NancyT Posted April 5, 2006 Share Posted April 5, 2006 I struggle writing as things have been getting so much worse. My Dad's pain is increasing, working with Hospice but it's not working. I had my brothers up for a meeting saturday. My Dad will soon need 24hr care, he was coming to my house but now he does not want that. Last week I spent 3 days with him(I live 2 hr. away) and he cannot cope with his daughter being his main caregiver. I understand that. We have a Hospice House(Bruns House) nearby, its wonderful but only covered for 3 wks or so by medicare. If not, you private pay. I was going to move him today....but he changed his mind. One of my brothers did not want my Dad moved. The issue where he is ....its a one room........if we hire additional help they have to be on a cot and my Dad has no privacy....He has always been so independent. I want so much to do the right thing, listen to his wishes, but last night he told me he was afraid. I talked to the hospice nurse again this morning, told her he is losing ground. The days are long and painful.....they are using a combination of Kaden(ms contin), Roxinal drops and ativan. Anyone have any other meds or combinations that have helped? His pain is in the chest where the main tumor is and his back. Losing 1 lb/week dispite Boost Plus and anything else I can get him to eat(hardly at all). I am consumed by all this, hardly able to function with such worry. I am here on the site everyday and get strengh from everyone. I struggle posting such sad news NancyT Quote Link to comment Share on other sites More sharing options...
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