read, so I will have to go searching and find out about your "boob". But from what I have just read that nurse needs to be sent to the corner!! I am so glad though thata you have found a wonderful doctor, they are so rare these days. Take care of yourself and keep us updated (i know you will). Love Kim Quote Link to comment Share on other sites More sharing options...
bunny Posted March 20, 2006 Share Posted March 20, 2006 hang in there, cindi. it sounds like you reached out to the right person, and I trust you'll find an onc worthy of your beautiful presence - and who'll know how to handle that effusion, and everything else. I hate that you have been through so much baloney, but glad you're moving ahead, as always. xoxo amie Quote Link to comment Share on other sites More sharing options...
Geri Posted March 20, 2006 Share Posted March 20, 2006 I'll take a clone please........do I have to wait for Christmas? How great is that that you've got a doc in your corner, he sounds like a real keeper. Wishing only good things for you my friend, take care Geri Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted March 20, 2006 Share Posted March 20, 2006 I wish the very best for you. Glad you found a good doctor - they are precious. Keeping you in my prayers. Joanie ((())) Quote Link to comment Share on other sites More sharing options...
Ry Posted March 20, 2006 Share Posted March 20, 2006 Nothing like a great PCP is there? In the beginning when John was diagnosed, our PCP told us that he would be the captain of the ship and help coordinate everyone else. He's been great. Quote Link to comment Share on other sites More sharing options...
Carleen Posted March 20, 2006 Share Posted March 20, 2006 (((Cindi)))) what a relief to finally have someone else fighting along side you instead of against you. I just can't believe the incompetence and insensitivity of some health care "professionals" like that nurse. Prayers that things will go smoother and better now that you have your PCP on your side. Quote Link to comment Share on other sites More sharing options...
shineladysue Posted March 20, 2006 Share Posted March 20, 2006 Cindi, Between you and your wonderful, Dr. Cash, I hope you can get all the answers and help you need. You know I'm out here and care. Love, Sue Quote Link to comment Share on other sites More sharing options...
Don M Posted March 20, 2006 Share Posted March 20, 2006 Cindi: I am very glad to hear that there is no change in your lymph node. Of course, another effuison will be no fun, but at least you know what to expect and what to do if it progresses. You can tell yoour PCP we all approve of him. Don M Quote Link to comment Share on other sites More sharing options...
Shar Posted March 20, 2006 Share Posted March 20, 2006 Way to go Cindi. Glad you got it all sorted and your doctor sounds wonderful!! Nothing but positive thoughts being sent your way, Sharon Quote Link to comment Share on other sites More sharing options...
blaze100 Posted March 21, 2006 Share Posted March 21, 2006 Oh Cindi O'h, I am so happy for you that the node was unchanged. I don't really understand what the effusion means in terms of treatment, but sounds like you do..... and just guessing it's not pleasant? Hugs, Barb Quote Link to comment Share on other sites More sharing options...
Nushka Posted March 21, 2006 Share Posted March 21, 2006 Cindi, I know you must feel better just being able to "get it all out". Thank goodness for your wonderful Dr. Cash. I hope the effusion doesn't turn out to be a big one and that it will resolve on its own. Sounds like you need to open that bar of yours and have a party. We'll take a party on your terms. Pity party, laughing/crying party, fun party ...whatever you need at the moment. Just know we are all there with you. Love you Cindi, Nina Quote Link to comment Share on other sites More sharing options...
cindi o'h Posted March 23, 2006 Author Share Posted March 23, 2006 Thanks all. I called the new pulm. here on my own and talked "through" His nurse...(does anyone ever talk to a real doctor anymore?). Anyway, I requested that he take a look at the CT scan and the effusion. I cannot afford anymore loss of lung function as I barely function as it is. He said he will see me after the sleep study I have scheduled for April 2 for a re-eval. of the effusion. Hopefully, it will have resolved on its own and it will be a thing of the past. Love you all too! Cindi o'h Quote Link to comment Share on other sites More sharing options...
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